dkerr
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It is what it is . . .
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« on: August 19, 2008, 06:22:19 PM » |
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Have my fistula surgery on Thursday ... I will admit I'm having a hard time with it. Saw my nephrologist today. He can'tgive me any kind of a timeline other than they hope not to have to use anything for 8 weeks after the surgery. I asked if early next year and he wouldn't commit. I go back in 8 weeks. Wish I could just have a good cry and go on . . .
EDITED: Moved to proper section - Sluff/Admin
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« Last Edit: August 19, 2008, 06:54:22 PM by Sluff »
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pelagia
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« Reply #1 on: August 19, 2008, 06:27:55 PM » |
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It must be really hard. Try to take it one day at a time. I hope you have someone there to give you a hug. Here's one from me.  |
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
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Joe Paul
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« Reply #2 on: August 19, 2008, 06:30:25 PM » |
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Good luck with your surgery. Hopefully it will be a while before you need to start dialysis.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
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flip
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« Reply #3 on: August 19, 2008, 06:43:22 PM » |
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It's a piece of cake but you may need painkillers for a few days. I used mine at 6 weeks but hopefully you will have more time for it to mature. Good luck.
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That which does not kill me only makes me stronger - Neitzsche
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twirl
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« Reply #4 on: August 19, 2008, 06:47:03 PM » |
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have a good cry; it helps
and you will be fine
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dkerr
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It is what it is . . .
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« Reply #5 on: August 19, 2008, 07:14:13 PM » |
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Thanks everyone.
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Sluff
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« Reply #6 on: August 19, 2008, 07:15:36 PM » |
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I will say an extra prayer for you in hope that all goes well. I will be thinking of you Thursday. Update us when you are able.  |
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Sunny
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« Reply #7 on: August 19, 2008, 07:18:39 PM » |
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Hope all goes well. Good luck and be brave.
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Sunny, 49 year old female
pre-dialysis with GoodPastures
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rose1999
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« Reply #8 on: August 19, 2008, 11:33:37 PM » |
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okarol
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« Reply #9 on: August 19, 2008, 11:36:28 PM » |
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I hope you do just fine and it develops well. Hang in there. Each step is hard but hopefully you will feel better soon. |
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Chris
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« Reply #10 on: August 19, 2008, 11:39:42 PM » |
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Good Luck with surgery.
My suggestion is rely on how you feel when you think it is write for them to use. When they tried to use my fistula for the first time I told the tech I wasn't ready, it did not feel right. She tried anyway and failed. I soon left that center anyway. Pain killers might be a must, don't be shy to ask if you need them. Just pay attention to how your body feels and don't let them force you to use your fistula if you don't feel right.
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Diabetes - age 7
Neuropathy in legs age 10
Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
-glaucoma and surgery for that
-cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
- vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection
Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000
Kidney and Pancreas Transplant - December 3, 2000
Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures - Priceless
No two day's are the same, are they?
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Wayne
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Martin (the snorer) & Mack (cat w/renal failure)
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« Reply #11 on: August 20, 2008, 12:29:09 AM » |
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Good luck with the surgery. I had mine put in about 2 1/2 months ago. It is maturing well...haven't started dialysis yet.
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Happily Married for 11 Wonderful Years!!! :-)
3/01 diagnosed with fsgs
7/07 listed
4/08 fistula surgery
10/08 pd catheter placed
12/08 started pd
2/09 started hemo
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breezysummerday
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« Reply #12 on: August 20, 2008, 01:20:32 AM » |
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Ray's vascular doc said 'i'll just put a couple of shots of lidocaine...you'll be fine'. We 'pre-screened/triaged' the day before and asked about pain meds.
Ray got a script for percocet. And keep your hand elevated (after the procedure)....try warm or ice packs. Get something soothing to drink. tea, warm lemon water. ...baby that fist and yourself!
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« Last Edit: August 20, 2008, 01:31:05 AM by breezysummerday »
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caregiver to Ray
renal failure 6/08
listed 7/09
~thank you epoman~
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monrein
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« Reply #13 on: August 20, 2008, 03:25:33 AM » |
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I'll be thinking of you tomorrow and hope all goes well. |
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
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devon
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« Reply #14 on: August 20, 2008, 08:11:22 AM » |
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Best wishes for tomorrow! I had mine done in March. Truthfully, I can't recall if it was painful or not! Strange eh? It's all healed now and with barely any scaring... just a thin line where the incision was. I just took the pain meds as needed and got through it.
Tomorrow I go to the hospital to have my first dialysis treatment using my A/V fistula. I'll be thinking of you and look forward to hearing all about it when I return.
-Devon
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boxman55
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« Reply #15 on: August 21, 2008, 03:31:28 AM » |
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dkerr and devon best wishes to both of you. Praying for good outcomes...Boxman
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 "Be the change you wished to be" Started Hemodialysis 8/14/06 Lost lower right leg 5/16/08 due to Diabetes Sister was denied donation to me for medical reasons 1/2008 |
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dkerr
Full Member
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It is what it is . . .
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« Reply #16 on: August 22, 2008, 03:08:28 PM » |
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I survived . . .  It was interesting. As I was waiting, I remembered my mother and how she went through all of this 40 years ago. Her shunt was alot different than a fistula. I remember my father waking her one night and them rushing to the base hospital. Her shunt came loose and she was bleeding all over her bed. My fistula is just above the bend of my elbow. Since I'd broken bothwrists and had plates in both, thats where they put it. Looks red and ugly, but I do feel a buzz. I was wondering how Devon did on his first day of dialysis. Hope your doing well. |
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flip
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« Reply #17 on: August 22, 2008, 03:22:45 PM » |
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Congrats....the worst hurdle is over. Don't forget to do your exercises. It will make it much easier in the long run. You will probably have some pain for a few days but that is normal. Just take your pain meds. Two buzzes is even better than one.   |
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That which does not kill me only makes me stronger - Neitzsche
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Sluff
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« Reply #18 on: August 22, 2008, 03:59:22 PM » |
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Glad it's over dkerr. Devon how did things go for you?
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twirl
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« Reply #19 on: August 22, 2008, 04:04:57 PM » |
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dKerr your dog is a beauty
and glad you are doing great
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monrein
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« Reply #20 on: August 22, 2008, 04:12:16 PM » |
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Mine's in my upper arm this time around also and is working really well so far. Hope all the pain and discomfort is gone soon. |
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
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pelagia
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« Reply #21 on: September 01, 2008, 09:04:51 AM » |
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 happy to hear it went well.
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
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Joe Paul
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« Reply #22 on: September 01, 2008, 09:07:29 AM » |
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Happy it went well for you, as I said, I hope its a good long time before you need to use it the first time  |
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
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Marley
Jr. Member
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« Reply #23 on: September 01, 2008, 09:36:43 AM » |
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SO glad your surgery went well and successful!!! Any kind of surgery is no fun, but my husband had 5 of them over 3 years and they are pretty easy to recover from. Devon---Been thinking about you and wondered when your first day of dialysis was, knew it was soon. Hope it was smooth sailing for you and will continue to be, your a nice guy.  Marley  |
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Marley
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devon
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« Reply #24 on: September 02, 2008, 06:27:33 AM » |
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Thank you Marley! That was so very kind of you to say. I gotta admit... you really made me feel good. Thank you!
And sluff, thank you too for your concern. I appreciate it very much.
-Devon
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