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Author Topic: Well I hope to be peeing on the 28th Oct !  (Read 40883 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #175 on: November 24, 2008, 03:35:53 AM »

Wow what gorgeous women!  :bandance;

Good looking Russel too.
 :2thumbsup;
And Meltmyheart - you look marvelous! Way to represent with your t-shirt!  :cheer:
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
RichardMEL
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« Reply #176 on: November 24, 2008, 03:38:58 AM »
Well Karol with the tshirt I must explain a little. The weather in Sydney was... well... not the best and so I was rugged up for most of the day but I *had* to wear IHD to a IHD meet!!! So I got (partially) undressed... I think Russell was a tad nervous when I started taking my clothes off with all those hot women around!! LOL hehehe (just kidding!!) I have to say the jumper(sweater for you northern types!) was back on after the pics though!!! :) And to think we're less than a week away from summer....!!
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
willieandwinnie
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« Reply #177 on: November 24, 2008, 04:56:36 AM »
RichardMEL, what wonderful pictures. Thank you for posting and we are glad you made it home safely.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
monrein
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Might as well smile
« Reply #178 on: November 24, 2008, 05:45:10 AM »
You guys all look fantabulous.  I  bet it was a really great time.   :thx; RichMelty...so now we can all say we've seen you "partially clad".   :rofl;   :thumbup;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
RichardMEL
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« Reply #179 on: November 24, 2008, 05:58:41 AM »
Quote from: monrein on November 24, 2008, 05:45:10 AM
You guys all look fantabulous.  I  bet it was a really great time.   :thx; RichMelty...so now we can all say we've seen you "partially clad".   :rofl;   :thumbup;

This is why Amanda is going on a month long holiday!!! SHe has to recover!!!!!!!

 :shy;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
charee
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« Reply #180 on: November 24, 2008, 10:10:18 PM »
hey everyone still no internet sneaking on Russell's work one so i have to be quick it was son great to meet up with Richard on Sunday hes very sweet and of course Amanda and Cindy  creatine is still going up and down it went back up  to 151 on Monday down to 148 today i have tomorrow off clinic but have to be back Thursday, my tacrolmus(prograf) levels have been abit high so they dropped that down to 4.5mg twice aday I'm also on cellept 500mg twice aday and they have dropped prednisone to 17.5mg once a day so hopefully that will all settle soon . I have the stent out on the 18th Dec . Walking more each day and feeling great except I'm still carrying 5 kilos of fluid as you can see from my fat face in the photos !! Looking forward to Friday Cindy is picking me up to take me to her hairdressers for a colour and cut it will be good to get out for a few hours she has been so good to me i have been very spoiled between her and Amanda and her family. Thanks again for all your good wishes  :flower;

love Charee xxxx
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Home Hemo  18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #181 on: November 24, 2008, 11:05:33 PM »
 :cheer: C :cheer: H :cheer: A :cheer: R :cheer: E :cheer: E !!

It's great to hear from - and I am happy to hear your numbers are good - take care!
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Wattle
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« Reply #182 on: November 25, 2008, 01:40:30 AM »
 :cheer: :cheer: :cheer:  You all look fantastic!!

Amanda.... gorgeous as ever

Cindy...... Love the dark hair

Charee....... Amazing

Rich......... Just missing a little bit of black in the yellow shirt   ;)  (it's a footy thing)

 :flower;
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
jessup
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Gemma - the tucker monster
« Reply #183 on: November 25, 2008, 02:24:22 AM »
 :ausflag;
Like all good aussies - you're good looking
What a significant moment and .....
I'm lost for words but.............
Like all IHD family -  you're motivated, proactive, inspirational, caring, honest, endearing, compassionate, considerate and transparent.  "No holds barred"

I wish Dad and the family could meet you aussie mob and of course the entire IHD family.  Lets hope I win tatts.
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G-Ma
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« Reply #184 on: November 25, 2008, 02:36:58 AM »
Thanks for the pics...looks like you all had a good meet.
Ann
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
RichardMEL
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« Reply #185 on: November 25, 2008, 04:54:37 AM »
Quote from: jessup on November 25, 2008, 02:24:22 AM
:ausflag;
Like all good aussies - you're good looking
What a significant moment and .....
I'm lost for words but.............
Like all IHD family -  you're motivated, proactive, inspirational, caring, honest, endearing, compassionate, considerate and transparent.  "No holds barred"

I wish Dad and the family could meet you aussie mob and of course the entire IHD family.  Lets hope I win tatts.

