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Author Topic: Otto got the call  (Read 58073 times)
G-Ma
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« Reply #225 on: January 15, 2009, 04:04:43 PM »
Take a big stick and the gloves.
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
willieandwinnie
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« Reply #226 on: January 15, 2009, 04:14:41 PM »
If you need any help, Call me.  :Kit n Stik;  :boxing;  :waving;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
kitkatz
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« Reply #227 on: January 15, 2009, 08:28:20 PM »
Let the ass kicking of surgeons begin with you!  :Kit n Stik; :sir ken; :Kit n Stik;
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Chris
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« Reply #228 on: January 16, 2009, 05:15:32 AM »
Lola,
I hope you are able to transfer to a better transplant facility with better care and doctors. I hope something good happens with a lawyer.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
pelagia
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« Reply #229 on: January 16, 2009, 10:45:33 AM »
I think you will get better care when they catch on that lawyers are in the wings.  :Kit n Stik;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
pelagia
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« Reply #230 on: January 16, 2009, 11:12:46 AM »
Lola, I just posted a link to a book chapter on another thread.  You might find it useful.  It discusses peri-transplant fluid buildup and how it is diagnosed and treated.  It's towards the end of the chapter.  :cuddle;

http://ihatedialysis.com/forum/index.php?topic=11985.new#new
 
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
lola
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« Reply #231 on: January 22, 2009, 02:59:17 PM »
Well I'm not in jail >:D Otto is going to need surgery to make a "window" in the pocket the kidney was in and they are hopeing then the fluid can drain on it's own but they can't promise us anything :banghead;
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willieandwinnie
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« Reply #232 on: January 22, 2009, 03:02:54 PM »
lola, I am so sorry.  :grouphug; Will they let you in the OR so you can supervise. We will all keep Otto in our thoughts and prayers. When are they planning on doing this? Keep us posted.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
G-Ma
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« Reply #233 on: January 22, 2009, 03:12:22 PM »
 :grouphug;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
kitkatz
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« Reply #234 on: January 22, 2009, 09:48:19 PM »
God bless and help you both!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
jessup
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« Reply #235 on: January 23, 2009, 04:22:50 PM »
 :grouphug;
Lots of love and prayers for you all
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paddbear0000
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« Reply #236 on: January 23, 2009, 08:11:48 PM »
Holy crap!!!! How in the hell did I miss this thread??!! I know I was on a long break from IHD through most of it, but geez! I'm an idiot!  Anyway, Lola, I am so sorry to hear about poor Otto's ordeal. I don't think I could hold it together like you are. Please give him a hug for me. I am keeping you guys in my thoughts and prayers.   :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug;
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
lola
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« Reply #237 on: February 02, 2009, 05:58:32 PM »
Otto went today to meet with a second surgeon and he's going in to have a "window" made in the pocket that has not closed and keeps filling with fluid. Otto got to see the CT and this thing is HUGE it takes up the entire left side of his stomach and has pushed everything to the right side. No wonder he's miserable, I csn't get on IHD from the Hospital :stressed; xoxoxox  :grouphug;
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #238 on: February 02, 2009, 06:21:58 PM »

Poor guy, that must be so uncomfortable (I recall being pregnant, how squished everything felt!)
When is the surgery?
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
lola
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« Reply #239 on: February 02, 2009, 06:42:00 PM »
it's at noon, he even has to drink prune juice tonight because they can't order anything due to his labs :puke; he really is like a pregnant women
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G-Ma
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« Reply #240 on: February 03, 2009, 01:41:03 AM »
We will be praying for both of you.
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
pelagia
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« Reply #241 on: February 03, 2009, 02:59:01 AM »
I am going to think very optimistic thoughts today that they will go in and fix this and get it right.   :grouphug;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
kitkatz
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« Reply #242 on: February 03, 2009, 03:04:40 PM »
Sending prayers for a quick recovery this time!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
pelagia
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« Reply #243 on: February 03, 2009, 05:47:22 PM »
I hope the surgery went well today.    :bestwishes;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
willieandwinnie
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« Reply #244 on: February 03, 2009, 06:04:29 PM »
lola  :grouphug; and a smaller, gentler  :cuddle; for Otto.
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"I know there's nothing to it, but I want to know what it is there's nothing to"
paris
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« Reply #245 on: February 03, 2009, 06:12:49 PM »
I hope Otto did well today.   I keep praying for your whole family.   :grouphug;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
lola
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« Reply #246 on: February 03, 2009, 07:06:45 PM »
 :bandance; :bandance; Things went better then planned, Otto even got to come home a little bit ago. They put a window in the pocket the size of a baseball, he will have the drain in for a few weeks. The docs wanted to keep him overnight because his labs were bad and then do Dialysis tonight but Otto begged them to let him do it at home so they said yes :bandance; :bandance; Thanks once again for the support :grouphug; :grouphug;
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paddbear0000
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Dogs & IHDer's are always glad to see you!

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« Reply #247 on: February 03, 2009, 08:02:30 PM »
Yay!!! I love great news!!   :yahoo; :yahoo; :yahoo; Hugs for Otto!   :grouphug; :grouphug; :grouphug;
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
charee
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« Reply #248 on: February 03, 2009, 08:43:08 PM »
Great news hope things keep improving :grouphug;
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Home Hemo  18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
pelagia
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« Reply #249 on: February 04, 2009, 03:03:21 AM »
I'm sure he's getting tired of this, but please send this to Otto from me -->  :cuddle;  and here's one for you, too  :cuddle;  I know you are happy to get some good news for a change.  I hope the healing goes smoothly.  I also read on the CB site that the kids are all sick.  Did you have a flu shot!?!?  I hope so...
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
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