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Author Topic: Who Shall Live?  (Read 13961 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« on: October 22, 2008, 02:46:13 PM »

As Bajanne mentioned in another thread, there is a DVD entitled "Who Shall Live?" - we gave them to the attendees at the Las Vegas meeting.

In those early days of the technology, only a few patients could be treated, and even then at great cost. The demand greatly exceeded the capacity to treat patients, and some means of selection was needed. An anonymous panel of community members was formed to screen and select patients for treatment. The highly controversial decision-making process was the subject of an NBC documentary in 1965 entitled "Who Shall Live?" narrated by Edwin Newman. That gothic portrayal showed the faceless black silhouettes of the anonymous committee members against a stark white screen as they deliberated over the merits of each case. But on what grounds should patients be selected? Age, finances, family dependents, job title?

If you would like a copy of the documentary, please let me know and I will get one to you, free of charge.

« Last Edit: October 22, 2008, 04:37:04 PM by okarol » Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Rerun
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« Reply #1 on: October 22, 2008, 02:55:11 PM »

In 1961 you had to have $10,000 up front for 2 years of dialysis.  Great Cost?  That would be 3 treatments today.

I think it is great that you have these DVD's for history.  I don't need one though.  Thanks~
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Zach
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"Still crazy after all these years."

« Reply #2 on: October 22, 2008, 03:04:06 PM »


In 1961 you had to have $10,000 up front for 2 years of dialysis.  Great Cost?  That would be 3 treatments today.


$10,000 should cover about one year on home hemodialysis.

8)

PS:  Medicare approves about $146.00 per dialysis treatment (meds are separate, for now).
Of that amount, Medicare pays 80% and private Medigap insurance pays 20% -- if Medicare is your primary insurance.

If a private insurance policy is your primary, then the payment may be more like $500 to $800 per treatment.
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
monrein
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« Reply #3 on: October 22, 2008, 03:14:30 PM »

You would need also to look at salary averages in 1965 or 1961 to think about how much money $10,000 dollars represented.  It would not have been uncommon to make $5,000 a year as a secretary or entry-level teacher so that's very high cost indeed.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Zach
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"Still crazy after all these years."

« Reply #4 on: October 22, 2008, 03:33:56 PM »

What cost $10,000.00 in 1965 would cost $65,085.24 in 2007.
http://www.westegg.com/inflation/

8)
Logged

Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #5 on: October 22, 2008, 04:37:40 PM »


I amended my original post to clarify that there is no charge for the DVD.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
petey
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« Reply #6 on: October 22, 2008, 05:50:28 PM »

I'd like one, okarol.  Do you still have my mailing address?
Thanks,
petey (Marsha)
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« Reply #7 on: October 22, 2008, 09:24:03 PM »

Great offer at a greater Price of $0. How cool is that? I already have one but must confess I have not watched it yet.
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #8 on: October 22, 2008, 10:36:15 PM »

I'd like one, okarol.  Do you still have my mailing address?
Thanks,
petey (Marsha)

Yes, I do, I will send one.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
boxman55
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« Reply #9 on: October 25, 2008, 08:17:30 AM »

Karol I would like to get one also. Thank you...Boxman
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
willieandwinnie
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« Reply #10 on: October 25, 2008, 08:39:32 AM »

okarol, do you have any left? I'd love a copy.  :waving;
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Bajanne
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« Reply #11 on: October 25, 2008, 08:40:26 AM »

My salary as a teacher in 1968 was $145.00  (BWI currency at the time which was 1/2 US$!!!)   Dialysis here is $500 a session (free for citizens and residents). That would be $1,500 a week  - $78,000 a year!!!!!  In my home country, Barbados, it is $900 a week (again, free for citizens and residents) - $46,800 a year!
It is only looking at these figures that I see the great cost of dialysis.

That movie "Who Shall Live?" was eye-opening.  Sam and I watched it and were overwhelmed.  You see, my father passed away because of them not thinking it was worth it to put a man 88 years old on dialysis, in spite of the fact that he was extremely healthy for his age and that was his only problem.  Our family doctor even cried because he was powerless.

It is also interesting to see how far we have come in terms of the machines we use.

