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Author Topic: Annual get togethers 2009  (Read 23879 times)
monrein
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Might as well smile
« Reply #50 on: October 27, 2008, 04:18:56 PM »
That would be a blast indeed...do I hear corporate sponsors anyone? 
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
kellyt
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« Reply #51 on: October 27, 2008, 04:23:26 PM »
I love cruises!  I'll do that for sure!
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
flip
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« Reply #52 on: October 27, 2008, 04:37:08 PM »
I'm sure good ole Davita will chip in.
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aharris2
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Volcan Pacaya, Guatemala
« Reply #53 on: October 27, 2008, 04:47:50 PM »
Quote from: paul.karen on October 27, 2008, 10:06:26 AM
Atlantic City NJ has great casinos.  And beautiful beachs and is very close to NYC and Philadelphia.

Vegas is Ok.  But so darn hot.


That's why October was selected. Surprisingly enough, it was COLD this time. Highs in the 60s and 70s, and lows in the 50s and 40s. We are the proud owners of a new lined jacket and a new fleece! Who woulda thought.
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Life is like a box of chocolates...the more you eat the messier it gets - Epofriend

Epofriend - April 7, 1963 - May 24, 2013
My dear Rolando, I miss you so much!
Rest in peace my dear brother...
Bajanne
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« Reply #54 on: October 27, 2008, 05:34:30 PM »
I loved the cold!!!  Wish I could have that kind of temperature all year round.  Imagine living without perspiring!!!!
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I LOVE  my IHD family! :grouphug;
nursewratchet
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« Reply #55 on: December 09, 2008, 07:27:34 PM »
The cruise sounds like a great idea.  Actually, Davita does sponser cruises.  My clinic sent 2 people last year.  They had to write an essay, or something.  I could go and do the treatments :cheer:  Either way, you could probably get a group rate...
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Vicki
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« Reply #56 on: December 09, 2008, 07:31:35 PM »
Cool idea. Not sure if everyone could afford a cruise.
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Chris
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« Reply #57 on: December 09, 2008, 08:31:28 PM »
Hopefully I can go to Vegas and then I will have a shot of Vodka with Nero for Flip, well the shot of Vodka sounds good.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
mikey07840
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Her royal highness Queen Ruth on her throne, RIP
« Reply #58 on: January 11, 2009, 10:19:37 PM »
How about the Poconos in PA?
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06/85 Diagnosed with type 1 Diabetes
10/04 Radical Nephrectomy (Kidney Cancer or renal cell carcinoma)
02/08 Started Hemodialysis
04/08 Started Peritoneal Dialysis (CAPD)
05/08 Started CCPD (my cycler: The little box of alarms)
07/09 AV Fistula and Permacath added, PD catheter removed. PD discontinued and Hemodialysis resumed
08/09 AV Fistula redone higher up on arm, first one did not work
07/11 Mass found on remaining kidney
08/11 Radical Nephrectomy, confirmed that mass was renal cell carcinoma
12/12 Whipple, mass on pancreas confirmed as renal cell carcinoma

• Don't Knock on Death's door; Ring the bell and run away. Death hates that.

• I'm not a complete Idiot -- some parts are missing.
okarol
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« Reply #59 on: January 11, 2009, 10:36:10 PM »

Lori Hartwell had mentioned again about maybe we could coordinate a meet-up with one of her patient education meetings - we should check the calendar on RSNHope.org and see if anything looks feasible. Might be fun.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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« Reply #60 on: January 11, 2009, 11:37:53 PM »
Quote from: mikey07840 on January 11, 2009, 10:19:37 PM
How about the Poconos in PA?

It was talked about in chat of meeting in Pittsburg with Joe Paul, Paddbear, Myself, and a couple others in the PA/Ohio area for a weekend. That I could drive in about 7 hours from IL on a good sunny day.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
paris
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« Reply #61 on: January 12, 2009, 10:03:55 AM »
I can do the Ohio/ Pennsylvania area.  I am sitting in frozen eastern Ohio right this minute.  I've been visiting my brother and sister for a week and am ready to go back to warmer weather!   
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
kellyt
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« Reply #62 on: January 12, 2009, 02:49:53 PM »
If we decide on a definite "yes" for San Antonio in May 2009 let me know ASAP so that I can begin looking into hotels and activities.  We can get combination tickets for both Sea World and Fiesta Texas if anyone is interested.  There are really cool water parks at both locations!  The Texas "wave pool" is rocking at Fiesta Texas!

