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Topic: Hi everybody (Read 2613 times)
florida.flyer
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The JAX ramp rat
Hi everybody
«
on:
August 14, 2008, 06:17:06 PM »
My name is Patty, I've been on CAPD for 1 year. (congrats to me!) My Mother was born with 1 kidney not working, so after her 2nd baby was born (me) it was too much and she died when I was almost 3 years old from kidney failure. Actually I never gave it a thought till about 3 years ago when I was starting to feel alittle tired and went for a checkup, was told the "life-altering" statement: you are slipping protein. after the Cat Scan I found out that my right kidney was very small and the Dr. decided it was from birth (thanks Mom). My left kidney had become enlarged from the extra work. The GFR went downhill quickly. So when it reached 14, I had the operation to put the cath in, unfortunately, I also had an umbilical hernia (from a pregnancy) and that had to be repaired also (at the same time) needless to say, recovery was not pleasant. I live alone during the week and my Son stays with me on his weekends.
I'm retired from American Airlines (just got back yesterday from Vegas, Baby!) .....no, didn't win anything, but did see Cher in concert! My Daughter from Pennsylvania met me there and we had a great time.
anyway, where was I going with this? oh yeah, one of the few smart things I did was go to work for AT&T (before I got too sick) I managed to stay there for 8 months before going out on disability and the operation. But, here's the good part, I'll get a 70% check from them till I turn 65. wow. plus I get Social Security Disability. So, if I wasn't so tired, I'd be having a REALLY good time! oh well. I don't mind doing the 4 exchanges a day ....usually. they are helping my left kidney, and it hasn't given out on me yet. (knock on wood)
I stay relatively positive, I've gained a few extra pounds from the solution (well, sympathy eating also) but will start addressing that issue soon.
But I do feel very isolated nowadays. All friends have dropped off the face of the earth, the Davita social worker said that happens alot, people are scared you're going to kick the bucket...I'm glad I found this site. write to me when ever you want company!
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flip
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Re: Hi everybody
«
Reply #1 on:
August 14, 2008, 06:40:56 PM »
Welcome, Patty. You have new friends now and you won't have to worry about them dropping off the face of the earth. We are always here for you and you will receive support, help, advice and also have lots of fun.
to our family
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That which does not kill me only makes me stronger - Neitzsche
G-Ma
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Re: Hi everybody
«
Reply #2 on:
August 14, 2008, 06:45:58 PM »
Yes, once I couldn't go to work anymore my friends faded away too, but IHD is a great group of people to have as new friends.
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07. Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
Chris
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Re: Hi everybody
«
Reply #3 on:
August 14, 2008, 06:46:41 PM »
Hi there, read your story. Do they think this is a genetic disorder tat passes on? Hope your kids keep an eye out for tis as well.
Good Luck
Logged
Diabetes - age 7
Neuropathy in legs age 10
Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
-glaucoma and surgery for that
-cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
- vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection
Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000
Kidney and Pancreas Transplant - December 3, 2000
Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures - Priceless
No two day's are the same, are they?
pelagia
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Re: Hi everybody
«
Reply #4 on:
August 14, 2008, 07:19:34 PM »
nice to meet you.
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
cookie2008
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Re: Hi everybody
«
Reply #5 on:
August 14, 2008, 07:22:37 PM »
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Started PD in 11/07
Started Hemo in 7/08
Started NxStage 5/09
funnygarcia
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Re: Hi everybody
«
Reply #6 on:
August 14, 2008, 09:46:05 PM »
hmm, My hubby too was born with one small kidney, that eventually shriveled up to nothing, and the other may have had faulty ureters that caused damage over time.. or at least that is one theory we have.
He had a spotty medical record in childhood, moving around a lot -- mom didn't understand that protein in urine is not a good thing, had an issue in teens where they did ultrasound and found out the abnormal kidneys.. again.. no follow up with his mom. Until the kidney simply gave up and he had high blood pressure, chest pains, vomiting... started dialysis immediately. Nephs list cause as "hypertension" but that doesn't reflect the whole picture.
I keep tabs on our boys with annual test and general mother worry.
anyway, welcome!
