Well, currently, I'd have to say that it is going public with the fact that my unit dumped me. Yep, I have never taken such a public and defiant stand in my life. (and believe me, I have take some stands in the past)
http://www.billpeckham.com/from_the_sharp_end_of_the/2008/08/dumped-by-your.htmlDumped by your unit - One person's perspective
On August 15th, my dialysis unit suddenly closed. Their home hemo program transferred all seven patients dialyzors to a sister unit (same mega dialysis company) 100 blocks away. One brief phone call was made to tell me that this was temporary (it tuned out to be permanent for the home hemo program) and I was told that my training nurse would be working out of the new unit.
Imagine my surprise when I was called by the new unit, told that I was a new patient permanently, New Dr, new nurse and that they did not support solo home hemo. I could either find a new unit or come in center, either way they would shut off my supplies, effectively attempting to end my optimal dialysis care plan of the past 10 months.
Now, I am in the position of having no support for my home hemo - of course, the new unit is willing to bill for having me on their books, but they will not supply the standard of care that has been established for me. They are willing to bill for "monitoring" me until my supplies run out and then convert me to in center 3x a week. Or, I can find another unit to support me on home hemo self dialyzing. How can they substantiate billing my insurance company $32,000 a month for service that they refuse to provide?
Their legal loophole? The FA of the unit was able to dig up their original certification from the State of New York (granted when they were a Fresenius home provider) which precludes them from supporting solo home dialysis. Well, the State of NY is right, I wouldn't dialyize at home on a Fresenius machine. I dialyize at home, alone on NxStage, a simple machine, with disposable cartridges.
My training unit was not restricted as far as solo home hemo was concerned, as they had been certified for NxStage.
So, that is my status. I have been dumped by my former unit, just like Topeka. As for the new unit, I refuse to consent to substandard dialysis, when I have an established level of care in which I am thriving. As I refuse to sign any consent for the new unit, I effectively no longer have a unit, I no longer have a nephrologist. The business of dialysis is trying to force me into substandard dialysis, totally disregarding my rights as a single person and ignoring my health. This I cannot stand for.
I was the home hemo poster child for my unit, I blogged every day of my training, I smiled and did press, I mentored others, I had been a satisfied, healthy, proactive addition to their home hemo program.
At the new unit, I am a number in a chart, they are following their rules and suddenly I am a pariah. This is not how I expected to spend my late Summer/early Fall. I am looking for a unit who will take me as a solo patient, and I'll be blogging every step of the way.