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Author Topic: Otto got the call  (Read 58081 times)
G-Ma
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« Reply #200 on: January 02, 2009, 06:25:30 PM »
Good Lola, you two make your own decisions...do not let the medical people tell you everything to do.
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
lola
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« Reply #201 on: January 02, 2009, 06:55:53 PM »
We just got home and they pulled 10lbs of fluid he no longer looks pregnant. When they brought him back to the room he said he could not get over how much better he felt, all the pressure and pain he's had for almost 3 months was gone and he was HUNGRY!!!! I took him to the olive garden and he ate like a starving person, how sad that he went through this when a simple CT could have solved this :Kit n Stik; :Kit n Stik; I told them to take all the bottles and put them on Otto's surgeons desk with a note from me as I wanted him to see Otto's "scar tissue" :sarcasm;...We will find out Monday what the fluis is as they have some concerns that it may be urine, please pray this is not the case as that means Otto will have to go back in to have another "mess-up" corrected.....
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G-Ma
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« Reply #202 on: January 02, 2009, 08:11:06 PM »
 :grouphug;   You use kit's big stick.
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
pelagia
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« Reply #203 on: January 02, 2009, 08:44:59 PM »
 :banghead; what a bunch those doctors seem to be.  I really don't get how they can have screwed up so much. 

Hang in there.  Hopefully it is not urine because you and Otto are at the front of the line for a break.

 :cuddle;  :cuddle;  :cuddle;  :cuddle;  :cuddle;  :cuddle;  :cuddle;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
lola
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« Reply #204 on: January 03, 2009, 07:39:35 AM »
 :bandance; :bandance; :bandance; No more pressure, No more back pain and best of all Otto slept all night in bed the first time since Oct 8th :bandance; :bandance;
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thegrammalady
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« Reply #205 on: January 03, 2009, 07:50:49 AM »
:yahoo; so glad otto is feeling better.

boooooo to the doctors who don't think they should listen to patients and their families concerns. i'm sending my 800 pound blue gorilla to bring you kit's big stick!
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willieandwinnie
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« Reply #206 on: January 03, 2009, 08:52:05 AM »
:cuddle; :cuddle; :cuddle; lola. I was so happy to read that Otto slept all night, that has to help his mind set. As for the pieces of shit, that call themselves doctors, fire all of them. Personally, I am sick and tried of doctors that make mistakes and then get everyone in the medical profession to cover up for them.  :Kit n Stik; :Kit n Stik; I have the sneaky suspicion that they know a lawsuit is coming. Please know that thoughts and prayers are always with you and yours.  :waving;
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okarol
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« Reply #207 on: January 03, 2009, 10:20:31 AM »

 :yahoo; Nothing makes me happier than to hear our dear sweet Otto is a bit more comfortable!
Lola, you have great instincts and thank God you're willing to fight for your man!  :boxing;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
paris
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« Reply #208 on: January 03, 2009, 12:09:08 PM »
Good for Otto!  There is nothing like sleeping in your own bed (and not in a recliner).  You have been such a hero for Otto.  Love to both of you  :cuddle;
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monrein
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« Reply #209 on: January 03, 2009, 02:35:25 PM »
Lola, I'm so glad that poor Otto has had some relief.  Sleeping all night in bed must have felt so fantastic.   :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
lola
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I can fly!!!
« Reply #210 on: January 03, 2009, 02:47:31 PM »
We have heard threw the "grapevine" the Dr's know they F-uped and that is why we have yet to see the bill, there waiting for a lawyer to call? The thing that sucks is it's not just 1 surgeon who was neglectful it was MANY, I'm so happy Otto is finally feeling better but sooooo angry at the same time. I have a busy day on Monday with trying to find out how we switch Transplant Centers but also finding a lawyer who will go after all these people and will do the best for Otto. Otto needs to be a voice so these Dr's learn they need to listen and never let something like this happen again. :Kit n Stik; :Kit n Stik; :Kit n Stik;
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kitkatz
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« Reply #211 on: January 03, 2009, 09:01:40 PM »
LOLA- taking names and kicking ass and chewing bubblegum, however she forgot the bubblegum!  You go girl!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
pelagia
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« Reply #212 on: January 03, 2009, 10:04:14 PM »
give me an L  :cheer:           L
give me an O  :cheer:          O
give me another L  :cheer:    L
give me an A  :cheer:          A

What do you say?  :cheer:   LOLA!
Say it louder!  :cheer:   LOLA!
Louder still!  :cheer: LOLA!

