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Author Topic: Your kids and dialysis  (Read 9387 times)
goofynina
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He is the love of my life......

« Reply #25 on: March 17, 2007, 05:19:56 PM »

Wow, 18?  In the center where i used to go it is 14.  I am glad too cuz that age allowed my Goddaughter and my nephew to go in, needless to say it scared the crap out of them to see Nina/Tia (me) strapped to this machine and my blood running through the tubes.  You can bet they got the "take care of yourself or else" lecture,  ;) ;)
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
Wattle
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« Reply #26 on: March 17, 2007, 05:48:35 PM »

As a child I loved going to dialysis with my dad. He was one of the first patients at a self-care unit outside the hospital. I would do things around the unit for the nurses and patients. I was the "remote control" for the one t.v the unit had. Everyone had a turn with what they wanted to watch. I also use to sit and play chess with my dad. I remember these times fondly as was not at all scared. He was on dialysis from the time I turned five so I didn't know any different.

As a parent now on dialysis I was so worried about how it would change my own kids childhood. They have been so great about the whole thing. They were 8 and 11 at the time. I am doing PD. There was a lot of explaining about "tubes" and "bags" and mum needing a new kidney. Apparently Bart Simpson has donated a kidney so my eight year old thought it was no big deal he was happy to give me one! They understand dialysis is just something mum has to do and when she's finished she's free to help with homework, cook the dinner, wash their clothes and be their taxi.  :cuddle;

I try to do the best I can to give them a "normal" childhood. Having a sick mum is not much fun for them, but hey they have a mum!
« Last Edit: May 17, 2007, 12:48:49 AM by Wattle » Logged

PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
goofynina
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He is the love of my life......

« Reply #27 on: March 17, 2007, 05:50:55 PM »

And an AWESOME Mum at that ;)  Keep on keepin' on Wattle   :grouphug;
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
Bette
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« Reply #28 on: May 16, 2007, 08:44:59 AM »

My daughter is seven and is very comfortable with my dialysis.  I do CAPD, and sometimes she sleeps in the room with me when I am on the cycler.  She will wear a mask when I connect or disconnect or just leave the room.  She has had a few questions that I explained at her level.  She has been going to doctors appointments with me ever since she was little and she is always very well behaved.  I am very proud of her. 

I don't think I'd bring her to the hemo unit.  There is too much there that could hurt her, plus it's REALLY boring. ;)
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