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Author Topic: a newcomer  (Read 3268 times)
mike22
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« on: August 27, 2008, 08:12:07 PM »
Hi all,

I am a 22 yr old college student. I am a junior a Vanderbilt University. I had my first transplant(deceased donor) in 2000. The kidney has started to fail me. i am really hurt, angry, frustrated and scared. I didnt want this at this point in my life. The first time i did dialysis(hemo), i did it for 8 months and i was in middle school. I did well with it both physically and mentally. Now it is harder because im older and im a college student. I will say when the doctor told me that i needed dialysis, i wanted to start the next day. I wanted to get on with it. I am determine not to let dialysis ruin my life. Fortunately, i am bless to have two people who want to donate-my mom and cousin. I hope to gain valuable insight from you guys


thanks
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flip
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« Reply #1 on: August 27, 2008, 08:21:20 PM »
Welcome, Mike. Sorry you've been through so much at such a young age. Fortunately you're in a good location with one of the best kidney centers in the country. I think you will be glad you joined us. There's tons of good information and many people who have been down the same road you are on.
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That which does not kill me only makes me stronger - Neitzsche
rose1999
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« Reply #2 on: August 27, 2008, 10:48:25 PM »
 :welcomesign; I hope you get your transplant soon and that it lasts a very long time.
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Joe Paul
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« Reply #3 on: August 28, 2008, 12:53:19 AM »
Welcome Mike, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
CatEars
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« Reply #4 on: August 28, 2008, 01:28:11 AM »
:welcomesign;
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"Seize the moment 'cause tomorrow you might be dead."  -Buffy, "Welcome to the Hellmouth"
monrein
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Might as well smile
« Reply #5 on: August 28, 2008, 01:30:10 AM »
 :welcomesign; 
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
florida.flyer
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The JAX ramp rat
« Reply #6 on: August 28, 2008, 02:55:53 AM »
Hi Mike, hang in there!   :welcomesign;
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Lori1851
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This is me Lori , Dustin's mom
« Reply #7 on: August 28, 2008, 03:05:22 AM »
Mike ,
PLenty of  :grouphug; here!!!! Post alot and you will be amazed at teh friends you will make!!!
 :flower;
Lori/Indiana
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bolta72
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my best friend
« Reply #8 on: August 28, 2008, 04:32:51 AM »
Welcome. Sorry to hear of your failed kidney, keep your head up and I hope the next one lasts longer for you.
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gotta do what I gotta do.. 2 yrs in ctr hemo
thegrammalady
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« Reply #9 on: August 28, 2008, 04:33:25 AM »
 :welcomesign;
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s
......................................................................................
If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
esperanza1
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« Reply #10 on: August 28, 2008, 09:04:13 AM »
Hi,
 Welcome to the site,  I'm in college too, I was wondering if having kidney disease has made you change your career choice??
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willieandwinnie
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« Reply #11 on: August 28, 2008, 09:12:55 AM »
 :welcomesign; Mike.
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Romona
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« Reply #12 on: August 28, 2008, 09:17:39 AM »
 :welcomesign;
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keith
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« Reply #13 on: August 28, 2008, 09:24:21 AM »
 :welcomesign;
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Life ain't Life wit out Me!!! U Heard Me  
Transplanted on 12-6-2007 on dialysis7+yrs
Started Dover dialysis support group. A group for patients, familyand friends.
NOW RUN-Tel-Dat
annabanana
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« Reply #14 on: August 28, 2008, 10:21:11 AM »
 :welcomesign; from another close to Nashville.
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caregiver to Randy:
HepC and stage 4 ckd
1 kidney removed (cancer)Aug07
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

WWW
« Reply #15 on: August 28, 2008, 10:51:39 AM »
Welcome to our community!  What a challenge you have to deal with at such a young age.  But I have come to see that there is a lot of strength in the human spirit and I know you can make it.  You made a good choice in joining our forum.  It is  not just a website; it has become a family  :grouphug;  There is loads of information, lots of support, barrels of fun and above all, a place to vent when you need to.  So keep reading and keep posting.


Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
TynyWonder
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Calvin
« Reply #16 on: August 28, 2008, 12:32:13 PM »
 :welcomesign;  Mike!  I hope you can make alot of friends here as we all need friends who are going through the same thing we are going through!

Tammy
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Diagnosed with ESRD-November 2006
I have had 2 fistuals-neither one worked
I have had 2 grafts the last one finally "took"
I had 3 different catheters from Nov. 06 - Dec. 08
Got on the transplant list - Halloween Day 2008

You can easily judge the character of others by how they treat those who they think can do nothing for them.    I BELIEVE THIS TO BE SOOOOO TRUE!
Kini
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" Just keep Swimming "
« Reply #17 on: August 29, 2008, 05:39:28 AM »
 :welcomesign;

Welcome Mike and my very best to you. My daughter had  her first transplant at 9 yrs of age ( cadaver ) and she had 12 wonderful yrs with it, she also lost her graf in 2003 at 21. I cried my heart out, I also morned for the little girl who's kidney gave her life for so long. Good luck, and hopefull a new transplant soon
 :cuddle;
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Mother of daughter on PD dialysis. Transplanted 1991, dialysis June 2003, transplanted 2004 this transplant never took, still on PD and waiting 5 yrs. and when the gift of life is once again never shall we be tied down, look out Hawaii we are coming back !! it's my daughter's dream.
Zach
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"Still crazy after all these years."
« Reply #18 on: August 29, 2008, 07:04:20 AM »
Welcome to our community.
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
RobinM
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« Reply #19 on: August 29, 2008, 04:18:41 PM »

Hello Mike!   :welcomesign;


Robin
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kitkatz
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« Reply #20 on: August 31, 2008, 09:06:10 PM »
Dialysis cannot ruin your life unless you allow it to. I have been at this for ten years now.  Welcome and good luck.

kitkatz,moderator
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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