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Chris
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« Reply #100 on: November 02, 2008, 08:48:47 PM » |
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Hopefully it's just the meds that are causing the creat levels going up. Comon kidney, work!   |
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Diabetes - age 7
Neuropathy in legs age 10
Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
-glaucoma and surgery for that
-cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
- vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection
Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000
Kidney and Pancreas Transplant - December 3, 2000
Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures - Priceless
No two day's are the same, are they?
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Sunny
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« Reply #101 on: November 02, 2008, 11:00:37 PM » |
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Praying that all goes well for you. Hang in there.
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Sunny, 49 year old female
pre-dialysis with GoodPastures
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pelagia
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« Reply #102 on: November 03, 2008, 11:17:14 AM » |
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Here's hoping that the kidney gets its act together and recognizes what a good home it has  |
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
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okarol
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« Reply #103 on: November 03, 2008, 02:08:13 PM » |
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I hope you're doing okay Charee!  |
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Sluff
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« Reply #104 on: November 03, 2008, 02:12:14 PM » |
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We won't even give rejection a thought. Only good thoughts here! |
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RichardMEL
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« Reply #105 on: November 04, 2008, 04:09:48 AM » |
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I REJECT the mere notion of rejection for Charee!! Sorry lil kidney.. not an option mate!!!! You've had your smoko now there's work to be done.. so get back to it. The Cup's been run and won (and I got nada, as usual!) so time to start processing that pee again!!!
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 3/1993: Diagnosed with Kidney Failure (FSGS) 25/7/2006: Started hemo 3x/week 5 hour sessions  27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!!  BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE! |
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monrein
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« Reply #107 on: November 04, 2008, 08:49:18 AM » |
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Thinking of you today Charee and hope things are going in the right direction.  |
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
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thegrammalady
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« Reply #108 on: November 04, 2008, 09:33:00 AM » |
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any news today? hope all is continuing to go well |
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s
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If you can smile when things go wrong, you have someone in mind to blame.
Lead me not into temptation, I can find it myself.
Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.
Some mistakes are too much fun to only make once.
Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
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tamara
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« Reply #109 on: November 04, 2008, 04:52:30 PM » |
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ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
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KT0930
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« Reply #110 on: November 04, 2008, 05:29:21 PM » |
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So sorry to hear the kidney is not working as we would like...hopefully it's just taking a little rest. Thinking of you, Charee!
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"Dialysis ain't for sissies" ~My wonderful husband
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I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
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paris
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« Reply #111 on: November 04, 2008, 06:59:42 PM » |
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Charee, We are all praying that kidney just starts working like crazy. We are all surrounding you with love and good wishes |
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It's not what you gather, but what you scatter that tells what kind of life you have lived. |
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Wattle
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« Reply #112 on: November 04, 2008, 10:33:33 PM » |
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I have spoken to Charee today. It has been a Roller Coaster ride but is now heading in the right direction.  The biopsy last week showed NO signs of rejection. Her creatinine has been all over the place. It is taking a while to drop to a level they are happy with. Today it was 211 down from 213 (Australian numbers) so they did another biopsy! grrr They think it is just being slow. It is producing a good amount of urine, although its not concentrating it as yet. So she is having alot of bladder pressure. She is emotionally exhausted, and is now having to share a room with a loony.  A new transplant patient came in so she was moved out of her private room! She is hoping to be able to leave hospital soon. Anne is doing great and was discharged on Saturday. I have an address if anyone would like to send a card. Please PM me and I will forward it to you. She could do with a little cheering up. |
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
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Wattle
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« Reply #113 on: November 04, 2008, 11:56:50 PM » |
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UPDATE........ I have just got a message from Charee. "Well it looks like the start of rejection. Starting IV prenisone hopefully that will halt it in its tracks... fingers crossed!" As we say in Oz... Bugger. (meaning bummer) Please keep Charee in your thoughts. xox |
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
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Amanda From OZ
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« Reply #114 on: November 05, 2008, 01:57:36 AM » |
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Thanks Wattle I just spoke to charee, she is feeling a little better just still sore aroudn the site. They are starting her on the IV tonight. I will be seeing her tomorrow night. Amanda xxoo |
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RichardMEL
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« Reply #115 on: November 05, 2008, 04:18:14 AM » |
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Charee is so glad to have so many well wishing visitors with love and hopes for her. Lucinda also let me know she is seeing her and hopefully will take her laptop in so C can login and talk to us all...
now about that lil R word... at the transplant seminar I went to a few months back they talked about post transplant rejections like this and it shouldn't be panic stations just yet... they modify the meds and just have to remind that body of charee's who is boss (her!!!) so hopefully can get things under control quick smart.
