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carla13
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« on: August 07, 2008, 04:12:17 AM »
Hello!

I found this site VERY early this morning when I was up and about feeling 'headachey' due to my blood presure having gone through the roof for some reason! Hello everyone! My name's Carla and I live in Chester UK. I've been on Peritoneal dialysis for nearly two years up until about two weeks ago when after my third bout of peritonitis, the doctors removed my catheter and put in a neck line. I'm now HD-ing three times a week and finding it all a bit new and strange. Can't get used to the fact that i'm not so much in charge of my treatment as I was before!

Anyway - a bit about me, I'm 37 and on my second round of dialysis after Sidney (my first transplant at age 21) gave up the ghost in 2006. My kidneys failed originally due to glomuleronephritis which seemed to have been destroying my kidneys since I was very young and the process was so slow that no-one diagnosed it until it was too late.

I'm so happy to be here, and glad that there are lots of people in the same boat as me (well, not glad - but you know what i mean....) who get on with life in the best way possible and don't give up but who HATE dialysis!!

Carla
xxxx :boxing;

Looking forward to lots of postings - so great to find a place to rant!!!!
 :boxing;
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Joe Paul
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« Reply #1 on: August 07, 2008, 04:19:08 AM »
Welcome Carla, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
RichardMEL
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« Reply #2 on: August 07, 2008, 04:30:15 AM »
Welcome Carla!! Hopefully IHD can help lower that blood pressure!!

It must be quite a change going from PD to Hemo... I'm sure there are others here who have gone down that road too and can offer advice. By all means pull up a chair and rant away!

 :welcomesign;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
willieandwinnie
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« Reply #3 on: August 07, 2008, 05:06:50 AM »
 :welcomesign; Carla. We are a great group with lots of information and support. Hope to hear more of your story.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
paris
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« Reply #4 on: August 07, 2008, 07:01:06 AM »
 :welcomesign;  I think it is more like Noah's Ark than a boat!  We are an interesting mix of people; some you could compare to the grizzly bear, a lovely swan, lots of monkeys, and maybe a few cookoo birds!!  But we are family and we are glad you are here with us.   Looking forward to hearing more from you :grouphug;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
peleroja
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I have 16 hats, all the same style!
« Reply #5 on: August 07, 2008, 07:32:15 AM »
Welcome aboard, Carla.  Lots of good info here, and a great place to rant and rave!
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napala turki
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Have to plan for living
« Reply #6 on: August 07, 2008, 07:59:53 AM »
Hi Carla,

Selamat Datang = Malaysian way of wishing Welcome, however UK and Malaysia were related, I been there in the 90s stay around the Marble Arch in London.

Feel good and stick with us, share your experience with us. :clap;
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Romona
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« Reply #7 on: August 07, 2008, 09:49:04 AM »
 :welcomesign;
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Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #8 on: August 07, 2008, 10:30:45 AM »
Welcome to our community!  I know that you are going to find this a great place to be.  Paris said it is a bit like a Noah's Ark.  If so, I am the lovely swan in the group!!!  So much for modesty.  Really from your info I see you are going to take advantage of this site,which is now a family.  :grouphug; I am historically related to you.  My island home,Barbados, was a British colony at my birth, and now i am living in the British Virgin Islands (an overseas dependent territory).  we also have lots of Brits here in our IHD family.  So as RichardMel said, pull up a chair and rant away.  we do want to hear from you (not just ranting, just telling us how you are doing)


Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
carla13
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« Reply #9 on: August 07, 2008, 01:59:23 PM »
Thank you for all the welcoming messages! It's great to know that I'm not alone, I do find that being on dialysis is a rather alienating process, especially when you are younger - it's great to get on board this particular Noah's ark and know that we're all going through similar things and that there's always a place (even if no-one reads it!) where you can vent , but also report on the good things!

xx to you all!
carla
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Lucinda
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Life is great!
« Reply #10 on: August 07, 2008, 03:00:18 PM »
Hi Carla

You will be surprised at how many young people there are on this board.  No.....I am not one of them but you will find plenty of members around your age and younger. Welcome aboard!!
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monrein
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Might as well smile
« Reply #11 on: August 07, 2008, 04:25:33 PM »
 :welcomesign; Carla.  Nice to have you join us.  Please post often so we can support, help and learn from each other.  I too am on my second round of dialysis after a transplant that lasted over 23 years.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
boxman55
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« Reply #12 on: August 07, 2008, 05:16:37 PM »
Welcome Carla, so glad to have you with us

Boxman, Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
Ang
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« Reply #13 on: August 07, 2008, 05:51:45 PM »
 :welcomesign;
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live  life  to  the  full  and you won't  die  wondering
Razman
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« Reply #14 on: August 07, 2008, 06:08:45 PM »
I'm glad that you found the site.  Die-alysis is a pain but we at least have a place like IHD where their are others who undersand.  :welcomesign;
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keith
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« Reply #15 on: August 07, 2008, 08:38:12 PM »
 :welcomesign;
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Life ain't Life wit out Me!!! U Heard Me  
Transplanted on 12-6-2007 on dialysis7+yrs
Started Dover dialysis support group. A group for patients, familyand friends.
NOW RUN-Tel-Dat
kitkatz
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« Reply #16 on: August 31, 2008, 09:44:02 PM »
Welcome to the site.  Be sure to put yourself in charge of your HDing otherwise they will run you ragged and dry. Find out things you need to know and question people.




kitkatz,moderator
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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