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Author Topic: Well, it was fun while it lasted  (Read 3671 times)
Adam_W
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Me with Baron von Fresenius
« on: November 08, 2008, 08:13:59 PM »
I almost made it a week back on PD, but my peritoneum has started leaking again, and I have an exit site infection. My doctor wants to remove the catheter and have me stay on NxStage. My nurse wants me to have a consultation with the surgeon who put the catheter in and fixed the hernia that I had before we have the catheter taken out. He may have another idea on how to resolve the problem. I'm starting to literally expect bad things to happen to me because they always happen with me.

Adam
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
pelagia
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« Reply #1 on: November 08, 2008, 09:27:44 PM »
Sorry to hear about the string of problems Adam. Hopefully PD will still work out for you. 
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
willieandwinnie
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« Reply #2 on: November 09, 2008, 04:32:37 AM »
Adam, I'm sorry that PD isn't working for you right now. Maybe the doctor can come up with something to help out. Please let us know.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
David13
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A meow massages the heart.
« Reply #3 on: November 09, 2008, 04:36:20 AM »
Sorry to hear about the difficulties with PD, Adam.  I know it must be very frustrating.  :stressed;

At least you have the NxStage option, so you don't have to do in-center dialysis. 

Here's hoping that PD will work eventually.  Keep us updated. 
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“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
kidney4traci
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« Reply #4 on: November 09, 2008, 06:25:58 AM »
Sorry Adam - I know you wanted to be on PD - hope that works out for you eventually.  Hope you didn't have lot of pain...
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Married - three children.
Alports female, diagnosed ESRD 10/04
11/04  Hemo in clinic
6/07 hemo at HOME! 
2/3/09 - Transplant from an angel of a friend!!!
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #5 on: November 09, 2008, 06:45:04 AM »
So sorry things didn't work out.  Whatever the outcomes, please keep your spirits up.  sometimes that is all we have! :cuddle;
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
monrein
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Might as well smile
« Reply #6 on: November 09, 2008, 07:14:09 AM »
What a shame Adam.  We know how much you wanted PD to work for you.  I'll be interested in hearing what that surgeon has to say about it.  :cuddle;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Red from Canada
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« Reply #7 on: November 09, 2008, 07:47:43 AM »
Adam, I am so sorry to hear of your problems with PD.  I too am having a problem right now with a tunnel infection after having a catheter repair.  This is my second course of Cipro, to which they have added an intra-peritoneal dosage daily of ceftazidime, hoping to clear it without removal.  We are supposed to be going to Texas for the winter and I am terrified they won't be able to fix it.  You are not alone.  Hang in there. Pd is so much better than in-centre, even if we have to go through all this.
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paul.karen
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« Reply #8 on: November 09, 2008, 09:24:27 AM »
Wow this is sad news Adam.
I am holding out on the phrase where you say the doctor may have another way to resolve this.
we will keep you in our prayers and thoughts.

P&K
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
Katey
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« Reply #9 on: November 09, 2008, 11:09:16 AM »
I am also very sorry to hear of this news.  I had a similar experience except the doctors did several tests and tried my tube in other places.  They determined that I needed to have surgery to remove a lot of scar tissue which had built up from pd.  They removed all of my omentum which was a mistake.  Please make sure to speak to the surgeon and get a separate opinion.  There are several surgeons who are able to do miraculous things but it is such a territorial profession.  Speak up!  It is your body and I sincerely believe they will come to a resolution to get you back on PD.

Good Luck to you! ;D
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Diagnosed July 1985
Started CAPD 1995
Changed to Hemo 1996
Cadaver Transplant 1999
Back on Hemo Aug 2008
Found this wonderful site Nov 2008!!
twirl
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« Reply #10 on: January 01, 2009, 12:30:10 AM »
hang in there
2009 will be a better year :2thumbsup;
I know - easy for me to say -
we are here for you
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Sluff
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« Reply #11 on: January 02, 2009, 08:08:30 PM »
Hang in there Adam, you have had your share of downs, hope things get better soon.
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