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Author Topic: Mikey and me.......  (Read 22269 times)
pelagia
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« Reply #75 on: November 12, 2008, 05:32:39 PM »
Dear Marley,  I have learned so much about true love and caring from reading your posts.  I am very sorry that Mikey did not have the health he deserved and that you do not get to have 50 more years to love him and be loved by him. 

RIP Mikey
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
G-Ma
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« Reply #76 on: November 12, 2008, 06:55:20 PM »
Marley..I am so sorry for you.  Please feel my hugs.  This will not be easy and no..time does not heal.  Time only "changes" how we look at it.  I know, I got so tired of people saying stupid things.  Thank God you had your family day when he could visit..I wish so many times we had that.  You two were so lucky to have each other in your lives and you will have all those memories..keep those alive for yourself, children and grandchildren and your parents.
Please let me know if there is anything I can do.
Ann
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
lola
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I can fly!!!
« Reply #77 on: November 12, 2008, 07:02:48 PM »
Marley I wish I could give you a BIG hug :grouphug; :grouphug;, when you said how you ran to mama I wanted to cry because that's what we all do if we can.
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paris
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« Reply #78 on: November 12, 2008, 08:12:24 PM »
Dear Marley,  I was worried because we hadn't heard anything for a couple of days.   You are amazing.  You gave your family such a wonderful gift by bringing Mike home.  Those moments will always be precious to all of you.  I have cried so much this week, for so many reasons, but I am sitting here with tears flowing again.  I don't know if I will handle things are graciously as you have when I am in your postiiton.   I pray that God will put His loving arms around you and walk beside you as you honor Mike.  I know the angels are making him feel right at home.  Thank you for sharing your love story with us.  We will be surrounding you and your family with loving thoughts.  Take care of yourself.   We all love you   :grouphug;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Sluff
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« Reply #79 on: November 12, 2008, 08:16:04 PM »
Lifting Mikey and your family in prayer. This is not an easy thing to deal with, take your time and deal with this in your own time and in your own way.   :grouphug;
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aharris2
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« Reply #80 on: November 12, 2008, 08:17:11 PM »
Aw Marley, I am so sorry that Mikey has gone. You're feeling a pain I can't even imagine.  :grouphug;
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Life is like a box of chocolates...the more you eat the messier it gets - Epofriend

Epofriend - April 7, 1963 - May 24, 2013
My dear Rolando, I miss you so much!
Rest in peace my dear brother...
rose1999
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« Reply #81 on: November 12, 2008, 10:54:24 PM »
Marley, I too wish I could hug you, nothing anyone says can ease your pain..............but as time goes on you will know that you did everything for your Mikey and you will remember that he loved you so much.  Such great love brings great pain too.  My tears are genuine although I have never met you, I do feel for your suffering.
Love to you and your dear family :grouphug;
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Joe Paul
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« Reply #82 on: November 13, 2008, 01:53:16 AM »
My condolences to you and your family for your loss  :grouphug;
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
willieandwinnie
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« Reply #83 on: November 13, 2008, 04:20:14 AM »
Marley, my heart is broken for you and I pray God gives you comfort and strength.  :grouphug; My thoughts and prayers are with you and your family.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
twirl
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« Reply #84 on: November 13, 2008, 04:53:14 AM »
I am so sorry.Cheryl
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Bajanne
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« Reply #85 on: November 13, 2008, 09:30:40 AM »
I am hurting for you. but I am glad that you all had that time with him to feel his love for you and to express yours for him.  My love, caring thoughts and prayers are with you at this time.  :grouphug;
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
TynyWonder
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Calvin
« Reply #86 on: November 13, 2008, 02:02:02 PM »
Marley,

I too got choked up when I read that the first thing you did was call your Mama because like someone else said, that is what we all would do, if we could.   I am sorry for your loss.......... :cuddle; :cuddle; :cuddle;
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Diagnosed with ESRD-November 2006
I have had 2 fistuals-neither one worked
I have had 2 grafts the last one finally "took"
I had 3 different catheters from Nov. 06 - Dec. 08
Got on the transplant list - Halloween Day 2008

