TK101
Newbie
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Posts: 13
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« on: September 29, 2008, 04:30:25 PM » |
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Hello All,
I am a 36 year old insulin dependent diabetic just recently diagnosed with ESRD. I have had diabetes for over 25 years and always kinda knew kidney failure was in my future. My kidneys really started to show signs of strain a year or so ago, and my nephrologist and I hoped I would make it to transplant without hitting dialysis, but hear I am with a new PD catheter.
My PD catheter was placed on Friday, I was expecting pain from the slight cutting and manipulations of my abdomen (it was a laproscopic procedure), but no body told me about the CO2 gas they use to inflate your abdomen and the pain it causes as it "vents" through your tissues! My right shoulder still slightly hurts. It really sucked, I left the hospital about 2pm and was unable to keep any pain medication down until about 11pm, I could not sit or lay down until 2 am as the pain would get much worse in my shoulder/abdomen when I was not standing. So basically I was pacing around until 2 am. Nice.
This morning I got my catheter flushed out and dressings changed. So far no signs of infection and everything looks ok. It looks like I will be the first one in the dialysis clinic to be trained to use the new Fresenius Liberty cycler. Its funny, I got a handout which shows what the new cycler looks like, but no pictures seem to be available online anywhere, even at the Fresenius website.
Anyhow I look to be starting on PD in about 3-4 weeks, with the plan being multiple organ transplantation (kidney and pancreas) sometime in the near future.
TK101
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monrein
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« Reply #1 on: September 29, 2008, 04:32:57 PM » |
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 to IHD. Lots of experience here with all aspects of ESRD and dialysis.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
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paris
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« Reply #2 on: September 29, 2008, 04:59:52 PM » |
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TK 101, We are glad you joined us. There is so much information here and many members who do PD. Everyone is always ready to help each other, so if you have any questions, please ask. This is also a wonderful support group. Looking forward to hearing how things progress in the next few weeks. Paris,moderator
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 It's not what you gather, but what you scatter that tells what kind of life you have lived. |
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boxman55
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« Reply #3 on: September 29, 2008, 05:04:04 PM » |
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Welcome to IHD Glad you are here
Boxman, Moderator
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"Be the change you wished to be" Started Hemodialysis 8/14/06 Lost lower right leg 5/16/08 due to Diabetes Sister was denied donation to me for medical reasons 1/2008 |
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Sluff
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« Reply #4 on: September 29, 2008, 05:11:26 PM » |
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Welcome to IHD TK101,
Thank you for introducing yourself. It is sometimes a difficult thing to tell about yourself and you did a great job. Sorry about the kidneys finally quitting. You have come to the right place for information and great advice. I hope you continue to check back often, read and ask questions if you have any. Maybe we will see you in chat sometime. Enjoy the forums and I'm sure you will make many friends during your stay.
Sluff/Admin
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peleroja
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« Reply #5 on: September 29, 2008, 05:51:46 PM » |
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Welcome to the group. I've been on PD for 5 years. If you have any questions, please feel free to ask!
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kellyt
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« Reply #6 on: September 29, 2008, 06:16:12 PM » |
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1993 diagnosed with glomerulonephritis. Oct 41, 2007 - Got fistula placed. Feb 13, 2008 - Activated on "the list". Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta. Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  |
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cookie2008
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« Reply #7 on: September 29, 2008, 06:20:57 PM » |
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Started PD in 11/07
Started Hemo in 7/08
Started NxStage 5/09
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Joe Paul
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« Reply #8 on: September 29, 2008, 08:51:22 PM » |
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Welcome TK 101, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
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Wallyz
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« Reply #9 on: September 29, 2008, 10:03:24 PM » |
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Welcome. I have Type 1 as a well, looking for that Kidney/Pancreas combo as well.
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willieandwinnie
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« Reply #10 on: September 30, 2008, 05:53:40 AM » |
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TK101. We are a great group. Lots of information and support. Let us know how you are doing. 
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"I know there's nothing to it, but I want to know what it is there's nothing to"
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pelagia
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« Reply #11 on: October 01, 2008, 06:19:59 PM » |
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
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george40
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« Reply #12 on: October 01, 2008, 06:40:44 PM » |
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Hi, Im new here too. |
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8/2000 - Diagnosed ESRD / Hemo begins with perm cath
1/2002 - Transplant No. 1
4/2006 - Transplant failed due to CMV virus/ Back to Hemo
11/2008 - Moved to PD Modality
9/2012 - Transplanted!
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Ang
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« Reply #13 on: October 02, 2008, 04:29:12 AM » |
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live life to the full and you won't die wondering
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RCA
Newbie
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Posts: 33
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« Reply #14 on: October 03, 2008, 06:15:57 AM » |
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Welcome TK101!
Please let us know your experience on the Liberty cycler! (perhaps under the Home Dialysis section) I tried to find info about this new cycler online but couldn't find much...wondering what new functions/features this machine has.
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Ken Shelmerdine
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« Reply #15 on: October 07, 2008, 04:58:49 AM » |
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Glad you found this site and hope PD works out for you as it has done for me.
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Ken
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rookiegirl
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« Reply #16 on: October 07, 2008, 04:23:33 PM » |
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TK101, to IHD and to PD. I've been on PD going on 1 year this coming Oct. 22th. I'm doing well on the treatment. Best of luck to you. |
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
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Romona
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« Reply #17 on: October 08, 2008, 04:48:35 AM » |
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Bajanne
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« Reply #18 on: October 18, 2008, 08:49:13 AM » |
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A belated welcome to our wonderful community! i suppose by now you have discovered what a wealth of information and support it is. Just keep posting, keep reading, keep asking questions. remember you are with family now  Keep us informed on how you are doing. Bajanne, Moderator |
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith" I LOVE my IHD family! |
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Ken Shelmerdine
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« Reply #19 on: October 21, 2008, 03:06:55 PM » |
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Glad your catheter surgery seems to be settling down. There are quite a few of us on PD on this forum so if you have any questions just post and you'll be surprised how many replies you'll get. If you can, please post some pics of the new Fresenious Liberty machine.
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Ken
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Slywalker
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« Reply #20 on: October 22, 2008, 09:59:18 AM » |
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Welcome aboard - nice to meet you. I did PD before my transplant and found it very manageable. I look forward to your posts. Sandyb  |
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idahospud
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« Reply #21 on: October 23, 2008, 01:08:44 AM » |
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jwaynebo
Newbie
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Posts: 20
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« Reply #22 on: October 23, 2008, 05:32:55 PM » |
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Peace,
Jeffrey
"I'm pullin' for ya, We're all in this together." - Red Green
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kmatisse
Newbie
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Posts: 2
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« Reply #23 on: October 24, 2008, 10:17:06 AM » |
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One reason that information on this cycler is hard to come by is that Baxter has sued Fresenius for patent infringement regarding this product and I think Fresenius is reticent to publish very much information about it. That also probably means that if Baxter wins, this product would be withdrawn from the market and you would have to retrain on another piece of equipment.
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