LOLA, LOLA, she's the one,  :cheer:
She showed us how to get it done! :cheer:

P.S. You are an amazing person!

I am soooo happy to hear that Otto is feeling better. 
 :grouphug;
« Last Edit: January 03, 2009, 10:06:23 PM by pelagia » Logged
As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
kimcanada
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« Reply #213 on: January 04, 2009, 05:38:31 AM »
YEA...........




WHAT PELAGIA said!!! :thumbup;
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okarol
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« Reply #214 on: January 07, 2009, 06:10:09 PM »

 ??? I was just catching up on the caringbridge site and I see that Dani broke her leg?? Oh my lola, you really have had a great deal of challenges.  :banghead; I hope she is doing ok - poor baby - please give her a big hug from me. How long will she be in a cast? How are you coping? Take care!  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
lola
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« Reply #215 on: January 14, 2009, 11:24:21 AM »
 :stressed; :stressed; :stressed; :boxing; Otto's Dr just called and the fluid is back, he has to go in and have it drained AGAIN and also see the surgeon as he feels when they went back in and removed the kidney they did something wrong and he needs surgery to fix it. I swear I'm ready to go postal on this place, hasn't Otto been thru enough when will this end :stressed; :stressed;
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lola
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« Reply #216 on: January 14, 2009, 11:26:33 AM »
And yes Dani broke her leg!!!! she will be in a full leg cast for 6-8 weeks and as long as it's healing then she'll be in a cast from the knee down for another 6-8 weeks. OMG someone should start a new soap called  'the days of Team Machado"  :sarcasm;
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kimcanada
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« Reply #217 on: January 14, 2009, 12:12:53 PM »
Oh Lola... I am so sorry to hear this...

Its hard to believe how much a person has to go through with this disease  :grouphug;
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willieandwinnie
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« Reply #218 on: January 14, 2009, 12:37:25 PM »
 :grouphug; Lola, my heart is breaking for you and Otto. Please keep us posted on how things are going. I'd probably be killing me a doctor or two about now.  :cuddle;

I hope Dani leg heals right, that sounds painful to me.  :grouphug;
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Romona
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« Reply #219 on: January 14, 2009, 12:45:44 PM »
 :grouphug;
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G-Ma
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« Reply #220 on: January 14, 2009, 01:24:29 PM »
 :grouphug;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
pelagia
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« Reply #221 on: January 14, 2009, 01:32:08 PM »
 :grouphug;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
monrein
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« Reply #222 on: January 14, 2009, 03:21:18 PM »
Aw Lola, it's unbelievably difficult all you guys are going through.   :grouphug;
Logged
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Normie
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Ellie
« Reply #223 on: January 14, 2009, 06:02:23 PM »
Just read your story.  It doesn't surprise me any.  If a doctor can screw it up he will.  And yes they protect and lie for each other.  Just read my story. 

Hope Otto gets a new hospital and you don't let the old ones near him.  Hope you find someone to figure out exactly what is wrong and then will fix it correctly once and for all.

You are certainly a strong woman.  You have all been through enough.  Praying things will get better soon.

Sorry to hear about Dani.  Hope you didn't take her to that hospital.  Hope she is better soon too.

You certainly have had your share.  May God give you less to bare in the future.

Normie
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Normie

Kidney damage 4/22/07

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lola
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« Reply #224 on: January 15, 2009, 03:56:18 PM »
they drained 2.7 liters today, 13 days ago 4.7 and they say nothing is wrong :banghead; we meet with the surgeon next Thursday but Otto says he's scared to have me there >:D let me tell you my gloves are on baby :boxing;
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