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Adam_W
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Me with Baron von Fresenius

« on: July 21, 2008, 06:43:35 PM »

Well, I went into the centre today so the nurses could look at my belly and maybe figure out this leaking problem. The good new is that they are 99.9% sure that I don't have a hernia, but the kind of leak that I apparently have (I can't remember the name of it) requires me to do NO PD for at least a week  :banghead; I did a three hour hemo treatment today at the centre, and when I got off I felt TERRIBLE! Through the weekend I had been under-dialyzed because of the leaking issues, then my body was just "shocked" with three hours of hemo, and as a result, my nurse had to practically carry me out of the centre to my dad's car. I'll be going into the centre at least another two or three days until my NxStage machine is shipped back to me, then in a week, I will start my exchanges again with only half a litre instead of the usual two litres, and I will also do three hemo treatments. This is just so bloody frustrating and chaotic, and it's going to be more chaotic when I'm literally going to be doing two types of dialysis at the same time. To make things worse, since I felt so bad after treatment today, I was unable to ride my motor scooter back home, and it is still at the dialysis centre. However, my nurse actually brought it inside and locked it in the medical director's office, so I don't have to worry about anyone messing with it. It sucks though because I'm going to have to take a cab to get to the centre tomorrow, and cab fare is expensive. I know these problems are just temporary, and that leaks are not that uncommon with new PD patients, but it just seems like if it's not one thing or another. At least this week I'll be getting my normal short daily NxStage treatments, instead of being stuck in the actual centre. I know things will work out, but I just needed a little  :rant;

Adam
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
pelagia
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« Reply #1 on: July 21, 2008, 07:28:13 PM »

Oh Adam, I am sorry to hear that you are having so many complications.  Hopefully everything will work out soon.
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
monrein
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Might as well smile

« Reply #2 on: July 21, 2008, 07:34:40 PM »

Adam, I really hope you get back on track ASAP and start feeling better.  Setbacks do suck and even more so when you feel crappy and they cost a fortune.  Glad the scooter's safe. :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
mikey07840
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Her royal highness Queen Ruth on her throne, RIP

« Reply #3 on: July 21, 2008, 07:35:41 PM »

Hang in there buddy. My cat (Queen) Ruth has offered to beat up anyone you want if that will make you feel better.  :boxing;
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06/85 Diagnosed with type 1 Diabetes
10/04 Radical Nephrectomy (Kidney Cancer or renal cell carcinoma)
02/08 Started Hemodialysis
04/08 Started Peritoneal Dialysis (CAPD)
05/08 Started CCPD (my cycler: The little box of alarms)
07/09 AV Fistula and Permacath added, PD catheter removed. PD discontinued and Hemodialysis resumed
08/09 AV Fistula redone higher up on arm, first one did not work
07/11 Mass found on remaining kidney
08/11 Radical Nephrectomy, confirmed that mass was renal cell carcinoma
12/12 Whipple, mass on pancreas confirmed as renal cell carcinoma

• Don't Knock on Death's door; Ring the bell and run away. Death hates that.

• I'm not a complete Idiot -- some parts are missing.
Adam_W
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Me with Baron von Fresenius

« Reply #4 on: July 21, 2008, 07:53:46 PM »

Hang in there buddy. My cat (Queen) Ruth has offered to beat up anyone you want if that will make you feel better.  :boxing;
It's not anyone's fault, but just for the heck of it, tell Her Royal Highness she can beat up, ohhh let's see, the mailman.  :boxing;
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
Sluff
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« Reply #5 on: July 21, 2008, 08:19:54 PM »

geeeez... I hope things get better soon. It just seems as everything is running smooth something has to screw it up. Hang in there things will get better.
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KICKSTART
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In da House.

« Reply #6 on: July 22, 2008, 02:30:44 AM »

Hopefully all will come right in the end ..its just waiting till it does! Leaks are common ? sorry but yours is the first one i have heard of !
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
Ken Shelmerdine
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Life's a bitch and then you go on dialysis!

« Reply #7 on: July 22, 2008, 03:25:58 AM »

Adam I'm so sorry for all these problems you are having to deal with. At least one bit of good news is that it's not a hernia. The one thing I keep noticing time and time again on this forum is how brutal in centre dialysis seems to be. Why is this, do they purposely over dialyise people to compensate for the days between dialysis especially the week ends?
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Ken
kitkatz
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« Reply #8 on: July 22, 2008, 09:10:51 PM »

Golly Adam. You sure do know how to do it right! Dialysis, dialysis, dialysis!  Make ya want to scream, I bet.  :yahoo;
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #9 on: July 23, 2008, 12:01:59 AM »


So sorry Adam. It sounds awful. Hang in there.  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
willieandwinnie
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« Reply #10 on: July 23, 2008, 04:46:34 AM »

 :cuddle; Adam, I'm so sorry you are dealing with all this. I can't imagine doing 2 types of dialysis. I wouldn't be able to keep stuff straight in my head. Hang in there. :grouphug;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
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