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Author Topic: Otto got the call  (Read 59230 times)
monrein
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Might as well smile

« Reply #100 on: October 15, 2008, 04:57:10 PM »

Steady Otto.    :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
paris
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« Reply #101 on: October 15, 2008, 05:58:22 PM »

Keep staying the course, Otto.  We are all praying for you.   You can do this!!  :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
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« Reply #102 on: October 15, 2008, 06:52:44 PM »

My heart is heavy...
...so sad...

...hang in there, Otto and Lola!

I will pray for you and all those who love you and are there with you.
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #103 on: October 15, 2008, 08:41:11 PM »

Tonight'd CB post:
WEDNESDAY, OCTOBER 15, 2008 09:19 PM, CDT

Wed. eve- We finally talked to the surgeons. Alot of our questions were fairly well answered, but time will tell. Very complicated situation and they tell us that he kidney actually ruptured due to the inability of the blood to leave the kidney. The blood went in, but then began to clot at the top and worked its way down. People die from this when it happens, and she feels they were extremely lucky to have gotten him to surgery when they did.
His heart went back into regular sinus rhythm this eve,THANK YOU GOD, so if all stays the same, they will take out the breathing tube in the am. Then I can bring the kids to see him. We finally see a few positive signs, however no kidney--- Know Otto is going to have a hard time accepting this, and he was not happy to be on dialysis.
Amy & his parents are staying at the hospital again tonight- they are exhausted--but Amy will try to sleep tonight.
Will add to this in the am-- Thank you ALL for the support- Amy is overwhelmed!!! Mom
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
skyedogrocks
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Rob showing off his pot of gold!

« Reply #104 on: October 16, 2008, 08:19:42 AM »

I'm so sorry Amy & Otto.  My thoughts and prayers have been with you through this whole ordeal.   :cuddle;
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Wife to Rob who is currently doing Nx Stage Home Hemo Dialysis.

11/17/09 After 4 years on dialysis, Rob received a kidney from our George.  Kidney is working great!  YEAH!!!!
okarol
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« Reply #105 on: October 16, 2008, 10:34:54 AM »


today's news:

Otto had a very stable night, they will be starting to turn down the vent. His heart also stayed out of afib so they will get him off those meds also. I went in at 2:30am and he opened his eyes and put his hands up to write, so we got him paper and pen and he wrote in BIG letter and circled it MAYO NOW 99% Dr error. I explained he had to stay here I did warn the Dr's last night once he's up and has the vent off he's probley not gonna be a happy camper and they needed to take time to explain everything to him so that he's not so angry, but really do you blame him. He asked about the kids and was concerned how this has affected them but we have been very careful not to let the kids know just how bad Otto really was. I told him how many people have been on our site and all the amazing post and he said thank you. Will keep everyone updated as Otto gets off the vent and out of ICU YIPPEEE!!!! Amy
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Lori1851
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This is me Lori , Dustin's mom

« Reply #106 on: October 16, 2008, 12:10:22 PM »

Otto,
I am pulling for you! Will be praying for better days ahead for you!!!

Lori/Indiana
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G-Ma
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« Reply #107 on: October 16, 2008, 12:15:17 PM »

We are all praying for lola, otto and family.
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
kelliOR
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« Reply #108 on: October 16, 2008, 01:56:07 PM »

Amy,

 What an incredible ordeal Otto has had to deal with...
Thank God for the strength you've found to pull you through this...
Sending wishes of continued recovery to Otto, and hugs to you and children.

love,
kelli   
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Shoot for the Moon.....Even if you miss, you'll end up among the Stars ........


Denied PKD for years (Boy, was I good at it!)
Dragged kicking and screaming to dialysis (in center hemo)
Transplant from a friend March 24, 2006 at OHSU
charee
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« Reply #109 on: October 16, 2008, 03:21:44 PM »

thinking of you all :grouphug;
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Home Hemo  18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
okarol
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« Reply #110 on: October 16, 2008, 03:30:05 PM »

Latest:
THURSDAY, OCTOBER 16, 2008 05:20 PM, CDT

Otto is up on the transplant floor, very weird since we are with out it. Kids came to see there Dad after almost a week of not seeing him, Bryce had such a hard time him and Otto just hugged and cried and of course Otto's mom and I couldn't help but do the same. This is just so hard coming here for what was suppose to be a way for Otto to have a better life and instead came so close to losing him.

I have put my mom's address on because her mail is locked and we felt since we are not home this was much safer.

