how do we get started doing extended daily therapy (Nocturnal)

[Maggie and Jeff]

I bought the equipment and told the doc we going to do this.

Then told the doc about the clotting we had the first try.

the fda approval helped

 

[Maggie and Jeff]

Darn, that took some time.  What made it finally happen, was it the FDA approval?

I think the FDA approval helped as did the fact that the baby k that they had wanted us to use was never approved for Nocturnal.

Taking the time to research and share my findings with the Dr plus insisting we will switch to nocturnal even if we need to find support else where.

Things are going well Maggie is on a 3k bath running 20L 6/nights per week with a kt/v of around 2.9

Her labs have been great except she is on bicarbonate again seeing as her renvela has been cut to zero.

[cassandra]

How many hours does she run on 20 liters?

Love, Cas

[Simon Dog]

Things are going well Maggie is on a 3k bath running 20L 6/nights per week with a kt/v of around 2.9

Confusing since "3K bath" is a term applicable to the BabyK, but 20L is NxStage terminology.   Which are you using?

[cassandra]

Simon, with Nxstage you can also run a 2K or 3K bath

     

[Simon Dog]

Simon, with Nxstage you can also run a 2K or 3K bath

     

I missed the RFP205 bags which are indeed 3K.  I was looking at the SAKs which appear to come only in 1K or 2K.   (http://www.nxstage.com/homehemodialysis/products/fluids).   Is there any 3K available in SAKs?

I was used to hearing the Fresenius solutions referred to by their "Kism" and the NxStage referred to by their lactate concentration (probably because they switches SAKs on me to change the lactate, K has never been an issue)

[Maggie and Jeff]

Run time is about 8 - 9 hours Machine said 7:51 last night.

The K is potassium

Maggie's potassium was low she was having to take potassium pills everyday to keep it in range.

She was on 2k for a time and 1k for a long time.

And no as far as I know the 3k is only with the RFP205 bags.  No 3k saks

We switched to the bags to lower her aluminum when the saks tested to contain trace amounts of aluminum and her levels where elevated.  Maggie's aluminum was 5 last time we tested.

Later we switched to 3k

[cassandra]

Simon, with Nxstage you can also run a 2K or 3K bath

     

I missed the RFP205 bags which are indeed 3K.  I was looking at the SAKs which appear to come only in 1K or 2K.   (http://www.nxstage.com/homehemodialysis/products/fluids).   Is there any 3K available in SAKs?

I just called Nxstage UK, and there is apparently no Saks with 3K. How weird

[Maggie and Jeff]

I just called Nxstage UK, and there is apparently no Saks with 3K. How weird

Keeps me strong carrying them boxes around.