You can easily judge the character of others by how they treat those who they think can do nothing for them.    I BELIEVE THIS TO BE SOOOOO TRUE!
kitkatz
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« Reply #87 on: November 13, 2008, 07:39:16 PM »
There is nothing anyone can say to ease the pain or emptiness you have in your heart right now. I am sending prayers and hugs to you right now.  :flower; :flower; :grouphug;
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
glitter
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« Reply #88 on: November 13, 2008, 08:31:56 PM »
Hi, I am so sorry for your loss- I hope you have peace.  My heart ached for you when I read your posts- I admire how much you love him.  :'(
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
willieandwinnie
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« Reply #89 on: November 14, 2008, 04:55:50 PM »
Marley, I have been thinking about you a lot today.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Marley
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« Reply #90 on: November 15, 2008, 10:08:29 PM »
I've read all your posts and feel like a lucky lady to have so many people who care.  Thank you everyone for all your prayers and support, cuz I'm gonna need it.  This sucks so bad and hurts so much I can't describe it with words.  Someone said with great love there is great grief, OMG, you were so right!!  I feel numb right now and pretty lost.  I found out from social security yesterday that I don't qualify for survivors benefits and now have only my SSDI to live on, which isn't even enough for the house payment.  My son said he will help me but I'm thinking if I want to keep our house, I need to get a roommate.  WOW, I can't believe how much my life has changed in a blink of an eye. Not only have I lost my best friend, now I might loose our house too.  This is a little too much for me to deal with and I'm having a little (little? ha!) bit of a hard time wrapping my mind around all this right now.  Once I get my meds worked out I'm going for a part time job.  As long as I make under a certain amount I can keep my benefits.  GOT to keep my medicare or I couldn't get my meds--no meds no job.  DAAAMN!!!  This is some scary shit for me, pardon my French but there's one thing I am extremly grateful for and that is that Mike had no idea this would happen to me.  Thank God for that!!!

I've gotten used to waking up with him not in bed with me and instead of seeing his head on the pillow, it's our dogs head instead, but it's walking out to the livingroom and seeing it empty and exactly the way I left it when I went to bed that's hard.  When I first wake up I'm not remembering he's gone but when it hits me, it's like a weight on my head and in my heart, feels like I just gained 10 lbs.  Saw my grandkids the other day and we talked about Grandpa for a while, nobody cried, which I was glad for; but I told them it's ok to cry if you feel like it. I was better than I thought it would be, we watched a movie--that new Kung Fu Panda--cuddled up on the couch eating ice cream.  It was a nice night.

I'm gonna continue to post on here even though my caregiver days are over, I like you guys and I want to stick around. :) Thank you whoever put Mike's name on the rememberance thread, that was very nice.  I love you guys

Marley
 :guitar:
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Marley
okarol
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« Reply #91 on: November 15, 2008, 10:14:50 PM »

I hope you can work out your living arrangement. It is a huge change and it's so difficult that you're forced to make choices now when you are grieving. Sending you lots of BIG HUGS!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
G-Ma
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« Reply #92 on: November 15, 2008, 10:16:25 PM »
Please do stay on this site...I think it will only help you to talk talk and talk some more about Mikey...that is what helped me so much..talking and writing.  We are here for you.
Ann
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
pelagia
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« Reply #93 on: November 15, 2008, 10:22:36 PM »
You have an awful lot to deal with right now.  Please do keep posting.  :cuddle;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
rose1999
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« Reply #94 on: November 15, 2008, 10:45:38 PM »
Please do stay and please share whatever you want to.  You know what it's like here, there always be someone around to care and share.  We all love you.  :grouphug;
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aharris2
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« Reply #95 on: November 15, 2008, 10:48:16 PM »
Marley, I am glad that you want to stick around with us.  :cuddle;

This one's for you, your grandkids, your son and your dog :grouphug;

I am sorry this is so hard at a time when you're hurting so much.

Alene
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Life is like a box of chocolates...the more you eat the messier it gets - Epofriend

Epofriend - April 7, 1963 - May 24, 2013
My dear Rolando, I miss you so much!
Rest in peace my dear brother...
lruffner
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« Reply #96 on: November 16, 2008, 05:54:10 AM »
There truly is strength in numbers, Marley   :grouphug;
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Diagnosed w/ primary fsgs- June 2007
Getting ready to begin transplant work-up at IU and Jewish-9/08

"Live for Today"
willieandwinnie
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« Reply #97 on: November 16, 2008, 06:04:13 AM »
:grouphug; Marley, my heart aches for you. Please keep posting and let us know how you are doing.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
lola
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I can fly!!!
« Reply #98 on: November 16, 2008, 06:40:16 AM »
Marley :grouphug; :grouphug; and please stay as you will forever be IHD family.
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monrein
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Might as well smile
« Reply #99 on: November 16, 2008, 08:08:17 AM »
We now care very much about YOU and about how you're managing Marley so I hope that you'll think of this site as a place of some comfort and slight respite from the tough feelings you must now face.   :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
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