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Author Topic: Goodbye Sweet Fistula  (Read 4309 times)
tamara
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WOO HOO NEW KIDNEY PEEING !!!(Transplant 23/10/07)

« on: July 01, 2008, 10:53:48 PM »

Well, goodbye sweet fistula, we had some good times we sure had some bad but today we must say goodbye.  :'(

I woke up this morning, feeling that I had slept on my arm and didn't think nothing of it until it was time to check my fistula. It was pulsating but no thrill, and that part of my arm felt like a dead weight.

I called the hospital and spoke to the renal registrar, and since I am transplanted he isn't too concerned, other than to bandage it and take pain killers if it gets too sore.

Feel I'm without my safety blanket now if anything goes wrong and knowing that if it does, back to a yucky catheter.

He is going to check over it Friday morning to make sure no sign of infection and let me know what will happen from there.


P.S All mods wasn't sure where to post since I'm transplanted, but since it was fistula related I thought to put it in general discussion of dialysis.
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ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine 

                                                                                                                  
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
okarol
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« Reply #1 on: July 01, 2008, 10:57:51 PM »


I felt a little panic when Jenna's fistula quit the day of her transplant. The surgeon did not want to open it back up because she was newly transplanted, and didn't want to take any risk with infection. Thankfully she didn't need it, but it was nice to have while it lasted.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
tamara
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WOO HOO NEW KIDNEY PEEING !!!(Transplant 23/10/07)

« Reply #2 on: July 02, 2008, 12:03:32 AM »

Yeah that's his only concern, infection. Have bloods taken friday as per my fortnightly appointment and he said he will check it then, but if fever etc go to emergency but thats normal procedure for us anyway, so no diff till friday.
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ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine 

                                                                                                                  
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
Joe Paul
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« Reply #3 on: July 02, 2008, 03:26:39 AM »

Sorry to hear about your fistula Tamara, hopefully it will be a long long time before you would need it anyways. Keeping you in thought and prayers  :cuddle;
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
monrein
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Might as well smile

« Reply #4 on: July 02, 2008, 04:31:13 AM »

Mine quit suddenly one day about six months after my transplant and I felt strangely sad about it.  However, no infections, no trouble, no pain and this time (after 23 years) they successfully created my new fistula in the upper part of the same arm.

Don't worry Tamara, I hope you'll be an old lady before you need another.  A friend of mine is now in her 33rd year with the same transplant, done at a time when it was almost unheard of.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Wattle
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« Reply #5 on: July 02, 2008, 04:52:45 AM »



:cuddle;  Hey Tamara.... You are forgetting you now have a SUPER kidney and will not be needing that silly old thing anymore!!!  It knew its gig was up. Time for dialysis to be in your past.   ;)
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
Sluff
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« Reply #6 on: July 02, 2008, 04:55:28 AM »

Hopefully everything willbe fine. Like Wattle said, you won't need it anymore anyway.   :grouphug;
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boxman55
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« Reply #7 on: July 02, 2008, 05:28:31 AM »

tamara, it is a sign that your transplant will go on and on and on!!!  Boxman
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
2_DallasCowboys
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« Reply #8 on: July 02, 2008, 05:52:27 AM »

Hey, Tamara!

I agree with all the above posters, you won't be needing your
"old friend" Mr Fistula anymore.  Here is to a long, long new
friendship with your new kidney, may it last forever! :wine;

Anne
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KR Cincy
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« Reply #9 on: July 02, 2008, 06:46:02 AM »

Wow Tamara...I've only had my fistula for over a year and I can't remember it NOT being there! But I do think this is a sign that your body is perfectly happy with that new kidney and, as the old song goes, "the thrill is gone."    :rofl;
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Not giving up...thanks to Susan.
keith
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« Reply #10 on: July 02, 2008, 08:45:12 AM »

Hey, Tamara!

