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Author Topic: Started Nocturnal last night...sort of.  (Read 4307 times)
Jay72
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« on: October 06, 2008, 08:44:29 AM »
Well Friday was susposed to be my last conventional treatment here at home, and last night I was to start nocturnal.  As luck would have it, I put my needles is without any trouble as usual and hooked up, but right away I saw that my vein pressure was very high, then I noticed that there was blood leaking from the hole around the needle, which in my books shouldn't be happening.  So I tried to adjust my venous needle and sure a sh#$ my vein blew!!!  with the pump running at 200, so I swelled very quickly before I was abole to shut the pump off.  I called the nurse on call, at home, at 12:30 am and she said to just come off and do a conventioal today and give it another try on Tuesday night.  So we will try again.  It's justa  piss off because I haven't had ANY trouble with my fistula after my first 2 weeks.  Wish me luck!! :beer1;

Jay


Edited: Fixed error in subject line - okarol/admin
« Last Edit: October 06, 2008, 02:52:39 PM by okarol » Logged
paris
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« Reply #1 on: October 06, 2008, 09:58:19 AM »
I'm sorry Jay. I hope Tuesday goes a lot better.  Take care.
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
del
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del and willowtreewren meet
« Reply #2 on: October 06, 2008, 12:09:30 PM »
Hope everything goes better next time Jay.  probably was just the positioning of the needle. Good luck for next time  :cuddle;
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Don't take your organs to heaven.  Heaven knows we need them here.
del
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« Reply #3 on: October 06, 2008, 12:11:03 PM »
Jay aother question Were you using a blunt or a sharp needle???  I would assume a blunt and you are using buttonholes if you are doing nocturnal.
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Don't take your organs to heaven.  Heaven knows we need them here.
monrein
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« Reply #4 on: October 06, 2008, 12:33:47 PM »
Big bummer Jay, but don't let it rattle your confidence.  Good luck with your next try.  :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
pelagia
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« Reply #5 on: October 06, 2008, 01:47:24 PM »
darn.  I bet it will go perfectly well the next time.  :thumbup; :thumbup;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
kidney4traci
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« Reply #6 on: October 07, 2008, 05:58:27 AM »
OMG - what a scary day!  I imaging that hurt like it was infultrated.  Sorry to hear, but like others said, don't let that stop you from trying again.  Hope it goes smoothly next time!!!
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Married - three children.
Alports female, diagnosed ESRD 10/04
11/04  Hemo in clinic
6/07 hemo at HOME! 
2/3/09 - Transplant from an angel of a friend!!!
Jay72
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« Reply #7 on: October 17, 2008, 01:30:13 PM »
Sorry it's been a week, but Future Shop had to replace our laptop, the old lemon policy.  Anyways, the first whole week of nocturnal SUCKED!!!  But last week annd most of this week has been trouble free, mostly.  I am still using sharp needles so I am sleeping pretty lightly, but either nextweek or the week after they are going to come and add the second pump to my machine and then I will go to single needle.  I am pretty sure I had figured out what the initial problems were.  First night when my vein blew (infiltrated) yes it hurt like hell, I was having a bit of postion trouble withe the needle so I tried to flip it and that must have aggitated it enough to make it burst.  Then the other problems of alarms for arterial or venous pressure were du to me going way too dry too fast.  So I raised my dry weight by 1 kg to 75 and it has been much better.   I will keep knocking away at it but it is hard because I started school yesterday and I really need to get a good nights sleep.  Wish me luck!

Jay
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twirl
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« Reply #8 on: October 17, 2008, 01:36:59 PM »
all the luck in the world to you :flower;
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monrein
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« Reply #9 on: October 17, 2008, 02:36:18 PM »
Wishing you lots of luck Jaybird.   Are the single needles, the softer, more flexible ones?
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Jay72
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« Reply #10 on: October 17, 2008, 06:36:59 PM »
Nope, they are steel, the flexible one have an insert like an IV needle and are very hard to put in with one hand.
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