I have a speaker in mind, as well.  I just have to contact her.  Bobbie Wager, AAKP President.  She would be a great speaker and believe she said she'd do it (told a friend of mine).  I haven't talked to her directly.

I'm sure Nursewratchet will pitch in and help me with some activities and organization, as well as anyone else in the S.A./Texas area that would like to help out.
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
MIbarra
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Stopping to smell the bluebonnets
« Reply #63 on: January 12, 2009, 03:14:07 PM »
I will help out if I can. I'm in the Houston area so not too close to SA - maybe 4-5 hours away.
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Cadaver transplant April 29, 2007
pelagia
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« Reply #64 on: January 12, 2009, 03:33:09 PM »
I might be able to make one of these gatherings at some point and, wow, the airfares are incredible right now...

from my airport to:
 Nashville TN $294
 San Antonio TX $204 (woa!)
 Myrtle Beach SC $275
 Los Angeles CA $418
 Daytona Beach FL $240
 New Orleans LA $262
 Savannah GA $240
 Pittsburgh PA $181
 Atlantic City - no flights from here? - might be 8 hours away by car
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
paris
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« Reply #65 on: January 12, 2009, 03:49:10 PM »
May?  If I miss San Antonio, I will be so sad   :'(   Son's wedding May 9th and nephews graduation Memorial week end.    I never have plans!  Why is May so busy?  I could skip my son't wedding---------well, maybe not a good idea.   :rofl;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
kellyt
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« Reply #66 on: January 12, 2009, 05:00:11 PM »
Any month is fine with me.  And, no, you can't miss your son's wedding.  That would be brutal!

Paris, did I read you're going to Paris for the entire month of Feb?    I am soooo jealous!!!
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
okarol
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« Reply #67 on: January 12, 2009, 05:14:30 PM »

The airfare for me to San Antonio in May looks like it would be about $320? Not sure why it's so high from So. Cal.
May would be tough because my daughter is graduating high school the first week in June and they have crammed in a million activities in May.
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
kitkatz
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« Reply #68 on: January 12, 2009, 05:20:10 PM »
I get anywhere from 247 up for flights from Ontario to San Antonio. Round trip
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Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
paris
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« Reply #69 on: January 12, 2009, 05:50:30 PM »
Kellyt, that would be the lovely AlohaBeth.  She leaves in a couple of weeks.  Off to visit her friend and explore more of France.  Ahh, what a life!   I think she has taken her lead from Monrein!  (that is a good thing!).   Most of my activities revolve around IHD meet ups!   :rofl;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
kellyt
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« Reply #70 on: January 12, 2009, 05:56:50 PM »
Paris, you can plan a trip to visit me anytime!  :bandance;   It doesn't have to be an IHD meeting!  Once I'm cleared for flight maybe I'll schedule a visit to you!  Wouldn't that be fun!  I have two more IVIG treatments and they are one in Feb and one in March.  I'm working through January (maybe into the first two weeks of Feb).

Did I tell you I pulled up your address on Google Earth?  Looks beautiful (aerial view, anyway.  I can only see the top of your roof and some trees).   :rofl;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Chris
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« Reply #71 on: January 12, 2009, 05:57:23 PM »
So close, yet so far away for RichardMel to meet AlohaBeth
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Chris
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« Reply #72 on: January 12, 2009, 06:01:06 PM »
Don't trust Google Earth on my addy, the area I live has changed so much and Google hasn't updated the streets and views for over 3 years. :urcrazy;

If I see Joe paul in chat tonight, I'll have to ask who he was thinking of for a meet in the east in PA area.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
paris
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Posts: 8859
« Reply #73 on: January 12, 2009, 06:06:07 PM »
She'll be back in a month and ready to party with Chris and Richard!  :clap;

The picture on google is very accurate of my house.   :thumbup;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
aharris2
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Volcan Pacaya, Guatemala
« Reply #74 on: January 12, 2009, 06:10:23 PM »
Wasn't RichardMel planning a visit to France in the very near future (something about a secret rendezvous if I remember it right...)
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Life is like a box of chocolates...the more you eat the messier it gets - Epofriend

Epofriend - April 7, 1963 - May 24, 2013
My dear Rolando, I miss you so much!
Rest in peace my dear brother...
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