I agree with all the above posters, you won't be needing your
"old friend" Mr Fistula anymore. Here is to a long, long new
friendship with your new kidney, may it last forever! :wine;

Anne
same here
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Life ain't Life wit out Me!!! U Heard Me  
Transplanted on 12-6-2007 on dialysis7+yrs
Started Dover dialysis support group. A group for patients, familyand friends.
NOW RUN-Tel-Dat
RichardMEL
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« Reply #11 on: July 02, 2008, 08:55:02 AM »

Yeah that would be a weird and a bit scary thing Tamara but yeah like the others have said that little beauty from Allan the superman will keep you going forever and you won't need that yucky old thing :) *hugs* xoxo
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
donnia
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me and my donor Joyce

« Reply #12 on: July 02, 2008, 09:17:36 AM »

I agree with everyone else... you won't need that silly thing again anyway :) 

Hello tinkling all day long ....  goodbye fistula   :bandance;
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
tamara
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WOO HOO NEW KIDNEY PEEING !!!(Transplant 23/10/07)

« Reply #13 on: July 02, 2008, 01:40:26 PM »

Thanks for the thoughts guys   :cuddle;   , guess I'm flying without my safety net now lol

but it was pretty sore during my sleep last night, kept waking up from it, so took some pain killers this morning, and see them tomorrow morning
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ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine 

                                                                                                                  
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
RichardMEL
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« Reply #14 on: July 04, 2008, 02:53:41 AM »

Hoping all went well with the review of the fistula and they can sort out the soreness... that sounds like a real pain in the.. uh.. arm...

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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Ken Shelmerdine
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Life's a bitch and then you go on dialysis!

« Reply #15 on: July 04, 2008, 03:10:17 AM »

Here's hoping you never need it again.  :2thumbsup;
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Ken
okarol
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« Reply #16 on: July 04, 2008, 12:45:45 PM »



Tamara, how are you doing?
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
tamara
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WOO HOO NEW KIDNEY PEEING !!!(Transplant 23/10/07)

« Reply #17 on: July 04, 2008, 06:46:25 PM »

Thanks for asking Karol, went to the docs yesterday morning, the relationship is definetely over lol
Still sore especially when i wake up.
It is blocked but not entirely but since the kidney is working so good they will do nothing, just do whatever that relieves the pain, could take up to a month for swelling to go down, so just been doing heat pad and pain killers when I wake up but the rest of the day mostly ok.
Logged

ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine 

                                                                                                                  
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #18 on: July 04, 2008, 07:14:12 PM »



Awww parting is such sweet sorrow...

I hope you feel better soon!  :cuddle;
Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
KR Cincy
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Home hemodialysis since May 07

« Reply #19 on: July 07, 2008, 08:12:37 AM »

Tamara...I hope the pain eases soon.

And seriously, I toss in a "thrill is gone" reference, and NOTHIN'??? What's a guy gotta do around here?????

 :cuddle;
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Not giving up...thanks to Susan.
tamara
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WOO HOO NEW KIDNEY PEEING !!!(Transplant 23/10/07)

« Reply #20 on: July 12, 2008, 12:25:48 AM »

Swelling has gone down alot since last week and now no soreness, no thrill but its pulsating as much as it ever did, so a bit confused with it all, not caring about it though.
And yes, the thrill has gone............lol
Logged

ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine 

                                                                                                                  
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
donnia
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me and my donor Joyce

« Reply #21 on: July 12, 2008, 06:14:00 AM »

We all of course hope that you will never need that thing again, but I can totally relate with your "safety net" reference.  My surgeon had told me that we may need to do something with my fistula (although I doubt it... cause I don't think mine was actually reeeaaallly strong to begin with) because it could cause heart problems.  Did yours say anything about that?
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
AlasdairUK
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« Reply #22 on: July 12, 2008, 01:48:36 PM »

I had my transplant 4 months ago and they want to cut my fistula out as it too big. I understand how you feel about losing your security blanket.
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94 - PD for 3 months
94 - HD Permcath for 3 months
95 - RLD Transplant 10 years
2005 - HD Permcath 6 months
2006 - 2008 HDF Fistula
2008 - 2nd Transplant
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