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Joe Paul
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Re: Hi everybody
«
Reply #7 on:
August 15, 2008, 12:42:05 AM »
Welcome Patty, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
monrein
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Might as well smile
Re: Hi everybody
«
Reply #8 on:
August 15, 2008, 04:15:16 AM »
I look forward to getting to know you through this site.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
Rerun
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Going through life tied to a chair!
Re: Hi everybody
«
Reply #9 on:
August 15, 2008, 05:11:57 AM »
Patty welcome to IHD. You can come here anytime of the day or night and someone is usually on. I'm sorry your kidney is failing you. It does suck rocks. Glad you found us.
Rerun~
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willieandwinnie
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Re: Hi everybody
«
Reply #10 on:
August 15, 2008, 06:05:14 AM »
Patty. So glad you found us.
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"I know there's nothing to it, but I want to know what it is there's nothing to"
willcon
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Re: Hi everybody
«
Reply #11 on:
August 15, 2008, 11:14:07 AM »
hi Patty, I just joined this site a couple of weeks ago, i'm in Tallahassee, I have not started PD yet but get my cath next wednesday. This is a great site. There always seems to be someone willing and ready to respond. It has been a great place for me to get information about PD.
Wlecome
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Willcon
florida.flyer
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The JAX ramp rat
Re: Welcome
«
Reply #12 on:
August 15, 2008, 11:57:52 AM »
Hi back to ya all! very nice to feel so welcome. It's been a long time since I've felt people cared. I'll try to pass it along too.
Thanks!
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Ang
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Re: Hi everybody
«
Reply #13 on:
August 15, 2008, 04:48:14 PM »
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live life to the full and you won't die wondering
boxman55
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Re: Hi everybody
«
Reply #14 on:
August 15, 2008, 06:45:12 PM »
Hi Patty, good to have you here.
Boxman, Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
paris
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Re: Hi everybody
«
Reply #15 on:
August 15, 2008, 07:08:37 PM »
Hi Patty, you are among friends here. This is a great site for information and especially for support. Looking forward to hearing more from you
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Mercurial
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Building a Zen deathray.
Re: Hi everybody
«
Reply #16 on:
August 15, 2008, 10:02:30 PM »
Hiya!
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"Tick tock tick tock tick tick." - six word story by Neal Stephenson
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten
Re: Hi everybody
«
Reply #17 on:
August 15, 2008, 11:55:15 PM »
Welcome to our community, Patty! So glad that you found us. There is a lot going on at this site, so please take advantage of all it has to offer - information, support, fun, a place to vent when necessary. Read as much as you can, and post as much as you can. You have found a very special family here.
Looking forward to hearing from you.
So you went to Vegas before our IHD reunion which is there in October! It would be great if you could make it back and meet some of your IHD family.
Bajanne, Moderator
«
Last Edit: August 16, 2008, 11:41:56 AM by bajanne2000
»
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"
I LOVE my IHD family!
Romona
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Re: Hi everybody
«
Reply #18 on:
August 16, 2008, 07:15:53 PM »
Hi Patty,
I also had a tiny right kidney and a left one that was giving up. I'm from Pennsylvania. Where does your daughter live?
Romona
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mcjane
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Re: Hi everybody
«
Reply #19 on:
August 16, 2008, 10:03:35 PM »
Hi Patty, For sure people here really do care. The love & support is 100% & it's good to have you for a member.
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carla13
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Re: Hi everybody
«
Reply #20 on:
August 19, 2008, 01:33:31 PM »
xx
carla
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Ohio Buckeye
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Re: Hi everybody
«
Reply #21 on:
August 20, 2008, 02:42:06 PM »
Patty!
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If I must do this to live, I must strive to live
while I am doing this.
kitkatz
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Re: Hi everybody
«
Reply #22 on:
August 31, 2008, 09:23:09 PM »
Welcome to the site. Being here will make you feel less isolated during the week. Ask questions and read often. Lots of information and knowledge here.
kitkatz,moderator
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lifenotonthelist.com
Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5
Remember your present situation is not your final destination.
Take it one day, one hour, one minute, one second at a time.
"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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