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Author Topic: Otto got the call  (Read 58089 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #125 on: October 18, 2008, 01:26:42 PM »
Today's caringbridge post:

SATURDAY, OCTOBER 18, 2008 12:48 PM, CDT

I just sat and the Dr and I got to see Otto's biopsie results together, is all I can say is I was right they were wrong I want MD behind my name. Otto did not have rapid rejection like they were so sure he had, the bottom of the kidney started to die from lack of blood supply (blood clot, narrow vein?). I am so angry and told the Dr if only they had taken me more serious we could have saved this PERFECT kidney and Otto from coming WAY to close from losing his life. The Dr could only stutter and say I don't even know what to say I'm completely shocked WELCOME TO MY WORLD!!!! Otto of course is upset. He's down having a repeat chest x-ray to make sure things are getting better and they want to see his diaphragm to see if anything there could be the cause of his hiccups (yep still has them). Otto will have D on Monday and please pray for no afib as this could keep him here longer and maybe off Wall-e. Keep on smilin.....Team Machado

p.s. Greg B it was so nice to come home and see our yard look so nicexoxoxox
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Amanda From OZ
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« Reply #126 on: October 18, 2008, 08:33:20 PM »
Im sorry once again that things didn't turn out as they should have, and yes i have also learn "not" to trust doctors fully.

Still praying for you otto and "MD" lola.

Amanda
xxoo
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Sluff
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« Reply #127 on: October 18, 2008, 10:09:41 PM »
Thanks for the update.
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lola
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I can fly!!!
« Reply #128 on: October 19, 2008, 06:39:13 AM »
Just came home so I can shower as a "MD" should smell nice for her pt. Just so angry and trying to not :Kit n Stik; :boxing; :boxing; someone. Otto is so much better THANK GOD!!!!! Still can't get over how close we came to losing him. Thank You sooooooooo much for the prayers, kind words and cards I am so lucky to have you all in my life. :grouphug; :grouphug; :grouphug;
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pelagia
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« Reply #129 on: October 19, 2008, 06:54:58 AM »

I will continue to say my prayers for Otto's healing and strength.  He is a lucky man because he has you by his side. That is a very good thing!
 :cuddle;
« Last Edit: October 19, 2008, 03:58:39 PM by pelagia » Logged
As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
willieandwinnie
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« Reply #130 on: October 19, 2008, 06:59:38 AM »
lola, my continued thoughts and prayers are with your family.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
monrein
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« Reply #131 on: October 19, 2008, 10:43:33 AM »
I too, continue to think of you and to send healing thoughts to Otto.  Losing the kidney is a huge disappointment but I'm glad that Otto is getting somewhat better.  :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
paris
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« Reply #132 on: October 19, 2008, 11:48:40 AM »
Prayers being said everyday for our Otto!  Lola, you are so incredible.  You are both fighters.   I hope you both find strength, day by day.   :grouphug;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Romona
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« Reply #133 on: October 19, 2008, 02:37:27 PM »
 :grouphug; Praying for both of you.
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vandie
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« Reply #134 on: October 20, 2008, 06:58:34 AM »
Amy, If I haven't said it before, you are an inspiration to us all. I am so impressed and inspired by your strength.  You are the reason your family will pull through this and be ready for the next challenge.   You are loved, our IHD girl!!

xoxo
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Life is the journey, not the destination.
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I received a kidney transplant on August 4, 2007.
okarol
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« Reply #135 on: October 20, 2008, 08:11:05 AM »
From yesterday:

Otto had a pretty good day he's just really tired out, his hemoglobin is still only 8.1. Otto convinced one of the Dr's to let him go home this morning but THANK GOD we have awesome nurses who called his regular Doc who then had to come tell Otto no. Otto just wants to get away from there and I don't blame him, the plan is that they will do dialysis(D) in the morning and as long as his heart stays out of afib they may let him come home. As much as Otto HATES Wall-e he knows he'll feel much better once there together again.

I came home tonight to spend some much needed time with the kids, makes me so made to see how this has affected them and for what? Don't get me wrong I am so thankful Otto is alive but this has put such a dark cloud over us that it will take time for me to put my family back together and make kids understand that we WILL find another kidney. I just know that the next time around there will be some major fear.

Thanks again for ALL the prayers, love and support. Also Mom THANK YOU I know you feel like you should be there more for me but I need you most with my babies and I can never say thanks enough for keeping them so hugged and Loved xoxoxox

Keep on smilin......Team Machado
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Sunny
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Sunny
« Reply #136 on: October 20, 2008, 04:55:44 PM »
The strength of your character will get your wonderful family through this. I am so sorry for  that happened to Otto and pray for his quick recovery so he can be home once again with his loving family. Best of wishes to all of you.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
lola
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I can fly!!!
« Reply #137 on: October 20, 2008, 05:12:46 PM »
Otto is home :bandance; :bandance; xoxoxox you guys
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monrein
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« Reply #138 on: October 20, 2008, 05:23:46 PM »
 :bandance; :bandance; :bandance; I'm dancing with you Lola.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
pelagia
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« Reply #139 on: October 20, 2008, 05:31:44 PM »
 :bandance; makes me want to dance :bandance;
 :cheer: or jump up and cheer :cheer:
 :2thumbsup; it's thumbs up :2thumbsup;
 :clap; and deafening applause :clap;
 :yahoo; a big yahoo :yahoo;
  for Otto and his team :flower;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
thegrammalady
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« Reply #140 on: October 20, 2008, 05:32:34 PM »
FANTASTIC!
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
G-Ma
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« Reply #141 on: October 20, 2008, 05:43:35 PM »
 :grouphug;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #142 on: October 20, 2008, 06:50:25 PM »
 :yahoo; YEAH BABY!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
willieandwinnie
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« Reply #143 on: October 21, 2008, 12:49:04 PM »
:grouphug; lola. So glad you got to bring Otto home. I pray that things will continue to improve and you can get some much needed rest.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Romona
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« Reply #144 on: October 21, 2008, 01:01:53 PM »
Glad Otto is home! :yahoo;
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paris
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« Reply #145 on: October 21, 2008, 02:49:49 PM »
Great news!   You both need to be home and rest. Lola, let others help.  You must be worn out.   Love to you both  :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
rose1999
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« Reply #146 on: October 21, 2008, 11:00:33 PM »
Lola and Otto, I haven't posted much lately (see 'where is Rose 1999' post) but I have been thinking about you both and wishing you well.  I'm so pleased to share your good news.  :grouphug;
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Amanda From OZ
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« Reply #147 on: October 22, 2008, 02:12:05 AM »
i'm so pleased to hear otto is home!!  :)

Amanda
xxoo
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lola
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« Reply #148 on: October 22, 2008, 07:20:46 AM »
I just set Wall-e up and I thought Otto was going to cry, he's so upset he said he was suppose to be done with this.
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xtrememoosetrax
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« Reply #149 on: October 22, 2008, 07:23:42 AM »
 :grouphug; :grouphug; :grouphug;
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Living donor to friend via 3-way paired exchange on July 30, 2008.

www.paireddonation.org
www.caringbridge.org/visit/marthahansen
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