Maybe my next flight of fancy should be to DRW. All that heat would help with the fluids!!!! :) :) :)
Logged


3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
kellyt
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« Reply #186 on: November 25, 2008, 05:01:33 AM »
An almost close-up photo of RichardMel!!!!       :clap;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Lucinda
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Life is great!
« Reply #187 on: November 25, 2008, 11:34:30 AM »
Quote from: kellyt on November 25, 2008, 05:01:33 AM
An almost close-up photo of RichardMel!!!!       :clap;

Yep....that boy was much happier behind the camera than is front of it!!!  But seeing Amanda was happy to do it, he also had to oblige!!
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kellyt
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« Reply #188 on: November 25, 2008, 11:40:54 AM »
I'll tell ya...that is one good looking bunch of Aussies!!!!    :bow;

Charee, I'm so happy for you!!!
Logged
1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
David13
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A meow massages the heart.
« Reply #189 on: November 26, 2008, 04:38:57 AM »
Wonderful pictures!  Thanks for sharing!

Congratulations Charee!

 :2thumbsup;
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“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
pelagia
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« Reply #190 on: December 05, 2008, 09:06:42 PM »
so glad I stayed up late.  those pictures are worth it!  glad to hear all is well Charee.  Keep smiling.  :cuddle;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
Wattle
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« Reply #191 on: January 12, 2009, 11:14:09 PM »
 :waving; :waving;  Hey Charee

Are you home??? If so ...... WOOOOHOOOOOO!!!

We need details and Photos! I bet the boys are glad to have Mum home.   :cheer: :flower; :flower; :flower;
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
charee
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« Reply #192 on: March 25, 2009, 05:36:06 PM »
Update time its been 5 months since my transplant everything is still settling in still having weekly blood tests as my creatine and Tac levels are still up and down but getting better . I had an ultrasound of the kidney in DEC and it showed a fast blood flow from my artery to the kidney artery  so i had to have another one in Feb and it showed that it had gotton worse which could mean the kidney artery was narrowing , they have finally decided to do something about it and i go back to Sydney on Sunday so i can be admitted to hospital on Monday morning , my paper work arrived this morning and this is what is says I'm booked in for Angiography- Renal + DYNA CT _/ Angioplasty. From what i have been told they will do a ct anniogram to see what the problem is and then they will decide how to fix it depending on what they find, i know i will have to have the contrast dye which i really don't want but there is no other way to see whats going on . On the Sunday i have pick up some medication that i have to take in orange juice (its supposed to taste fowl) that is meant to protect the kidney from the contrast they will also put me on a IV drip to help flush the stuff out quicker . SO i will be off the internet for a few days they don't know how long i will have to stay in hospital , hoping to be back home Wednesday, i'm feeling very nervous but i want this fixed as decreased blood flow to the kidney isn't good for it either .I will keep you posted when i get home xx
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Home Hemo  18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
pelagia
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« Reply #193 on: March 25, 2009, 05:41:07 PM »
I hope it all goes smoothly for you Charee.  Hopefully it will take just a little tweaking to make things right  :cuddle;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
G-Ma
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« Reply #194 on: March 25, 2009, 05:41:57 PM »
 :grouphug;
Logged
Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
Chris
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WWW
« Reply #195 on: March 25, 2009, 05:50:06 PM »
I hope all works out for you Charee.
Hope the oj helps with the bad medicine taste too, don't want you to feel or have to......  :puke;
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
paris
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« Reply #196 on: March 25, 2009, 06:01:50 PM »
Hi Charee, I am sorry you are having to go through this.  I'll keep saying prayers for you.   I want you to know that at our Kidney Walk on Saturday, our team will be wearing purple ribbons with the names of members we have lost and green ribbons with our members with transplants.  You name is on one and will be worn proudly that day.  Sending you love and hugs    :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
kellyt
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« Reply #197 on: March 25, 2009, 07:25:03 PM »
I hope they can fix whatever is going on with your kidney.  Hang in there!   :cuddle;
Logged
1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
okarol
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Posts: 100933


Photo is Jenna - after Disneyland - 1988

WWW
« Reply #198 on: March 25, 2009, 08:10:53 PM »
Here's a little info comparing the dyes http://www.rmgimaging.com/contrast.html
Charee, it sounds like a good idea - to see what's up and take care of that artery. I hope all goes well. Please keep in touch!
 :cuddle;  :cuddle;  :cuddle;
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Wattle
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Posts: 2306
« Reply #199 on: March 26, 2009, 12:54:49 AM »

oh Charee thats not fun. But I am glad they are on top of it and moving on getting it fixed.

Text me and I will post the updates.   :cuddle;
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
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