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Chris
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« Reply #25 on: October 11, 2008, 07:50:03 PM »
Quote from: flip on October 11, 2008, 07:24:28 PM
yep, made by the same people who make Ensure. It's a high protein drink designed for people on dialysis. I get it through my dietition for half price. It's a little bit thick so the kahlua improves the consistency. I wouldn't recommend adding the kahlua for diabetics due to the caffeine and sugar content.

But it makes Nepro taste sooo much better and easier to drink! Haven't tried it with Vodka though :rofl;
I get easily burnt out drinking Nepro or any of the other Ensure type drinks and a kick would be a good thing.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Chris
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« Reply #26 on: October 11, 2008, 07:51:17 PM »
And what is a Long Island Ice Tea made with?
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
G-Ma
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« Reply #27 on: October 11, 2008, 07:55:58 PM »
 :puke;   Is Nepro anything I want to try??? what is it really like?   Can you get samples through the dietician????  I see mine on Tues so think I'll check cuz my protein intake is worse than bad.
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
Bill Peckham
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« Reply #28 on: October 11, 2008, 08:32:06 PM »
Quote from: Chris on October 11, 2008, 07:51:17 PM
And what is a Long Island Ice Tea made with?

mmm on a hot summer day

Recipe printed from DRINKSMIXER.COM

Long Island Iced Tea

1 part vodka
1 part 1800® Tequila
1 part rum
1 part gin
1 part triple sec
1 1/2 parts sweet and sour mix
1 splash Coca-Cola®

Mix ingredients together over ice in a glass. Pour into a shaker and give one brisk shake. Pour back into the glass and make sure there is a touch of fizz at the top. Garnish with lemon.
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http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
Incenter Hemodialysis: 1990 - 2001
Home Hemodialysis: 2001 - Present
NxStage System One Cycler 2007 - Present
        * 4 to 6 days a week 30 Liters (using PureFlow) @ ~250 Qb ~ 8 hour per treatment FF~28
flip
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« Reply #29 on: October 11, 2008, 08:37:26 PM »
Most dietitians have a sample or two around. Mine gives me order forms for half price ( about $45 dollars for a case of 24). If memory serves me correct, a can has about 16 grams of protein. I prefer the vanilla but it also comes in butter pecan and berry flavors. It's like a thick shake.
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That which does not kill me only makes me stronger - Neitzsche
kidney4traci
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« Reply #30 on: October 11, 2008, 09:15:16 PM »
Boxman is on duty!!??  Well... let's get this party started!!  Twirl... where's our party girl???
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Married - three children.
Alports female, diagnosed ESRD 10/04
11/04  Hemo in clinic
6/07 hemo at HOME! 
2/3/09 - Transplant from an angel of a friend!!!
monrein
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« Reply #31 on: October 12, 2008, 05:10:43 AM »
I'd be buzzed for a week on a Long Island Ice Tea.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
boxman55
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« Reply #32 on: October 12, 2008, 08:12:12 AM »
Quote from: monrein on October 12, 2008, 05:10:43 AM
I'd be buzzed for a week on a Long Island Ice Tea.
And that would be a bad thing??? Boxman
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
monrein
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Might as well smile
« Reply #33 on: October 12, 2008, 08:13:33 AM »
 :rofl;  Well maybe not.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Sluff
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« Reply #34 on: October 12, 2008, 09:15:45 PM »
Quote from: Bill Peckham on October 11, 2008, 07:47:03 PM

Hope the biopsy turns out alright boxman


Actually Flip had the biopsy. Have another drink Bill. :rofl; :rofl;

Hope it went well Flip. I went in for a kidney biopsy and came out with a staph infection in my leg and FSGS.

Thanks Box for doing such a fine job.  :bow;
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Run8
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« Reply #35 on: October 12, 2008, 09:53:40 PM »
This might be a very dumb question but i need to ask. I haven't had a drink since starting dialysis 1 yr. ago. If i got drunk, would i stay drunk until my next dialysis.
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flip
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« Reply #36 on: October 13, 2008, 07:53:46 AM »
only if you keep on drinking or have a really bad liver.
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That which does not kill me only makes me stronger - Neitzsche
Run8
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« Reply #37 on: October 13, 2008, 08:09:57 AM »
So, did my neph. tell me this because he is against drinking? Or because it is true? Please explain, because i would like to have a few drinks here and there, but I'm afraid to do it because my wife is afraid to needle me.
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flip
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« Reply #38 on: October 13, 2008, 08:35:13 AM »
I still drink a little and my neph has no objections. I don't have any other medical problems like diabetis that would create a problem. Alcohol is metabolized by the liver and not the kidneys.
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That which does not kill me only makes me stronger - Neitzsche
Run8
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« Reply #39 on: October 13, 2008, 11:38:01 AM »
thank you flip fpr shedding some light for me.
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G-Ma
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« Reply #40 on: October 13, 2008, 05:56:12 PM »
shoot...I've been promising myself one drink by this year's end, but only if I can keep a buzz from that drink until the next dialysis........ :beer1;
Logged
Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
flip
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« Reply #41 on: October 13, 2008, 08:32:25 PM »
just drink your Nepro, Ann.
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That which does not kill me only makes me stronger - Neitzsche
okarol
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« Reply #42 on: October 13, 2008, 08:34:05 PM »


Hey Boxman, what's the topic here?  8)
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Sluff
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« Reply #43 on: October 13, 2008, 08:35:36 PM »
Quote from: okarol on October 13, 2008, 08:34:05 PM


Hey Boxman, what's the topic here?  8)


Drinking Right?  ::)
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okarol
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« Reply #44 on: October 13, 2008, 08:36:09 PM »
 :beer1; apparently  :urcrazy;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Sluff
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« Reply #45 on: October 13, 2008, 08:37:58 PM »
When the Admins away the Mods will play. >:D
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Run8
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« Reply #46 on: October 13, 2008, 09:52:46 PM »
Yeah,we are thinking of games in involve our dialysate.
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boxman55
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« Reply #47 on: October 14, 2008, 06:13:41 PM »
Quote from: Sluff on October 13, 2008, 08:37:58 PM
When the Admins away the Mods will play. >:D
Oh no you guys are back hide the Kahlua
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
G-Ma
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« Reply #48 on: October 14, 2008, 06:19:09 PM »
it was really all about nepro....  :oops;   right guys???   :bandance;
Logged
Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
flip
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« Reply #49 on: October 14, 2008, 06:54:31 PM »
In case anyone is interested......one of the primary ingredients in Nepro is taurine, just like my Red Bull. I'm working on a new drink with Red Bull and Cuervo Black...calling it Red & Black. What do you think?
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That which does not kill me only makes me stronger - Neitzsche
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