Jay72
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« on: September 19, 2008, 09:19:14 AM » |
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I have been waiting to see if I would get into the nocturnal study here in London, Ontario, well I got the call just now and I am in! I am sooo looking forward to feeling better.
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willieandwinnie
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« Reply #1 on: September 19, 2008, 09:20:47 AM » |
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 Keep us posted Jay. 
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"I know there's nothing to it, but I want to know what it is there's nothing to"
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monrein
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« Reply #2 on: September 19, 2008, 09:24:58 AM » |
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Excellent Jay, I know you were wanting in so congrats.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
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Jay72
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« Reply #3 on: September 19, 2008, 09:32:41 AM » |
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Why thank you!!  |
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okarol
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« Reply #4 on: September 19, 2008, 10:09:09 AM » |
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I hope it works out and you feel great!  |
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peleroja
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« Reply #5 on: September 19, 2008, 10:25:31 AM » |
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Congrats. I hope it works out for you!
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thegrammalady
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« Reply #6 on: September 19, 2008, 10:30:03 AM » |
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 congratulations, let us know how it goes. |
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s
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If you can smile when things go wrong, you have someone in mind to blame.
Lead me not into temptation, I can find it myself.
Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.
Some mistakes are too much fun to only make once.
Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
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kidney4traci
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« Reply #7 on: September 19, 2008, 10:38:06 AM » |
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Married - three children.
Alports female, diagnosed ESRD 10/04
11/04 Hemo in clinic
6/07 hemo at HOME!
2/3/09 - Transplant from an angel of a friend!!!
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devon
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« Reply #8 on: September 19, 2008, 12:04:21 PM » |
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Great Jay! Good luck!
-Devon
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paris
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« Reply #9 on: September 19, 2008, 12:53:10 PM » |
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I hope this works really well for you. Keep us posted.Fingers crossed you start feeling better with nocturnal.  |
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 It's not what you gather, but what you scatter that tells what kind of life you have lived. |
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Sluff
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« Reply #10 on: September 19, 2008, 01:37:49 PM » |
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Hope this works for you. |
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Jay72
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« Reply #11 on: September 19, 2008, 02:52:57 PM » |
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Thank you very much everyone, even though we have never met it sure means a lot to me to hear this. Thank Again!!  Jay |
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kitkatz
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« Reply #12 on: September 19, 2008, 05:50:00 PM » |
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Go for it. I am doing nocturnal now and boy do I feel better. I am off my blood pressure meds now. Hot damn!
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lifenotonthelist.com Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5 Remember your present situation is not your final destination. Take it one day, one hour, one minute, one second at a time. "If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1 |
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del
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« Reply #13 on: September 19, 2008, 06:02:21 PM » |
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Jay wil you be doing nocturnal in center or at home?  We are in Newfoundland and hubby has been doing nocturnal home hemo for 2 years now. Blood work results are fantastic and he feels wonderful. Hope it works for you!1 Congratulations!! |
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Don't take your organs to heaven. Heaven knows we need them here.
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Jay72
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« Reply #14 on: September 19, 2008, 11:08:40 PM » |
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Hi del, I will be doing it at home, I already do home hemo!
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David13
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« Reply #15 on: September 20, 2008, 05:26:31 AM » |
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Great news, Jay! The fact that you will be doing nocturnal at home is even better! Keep us posted and let us know how it works out for you. |
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“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
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Jay72
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« Reply #16 on: September 20, 2008, 10:49:35 AM » |
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I have to say, I really didn't want anything to do with nocturnal, I was interested in the short hour frequent dialysis but I have been talked into the nocturnal so I am going to give it a try.
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del
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« Reply #17 on: September 20, 2008, 06:40:30 PM » |
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jay hubby was "iffy " about trying nocturnal as well. He had a few tough months at the beginning - just getting used to trusting the machine. He had many slepless nights!!! He even went back to short daily for a while but found that while all other bloodwork was almost the same phosphorus was much higher on short daily than nocturnal. Once he got used to nocturnal he really liked it. What type of machine will you be using Jay. We use Fresenius 2008H but will be getting a new machine in the next year or so because that model is discontinued and they are no longer making parts for it. Good luck. If you have any questions or anything don't hesitate to pm me!!! |
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Don't take your organs to heaven. Heaven knows we need them here.
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Jay72
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« Reply #18 on: September 21, 2008, 08:11:50 AM » |
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Hi del, I have trhe Fresenious 2008K@HOME
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carson
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« Reply #19 on: September 22, 2008, 09:01:23 PM » |
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Oh man, I am so happy for you!! give it a bit to adjust and you'll be so happy you did!!!  |
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2009 infection treated with Vancomycin and had permacath replaced
2009 septic infection that wouldn't go away
2007 began Nocturnal Home Hemo with Permacath
1997 began Peritoneal Dialysis
1982 had cadaver transplant
1981 diagnosed with GN2 and began Peritoneal Dialysis
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Joe Paul
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« Reply #20 on: September 23, 2008, 01:27:16 AM » |
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Good luck  |
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
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