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Author Topic: Otto got the call  (Read 59234 times)
petey
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« Reply #50 on: October 12, 2008, 07:14:26 AM »
oh, lola, I'm sorry Otto is having a tough time (and that's putting it mildly, isn't it?).  Hang in there (and tell Otto to, too).  Just keep thinking, "When we get through this, he'll have a functioning kidney.  When we get through this, he'll have a functioning kidney.  When we get through this, dialysis is in our past.  When we get through this...."  Maybe those thoughts will carry you a little of the way.

I'm sending you love, hugs, congratulations (a kidney  :yahoo;), and prayers that things will start to turn around soon.  In spite of everything that's going on now, remember that Otto is lucky.  He has a new kidney and a lola -- how much better can it get for one man?
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breezysummerday
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« Reply #51 on: October 12, 2008, 08:59:27 AM »
:grouphug;

I truly hope Otto has a smoother transition

And God Bless the Donor Family
« Last Edit: October 12, 2008, 09:04:00 AM by breezysummerday » Logged
caregiver to Ray
renal failure 6/08
listed 7/09
~thank you epoman~
pelagia
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« Reply #52 on: October 12, 2008, 09:01:29 AM »
sending some  :cuddle; your way

and  :bestwishes;  for Otto's speedy recovery
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
Sluff
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« Reply #53 on: October 12, 2008, 09:10:32 PM »
I hope Otto feels better soon. Last I talked with Lola, Otto developed double pneumonia. I hope these antibiotics clear this up soon. Hope the blood pressure gets better too. Your family is in my thoughts and prayers. :grouphug;
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Sluff
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« Reply #54 on: October 13, 2008, 06:14:35 AM »
The latest.



Hey everyone thought I'd update while Otto is resting. Things have been a little tough as this time around things have not gone the way we planned, we know we are on Gods' plan but wish there were not so many "bumps" in the road. I spent the night with Otto as he didn't want to be left alone, he is scared. They have had to give him more blood and then he'll have labs once that is done. Otto's body is under a lot of stress because of the infection in his lungs and because of that his new kidney has decided to go to sleep, this is something we were praying would not happen but as I said we are on Gods plan.

I want to say Thank you so much for all the prayers for Otto, myself our kids and our donor's family, the cards and food are also greatly appreciated.

Everyone keeps asking how long this will take to get better and when Otto will be out of the Hospital but we at the moment go lab to lab.

Also the kids at this time don't really know everything that's going on as this is already is a scary time for them, but they are being well taking care of by family. I stopped at the house last night to give them all big hugs.

Keep on smilin.......Team Machado
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cherpep
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« Reply #55 on: October 13, 2008, 07:15:16 AM »
Lots of prayers are going out to Otto, your family, and your little Hero's family.  I am praying that the healing process speeds up and that the little kidney kicks in!  I am praying for strength for you, Lola - you will keep finding the strength. 
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xtrememoosetrax
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« Reply #56 on: October 13, 2008, 07:26:18 AM »
Thinking of you, Lola and Otto, and sending hugs and prayers to all.  :grouphug; :grouphug; :grouphug;
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Living donor to friend via 3-way paired exchange on July 30, 2008.

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willieandwinnie
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« Reply #57 on: October 13, 2008, 07:55:18 AM »
Lola  :grouphug; I keep saying prayers.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
monrein
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« Reply #58 on: October 13, 2008, 12:48:44 PM »
All my thoughts and prayers are with your Otto and your family Lola.   :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
kimcanada
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« Reply #59 on: October 13, 2008, 01:26:31 PM »
Lola... hugs and prayers for a speddy recovery  :grouphug; :cuddle;
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kitkatz
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« Reply #60 on: October 13, 2008, 02:53:22 PM »
Lots of love to you and Otto. Prayers for a good recovery.  :grouphug; :grouphug;
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
boxman55
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« Reply #61 on: October 13, 2008, 04:08:55 PM »
I am praying hard for Otto and you ...Boxman
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
kellyt
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« Reply #62 on: October 13, 2008, 04:13:40 PM »
 :grouphug;
« Last Edit: October 26, 2008, 08:04:49 PM by kellyt » Logged
1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Sunny
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Sunny
« Reply #63 on: October 13, 2008, 04:15:29 PM »
Good luck Otto. Hope all goes well with a speedy recovery.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
lola
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« Reply #64 on: October 13, 2008, 05:35:17 PM »
Otto has only made steps backwards so after having to  :Kit n Stik; the Docs Otto had a repeat x-ray, is suppose to be getting breathing treatments, repeat ultrasound and now is down in D :'( I made it very clear that if ANYTHING happens to Otto or his new kidney because of there wait and see method there would be BIG problems. Sometimes you have to remind Dr's that they are NOT God they are human and make mistakes. I'm home to try to get some sleep as I'm running on empty and I need to be the best :cheer: for Otto to try to keep his spirits up.
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www.caringbridge.org/visit/ottomachado
okarol
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« Reply #65 on: October 13, 2008, 05:39:18 PM »
 :boxing; Keep fighting and continue the good  :cheer: support -  I hope things level out and improve - hang in there lola!  :cuddle;  :cuddle;  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Sluff
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« Reply #66 on: October 13, 2008, 05:43:29 PM »
Things will get better. We are all rootin for you Otto.  8)
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Lori1851
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« Reply #67 on: October 14, 2008, 02:54:45 AM »
Im praying for you Otto!!!!!!!!!!!!!!!!!!!! I pray that you are doing better and that new kidney has woke up and has you peeing like crazy!!!!

God Bless and keep the faith!

Lori/Indiana
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pelagia
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« Reply #68 on: October 14, 2008, 05:56:54 AM »
Hope you had a good night's sleep.  Make those docs earn their salaries today!   :cuddle;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
Deanne
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« Reply #69 on: October 14, 2008, 08:15:44 AM »
I'm sorry Otto is having such a rough time of it! I hope today brings a huge improvement. Many prayers for both of you!
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
pelagia
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« Reply #70 on: October 14, 2008, 08:37:33 AM »
Here's the latest posted by Lola this am on CaringBridge:

"Keep your fingers crossed Otto's showing signs of improvement. He's still needing blood but at least it looks like the kidney is waking up, one person said it's because of D but I told him his creatine hasn't been under 5 in a year. All the prayers are working keep it up."
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
okarol
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« Reply #71 on: October 14, 2008, 08:51:24 AM »

 :2thumbsup; C'mon little kidney - keep going!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
willieandwinnie
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« Reply #72 on: October 14, 2008, 08:57:26 AM »
 :grouphug; Otto. We are all praying for you.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
monrein
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« Reply #73 on: October 14, 2008, 09:00:15 AM »
Quote from: willieandwinnie on October 14, 2008, 08:57:26 AM
:grouphug; Otto. We are all praying for you.  :cuddle;

Absolutely!
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
G-Ma
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« Reply #74 on: October 14, 2008, 06:20:11 PM »
 :grouphug;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
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