I still am overwhelmed of the last 8 days yet can't express enough how much all your words have helped me get thru this trying time, I can't wait for Otto to sit down and read them all. THANK YOU

Keep on smilin....Team Machado(Amy)
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Deanne
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« Reply #111 on: October 16, 2008, 03:32:27 PM »

I'm so sorry the transplant didn't work out.
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
lola
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I can fly!!!

« Reply #112 on: October 17, 2008, 06:35:54 PM »

I am home for a much needed break but needed to give  :grouphug; :grouphug; to my 2nd family. Today while on D Otto went into afib again, he is very scared of Dr's at the moment but I don't blame him. He had a echo done this afternoon but we have not seen the results. Still in shock over everything. Thanks for all you prayers. I do want to say I hope what has happened does not steer anyone away from a transplant what happened is VERY rare. xoxox
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pelagia
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« Reply #113 on: October 17, 2008, 06:43:11 PM »

It is so good to hear from you.  You must be exhausted.  Try to rest.  I hope that Otto will start getting stronger and be able to go home soon. :cuddle;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
paris
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« Reply #114 on: October 17, 2008, 06:45:34 PM »

Lola, We love you and keep praying for Otto.   :grouphug; :grouphug;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
okarol
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« Reply #115 on: October 17, 2008, 06:45:58 PM »

Hey lola - one day at a time. I hope you get Otto home soon.
 :cuddle;
« Last Edit: October 17, 2008, 07:25:25 PM by okarol » Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
monrein
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Might as well smile

« Reply #116 on: October 17, 2008, 07:02:07 PM »

Thinking of you all.  :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Sluff
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Posts: 43869


« Reply #117 on: October 17, 2008, 07:15:35 PM »

Get some rest Lola, need to take care of you also.  :grouphug;
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kimcanada
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« Reply #118 on: October 17, 2008, 07:32:15 PM »

lola, I have to tell you that you have amazed me throught all of this, you are an amazing person, and I am proud to "know" you.  Love to you and your family

Kim
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cherpep
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« Reply #119 on: October 17, 2008, 07:40:49 PM »

It so good for me and my family to hear the survival stories and the rare rejection stories.  If I ever do get a transplant, I feel much better walking in with our eyes wide open.  Every day, when we get home from work, we give each other a hug and hurry to the computer to get an update on Otto.  We think about him all day.  You are all constantly in our prayers, and we really appreciate you sharing this time with us, I can't imagine how this must be for you, but we have learned a lot from you.  For one thing, we have learned the reality that if I do get that call, my husband will also need to take a good amount of time off work.  That's just a detail we never even considered.   I don't think he ever thought about how much of an important role he will play in the process, how much I'll need him.   Keep the strengh, lola, we're praying for extra doses for ya.
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okarol
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« Reply #120 on: October 17, 2008, 10:50:45 PM »

This update was from earlier today, before lola posted here:
FRIDAY, OCTOBER 17, 2008 03:28 PM, CDT   

Today Otto had D and at the end his heart decided once again to go into afib, it was only for about 10-15 minutes but Otto's mental state at present is so frail that he is sure something is now wrong with his heart. Last night he needed me to stay in bed and just hold him as he is so afraid of the next bad thing to happen. He is in with a chaplain now working thru what he has been thru. I am needing sleep and am praying that he will be OK with me leaving to go to my bed and gain strength but I have learned that I can only go hour to hour as I never know what his needs will be. I have told him once he heals he is doing some major foot and back rubs and he has promised me life long ones.

I want to Thank everyone for the power of prayers, Otto is still here for that reason. THANK YOU THANK YOU xoxoxo keep on smilin...Team Machado


I don't blame Otto a bit - his reaction to all this stress is normal - hopefully the next few days will get easier. He's lucky to have a good woman like you Amy.  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Sluff
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« Reply #121 on: October 18, 2008, 05:41:28 AM »

Things will be back to normal soon and your family will be able to put this behind you. I hope your family never has to go through this again.  :grouphug;
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pelagia
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« Reply #122 on: October 18, 2008, 05:53:15 AM »

Keep hugging him and loving him.  That kind of loving is as good as any meds the docs can give him.   :cuddle;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
kitkatz
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« Reply #123 on: October 18, 2008, 10:17:20 AM »

 :grouphug; :grouphug; :grouphug;
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Jill D.
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« Reply #124 on: October 18, 2008, 01:22:56 PM »

Love, hugs and prayers to Otto and the entire family.  :grouphug; :grouphug;
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Diagnosed with FSGS in1990.
Started hemodialysis in April 2006.
Received a new kidney from my sister on Dec. 5, 2006.
Transplant rejection in March, 2009
Approved for second transplant in May 2009
Sister-in-law approved as donor in Dec 2009
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