We all certainly hope so!!!!!
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3/1993: Diagnosed with Kidney Failure (FSGS) 25/7/2006: Started hemo 3x/week 5 hour sessions 27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
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willieandwinnie
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« Reply #116 on: November 05, 2008, 04:38:19 AM » |
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Charee. Thinking and praying real hard for you.
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"I know there's nothing to it, but I want to know what it is there's nothing to"
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Lucinda
Sr. Member
 Offline
Gender: 
Posts: 664
Life is great!
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« Reply #118 on: November 05, 2008, 10:00:46 AM » |
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I am going over to see Cheree today and I will take my laptop with me so she can get onto IHD and say Hi if she feels up to it. Unfortunately I can't leave my laptop with her as I need it for work but I will drop it off again on Friday night and leave it with her for the weekend so she can have access to the site. Sounds like she could do with all the support she can get at the moment.
I'm going to take over a portable DVD player, earphones and some DVD's so she can block out the "loony" that Wattle told us about. Thanks Wattle for the PM to give me her details at the hospital. I'm off to my neph this morning but I will go and see her straight afterwards. Cindy. xx
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okarol
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« Reply #119 on: November 05, 2008, 01:14:26 PM » |
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Thank you everyone, for the updates. I am sending you good thoughts and radar LOVE Charee! Thank you Cindy, for helping her with the DVD'd and computer.  |
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tamara
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« Reply #120 on: November 05, 2008, 02:48:22 PM » |
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Thank you everyone, for the updates. I am sending you good thoughts and radar LOVE Charee!
Thank you Cindy, for helping her with the DVD'd and computer.
Charee, you can even do what I did, for the times you don't have the laptop, just go annoy the night nurses so much that they will let you get on the computer at the nurses station ! |
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ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
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RichardMEL
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« Reply #121 on: November 05, 2008, 04:09:04 PM » |
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gee now I want a transplant so Cindy will come bring me goodies to help me get through it!!! LOL I hear she has some spare shoes...... (to bribe the nurses with, of course!!)  |
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3/1993: Diagnosed with Kidney Failure (FSGS) 25/7/2006: Started hemo 3x/week 5 hour sessions 27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
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RichardMEL
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« Reply #122 on: November 05, 2008, 04:30:09 PM » |
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UPDATE UPDATE UPDATE UPDATE Live from Charee & Lucinda (I talked to both though I am worried about Cindy's creat levels since she called me gorgeous!  ) Charee suffered a mild rejection but they've pumped her full of prednisone and her creat has fallen to 198 (oz numbers) and they are.. drumroll SENDING HER HOME later today!!! WOOHOOO. They tried to get online with Cindy's laptop but no go alas but they were most concerned that everyone hanging out to know what was going on should know ASAP so asked me to post.. so here I am. Russell is trying to get the 'net organised at their unit so hopefully they will be online themselves in a day or two (fingers crossed!) to tell you more! So much happiness, relief and excitement!! Oh and Charee was put on fluid restrictions... not for anything bad with the kidney but because she was drinking too much!! LOL... She was in bright spirits and feeling relatively good!!! So that's awesome news!!!!!  |
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3/1993: Diagnosed with Kidney Failure (FSGS) 25/7/2006: Started hemo 3x/week 5 hour sessions 27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
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monrein
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« Reply #123 on: November 05, 2008, 04:34:42 PM » |
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Yay, thanks so much for the great update Richard. What a thrill to hear such good news. See ya gorgeous. |
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
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willieandwinnie
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« Reply #124 on: November 05, 2008, 04:44:46 PM » |
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Richard for letting us know. I hope we hear from Charee directly pretty soon.
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"I know there's nothing to it, but I want to know what it is there's nothing to"
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I Hate Dialysis Message Board
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