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Author Topic: After five years of waiting  (Read 12709 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #50 on: September 28, 2008, 12:39:37 PM »


 :cheer: Yay! Good to hear from you! I hope you get the BP leveled out - take care!  :cheer:
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
pelagia
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« Reply #51 on: September 28, 2008, 12:44:30 PM »

My transplanted kidney will be six months at the end of this week. Everything is still going good. I still have to go see the doctors once a month since I was highly sensitized when I received my transplant. Starting next month I will only have to get labs once a month, yay! My only complaint now is my blood pressure, it's too low and my body is not use to it. I'm not on any sodium restrictions and I take Fludrocortisone, 0.1 mg Monday, Wednesday, Friday and with all that I'm still running low and still getting dizzy. Other than that, I feel great.

This is really great news about the kidneyversary.   :cheer:

Stephen is having the same problem with lowish blood pressure.  I keep encouraging him to eat a little more salt and drink more water.  Does that make any difference for you?   I had no idea there is a med to raise blood pressure.  After 25 years on bp meds I can't imagine him having to take something to send it in the other direction.  weird...  When he was still in the phase of cutting out the bp meds, the doc told him that it would be better to keep the bp a little on the high side of normal than the low side of normal as that would ensure good perfusion of the kidney.  I don't know if that's true later on after all the healing and adjustment has taken place.  guess maybe he should ask the doc.

How are your phosphorus and magnesium these days?
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
cambonesegirl
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« Reply #52 on: September 29, 2008, 01:03:34 PM »


This is really great news about the kidneyversary.   :cheer:

Stephen is having the same problem with lowish blood pressure.  I keep encouraging him to eat a little more salt and drink more water.  Does that make any difference for you?   I had no idea there is a med to raise blood pressure.  After 25 years on bp meds I can't imagine him having to take something to send it in the other direction.  weird...  When he was still in the phase of cutting out the bp meds, the doc told him that it would be better to keep the bp a little on the high side of normal than the low side of normal as that would ensure good perfusion of the kidney.  I don't know if that's true later on after all the healing and adjustment has taken place.  guess maybe he should ask the doc.

How are your phosphorus and magnesium these days?

The Fludrocortisone I'm on is suppose to help my body hang on to sodium better, but that doesn't seem to be working. I drink lots of fluids and eat salty foods like pretzels, popcorn. chicken broth, etc., but it's not helping.

My phosphorus and magnesium levels are okay. I'm not on any medications for them anymore. I was told it's not at normal level yet but it's not to low either.
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pelagia
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« Reply #53 on: September 29, 2008, 05:14:06 PM »

I do hope it gets better for you.  :cuddle;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
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