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RobinM
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« on: August 27, 2008, 03:52:03 PM »
Hello!

This is my first post.  This is a great site!  I was online looking for some information and this site popped up.  I'm so glad I checked it out.  

I'm 43 and live with my husband and two cats.  I have Lupus and ESRD.  I've had the Lupus for over 20 years and kidney disease for around 8.  I was in in-center dialysis for 5 years, peritoneal dialysis for 1 year, and 2 years on home hemo (NxStage).  Now that I'm doing home hemo I feel like I've got my life back.  I'm healthier (as much as I can be with lupus and no kidneys!) and I have more energy to do things.

I'm not sure what else to write!  Post me if you have questions.

Robin
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monrein
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Might as well smile
« Reply #1 on: August 27, 2008, 04:04:11 PM »
 :welcomesign;  Robin.  So glad you found this site and all of us!!!  Sorry about all your health issues (we know all about that) but so glad that things are better for you with Nxstage.  Post often and let's get to know you better.
« Last Edit: August 27, 2008, 04:27:47 PM by monrein » Logged
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
G-Ma
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« Reply #2 on: August 27, 2008, 04:20:33 PM »
 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
paris
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« Reply #3 on: August 27, 2008, 05:11:15 PM »
 :welcomesign; Robin, so glad you joined us.  You have a great attitude even with all you have going on.  This is a great site for information and most of all, for support.  Looking forward to hearing more from you :grouphug;
« Last Edit: August 28, 2008, 11:40:15 AM by paris » Logged


It's not what you gather, but what you scatter that tells what kind of life you have lived.
RobinM
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« Reply #4 on: August 27, 2008, 05:24:13 PM »

Hello, Monrein, G-Ma and Paris!  Thanks for the welcome. :-)

I'm looking forward to meeting everyone and exchanging info.


Robin
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cookie2008
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« Reply #5 on: August 27, 2008, 07:29:28 PM »
 :welcomesign;
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Started PD in 11/07
Started Hemo in 7/08
Started NxStage 5/09
twirl
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« Reply #6 on: August 27, 2008, 07:32:38 PM »
 :flower; hello Twirl
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Joe Paul
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« Reply #7 on: August 28, 2008, 12:54:07 AM »
Welcome Robin, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
CatEars
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« Reply #8 on: August 28, 2008, 01:21:19 AM »
Hi Robin  :welcomesign;
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"Seize the moment 'cause tomorrow you might be dead."  -Buffy, "Welcome to the Hellmouth"
florida.flyer
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The JAX ramp rat
« Reply #9 on: August 28, 2008, 02:52:51 AM »
Hi Robin!   :welcomesign;
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thegrammalady
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« Reply #10 on: August 28, 2008, 04:35:11 AM »
 :welcomesign;
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s
......................................................................................
If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
willieandwinnie
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« Reply #11 on: August 28, 2008, 05:45:40 AM »
 :welcomesign; Robin. We are a wonderful group and we hope to learn more about you.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Romona
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« Reply #12 on: August 28, 2008, 09:18:13 AM »
 :welcomesign;
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keith
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« Reply #13 on: August 28, 2008, 09:23:38 AM »
 :welcomesign;
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Life ain't Life wit out Me!!! U Heard Me  
Transplanted on 12-6-2007 on dialysis7+yrs
Started Dover dialysis support group. A group for patients, familyand friends.
NOW RUN-Tel-Dat
annabanana
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« Reply #14 on: August 28, 2008, 10:22:34 AM »
a big  :welcomesign; to IHD!
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caregiver to Randy:
HepC and stage 4 ckd
1 kidney removed (cancer)Aug07
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

WWW
« Reply #15 on: August 28, 2008, 11:00:06 AM »
Welcome to our community, Robin!  So glad that you found us.  I can guarantee that this website is going to be one of your weapons in dealing with your renal challenge.  There is lots of information here, as well as support and fun. this is also a good place to vent when you need to since the people here will understand  just what you are going through.  Please read as much as you can, but also post as much as you can.  You will find that this is more than a website; it is a real family. :grouphug;
Looking forward to hearing from you. :flower;


Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
RobinM
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« Reply #16 on: August 28, 2008, 04:12:09 PM »


Thanks you guys!  I think this is going to be a fun site.  :)

Robin
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boxman55
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« Reply #17 on: August 28, 2008, 05:43:45 PM »
Hi Robin, welcome to IHD we are all glad you joined.

Boxman, Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
Ang
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« Reply #18 on: August 28, 2008, 06:01:30 PM »
 :welcomesign;
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live  life  to  the  full  and you won't  die  wondering
Kini
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" Just keep Swimming "
« Reply #19 on: August 29, 2008, 05:32:35 AM »
 :welcomesign;
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Mother of daughter on PD dialysis. Transplanted 1991, dialysis June 2003, transplanted 2004 this transplant never took, still on PD and waiting 5 yrs. and when the gift of life is once again never shall we be tied down, look out Hawaii we are coming back !! it's my daughter's dream.
kitkatz
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« Reply #20 on: August 31, 2008, 09:08:42 PM »
Welcome to the community. Glad you found us. There is a wealth of knowledge here.

kitkatz,moderator
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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