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Author Topic: Not all babes, I am on here too!  (Read 6725 times)
Jay72
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« on: October 30, 2008, 04:12:59 PM »
I guess I should be on here too since I have been on nocturnal now for three weeks, and have only gotten about 3 hours of sleep each night too.  I do it myself here at home and it always starts offf fine but usually around 3:00 am the alarms start ringing, and ringing and ringing, venous pressure, arterial pressure TMP limits, you name it they go off.  I still usually get 7  hours in so yes I so feel better but the lack of sleep is killing me as I go to school for 8 in the morning.   I go to the unit next week for 3 days of training on the single needle and the change on my machine, I use the Fresenous 2000 K @ Home and they will be adding another pump to it for the single needle process.

Wish me luck because I sure as hell need it.

Jay
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Rerun
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Going through life tied to a chair!
« Reply #1 on: October 30, 2008, 04:16:18 PM »
I didn't know they still had the single needle.  I used it 20 years ago and didn't like it.  It would jerk back and forth.  But, I hope they have improved it.

Please let us know how it goes.             :waving;
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del
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del and willowtreewren meet
« Reply #2 on: October 30, 2008, 05:00:27 PM »
Do you know what is causing the alarms???  Are you lying on your line and kinking it off.  Hubby's machine used to alarm a lot in the night first when he stared because he would fall asleep and lie on the lines.  He started taping the lines together and the machine rarely alarms during the night now.  He tapes the lines together in a couple of differet places that way the lines don't kink off as easily.  If you want a pic of the way he tapes his lines pm me and I will send you one!!
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Don't take your organs to heaven.  Heaven knows we need them here.
flip
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« Reply #3 on: October 30, 2008, 08:38:45 PM »
Flow rates are fairly low on the single needle setups so you may have to increase your time.
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That which does not kill me only makes me stronger - Neitzsche
kitkatz
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« Reply #4 on: October 30, 2008, 08:44:54 PM »
But you are a BABE, too.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
kidney4traci
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« Reply #5 on: October 30, 2008, 09:13:15 PM »
Can't imagine lack of sleep - Yuck!  Somethings gotta give...  maybe the re-taping will help.
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Married - three children.
Alports female, diagnosed ESRD 10/04
11/04  Hemo in clinic
6/07 hemo at HOME! 
2/3/09 - Transplant from an angel of a friend!!!
Jay72
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« Reply #6 on: October 31, 2008, 05:38:34 PM »
Flip -- I can do anywhere from 6 to 9 hours, so it won't be an issue.

I talked to my nurses today and they think the main problem I  am having is that I am going too dry, they told me to raise my dry weight by 1.5 kilo's.

So hopefully I will get some sleep
  God knows I need it, I am burt the hell out!
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del
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« Reply #7 on: November 01, 2008, 04:19:37 PM »
Hubby felt the same way first when he started jay!!!  Hopefully it will get much better for you too.  I'm pming you the pics I took of the way hubby tapes his lines.
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Don't take your organs to heaven.  Heaven knows we need them here.
jbeany
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« Reply #8 on: November 01, 2008, 08:35:36 PM »
Well, here's hoping you sleep like a babe tonight!  :beer1;
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
twirl
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« Reply #9 on: January 20, 2009, 04:00:32 AM »
jay 72
a man can be a babe
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Jay72
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« Reply #10 on: January 20, 2009, 10:56:21 AM »
I know I know!!!
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