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Author Topic: Hello  (Read 1953 times)
funnygarcia
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« on: August 06, 2008, 02:19:40 PM »
Hello, I'm Bernice.
My husband was diagnosed 12 years ago; center based dialysis off and on, with a transplant (I was his donor) that happily lasted for 3 years.

We have just completed home based (short daily) training with Davita and have been at home now for 2 weeks.
He loves not going to a center, I love having him happy and feeling great! :yahoo;

We have two boys in that ohhh so interesting teenage phase.
Just moved back to Minnesota from southern California, we missed our family and didn't feel like we were "home". We call it our year of adventure, similar to a very long vacation.. gotta go back to routine sometime.

Hubby does most of his dialysis by himself, I am just the extra set of hands to grab more tape/adjust a fan/find the remote/spin labs.
He cherishes his independence.
He is a middle school science teacher, graduated 2007 -- looking for a job this year.
I teach preschoolers, occasionally do product demos, and love being mom/wife/partner.  I am the chatty online person.. hubby is not into message boards but will read over my shoulder and offer remarks to add.

hmmm.. what else? I like to laugh and joke, terrible at typing, always willing to lend an ear/hand and help out. Very addicted to all things Disney (part of why we moved to CA was to be close to Disneyland-- yes I know, we are odd people), love reading and learning. And we have a polydactyl cat (she has extra toes) that we named Poly.

There you have it.. my lifestory plastered here.  ;D
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monrein
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Might as well smile
« Reply #1 on: August 06, 2008, 02:23:54 PM »
 :welcomesign; Bernice.  You've found the best, bar none, dialysis forum on the web and we have the nicest, most caring members also.  Your husband sounds lucky to have you as his helper and also to have had your kidney for a while, sorry it wasn't longer.  Post often with your questions and of course with your wisdom and I look forward to getting to know you.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
paris
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« Reply #2 on: August 06, 2008, 03:10:05 PM »
Bernice, welcome home!  You are going to fit right in here!   This is a wonderful, caring group and there is more information here than at any doctor's office.  I think we can learn a lot from you, too.   Glad you found us :2thumbsup;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
peleroja
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I have 16 hats, all the same style!
« Reply #3 on: August 06, 2008, 03:11:51 PM »
Welcome, Bernice.  I'm glad everything is working out for you and hubby!
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G-Ma
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« Reply #4 on: August 06, 2008, 03:19:23 PM »
 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
willieandwinnie
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« Reply #5 on: August 06, 2008, 03:26:19 PM »
:welcomesign; Bernice. There are lots of caregivers, partners here. Make yourself at home and read some of the older posts, there is so much information here. Hope to hear more from you.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
boxman55
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« Reply #6 on: August 06, 2008, 04:20:09 PM »
Welcome Bernice, glad to have you aboard

Boxman, Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
Ang
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« Reply #7 on: August 06, 2008, 05:20:20 PM »
 :welcomesign;
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live  life  to  the  full  and you won't  die  wondering
cookie2008
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« Reply #8 on: August 06, 2008, 05:51:12 PM »
 :welcomesign;
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Started PD in 11/07
Started Hemo in 7/08
Started NxStage 5/09
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

WWW
« Reply #9 on: August 07, 2008, 10:20:13 AM »
Welcome to our community, Bernice!  From your first post I see that you are an IHD family member! :grouphug;  Epoman (our founder) loved intros like yours.  This is just the place for you to be.  From your profile I see that you registered some time back.  Therefore I don't need to introduce this forum to you.  Just take advantage of all it has to offer.  Read, read, read and post, post post!  Looking forward to hearing from you.


Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
devon
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« Reply #10 on: August 07, 2008, 11:29:55 AM »
Welcome  Bernice and (over the shoulder) to your hubby too.

-Devon
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keith
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« Reply #11 on: August 07, 2008, 08:44:43 PM »
 :welcomesign;
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Life ain't Life wit out Me!!! U Heard Me  
Transplanted on 12-6-2007 on dialysis7+yrs
Started Dover dialysis support group. A group for patients, familyand friends.
NOW RUN-Tel-Dat
Joe Paul
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« Reply #12 on: August 10, 2008, 03:12:54 AM »
Welcome Bernice, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
kitkatz
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« Reply #13 on: August 31, 2008, 09:37:45 PM »
Welcome from another Southern Californian. Where are you located?  I love Disney stuff. I used to collect the Disney dogs.  I had over 500 in my collections and let them go after an earthquake rattled the house.  I still love to look. Welcome to the site!




kitkatz, moderator
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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