Though I do not like dialysis, I am very grateful for the life-prolongation it is affording me.
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I LOVE  my IHD family! :grouphug;
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #12 on: October 25, 2008, 11:17:36 AM »

Karol I would like to get one also. Thank you...Boxman

okarol, do you have any left? I'd love a copy.  :waving;

I will send you each one.  :waving;
Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
MIbarra
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Stopping to smell the bluebonnets

« Reply #13 on: October 25, 2008, 11:42:05 AM »

Can I get a copy also, please?
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #14 on: October 25, 2008, 11:49:24 AM »

Can I get a copy also, please?

Yes, I have your address from the Holiday Exchange list. Thanks.
Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
MIbarra
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Stopping to smell the bluebonnets

« Reply #15 on: October 25, 2008, 02:49:05 PM »

Thank you!
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Chris
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« Reply #16 on: October 25, 2008, 03:40:05 PM »

I like history and would like to get a copy also. I will have to look at Zach's posted link that shows what cost were like in 1965.

« Last Edit: October 25, 2008, 03:53:18 PM by Chris » Logged

Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
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No two day's are the same, are they?
Romona
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« Reply #17 on: October 25, 2008, 04:43:48 PM »

Could you send me a copy too please. :)
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petey
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« Reply #18 on: October 27, 2008, 04:06:03 PM »

I'd like one, okarol.  Do you still have my mailing address?
Thanks,
petey (Marsha)

Yes, I do, I will send one.

Came today!  Thanks, Karol!  I haven't watched it yet, but Marvin and I plan to soon.  Also, thanks for the two "extra" surprises, Karol.  You really are a sweetheart.  Marvin and I are both wearing our "Donate Life" bracelets now.  And, you remembered to send two, so my Marvin could have one...you know how to make me your friend for life don't you? (include Marvin and I'm endeared to you forever).  Thanks again!
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dkerr
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It is what it is . . .

« Reply #19 on: October 29, 2008, 02:16:48 PM »

My mother was one of those who went before a panel.  My Dad was Air Force and we were transferred to Travis AFB in California because they had a dialysis machine.  They interviewed my mom and another lady and chose my mom.  As I recall in this case the other lady wasn't chosen because of compliance issues.

I would love to have a copy of the video too - please let me know what I can do to get one.  Thanks.  Dianne

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graftgurl
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« Reply #20 on: October 30, 2008, 11:31:28 PM »


PS:  Medicare approves about $146.00 per dialysis treatment (meds are separate, for now).
Of that amount, Medicare pays 80% and private Medigap insurance pays 20% -- if Medicare is your primary insurance.


I am thankful every single day that I have insurance, even if it is Medicare. After saying that though, Medicare can be the worst at covering necessary procedures and medical supplies. Luckily (and I'm being facetious here), I am disabled and qualify for state Medicaid. They pay the 20% that Medicare does not.

After reading all the replies to your post, I have begun to truly understand the financial cost of dialysis. I had absolutely no idea.
Okarol, would you mind sending me a copy of the DVD as well? I will send you my address by PM.
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graftgurl
CKD in fall '03
leg graft July 9 '08 (2 days after my birthday)
began hemodialysis August 21 '08
petrified to apply for transplant b/c of other health issues
Type 1 diabetic for 37 years
single mother of teenage daughter
     who was a 29 week preemie due to Mom's short-term
     kidney failure and resulting in emergency c-section
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #21 on: October 31, 2008, 08:33:07 AM »


Please let me know if the DVD's were received (I know you got yours Petey) because I cannot remember who else I mailed them to.  :oops;
All other requests will go out soon.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Katey
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« Reply #22 on: November 09, 2008, 11:20:55 AM »

I would absolutely love a copy!!  My mother is a 74 yr old RN who tells me of remembering a time when I would not have been able to be on dialysis.

Edited: Address removed - okarol/admin
« Last Edit: November 09, 2008, 11:48:06 AM by okarol » Logged

Diagnosed July 1985
Started CAPD 1995
Changed to Hemo 1996
Cadaver Transplant 1999
Back on Hemo Aug 2008
Found this wonderful site Nov 2008!!
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #23 on: November 28, 2008, 02:58:34 PM »


I finally got more DVD's and I think these are who still needs a copy sent to them:

Boxman
willieandwinnie
mibarra
Chris
Ramona
graftgurl
Katey

If I missed your name, or already sent you one, please let me know.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
MIbarra
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Stopping to smell the bluebonnets

« Reply #24 on: November 28, 2008, 03:18:25 PM »

Yes, I would still like one. Thank you!
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Cadaver transplant April 29, 2007
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