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Author Topic: Thoughts on organ donation  (Read 5434 times)
Bill Peckham
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« Reply #25 on: April 25, 2008, 01:21:40 PM »

That's an excellent point Monrein. Stauffenberg are you listed in the bone marrow registry?
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http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
Incenter Hemodialysis: 1990 - 2001
Home Hemodialysis: 2001 - Present
NxStage System One Cycler 2007 - Present
        * 4 to 6 days a week 30 Liters (using PureFlow) @ ~250 Qb ~ 8 hour per treatment FF~28
spacezombie
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Melissa: ESRD since 1992, transplant June 10, 2008

« Reply #26 on: April 25, 2008, 02:11:44 PM »

I agree with Sunny...I'm sure most people know but just don't want to. I have two brothers, a son, and a daughter. All are healthy and none of them have even offered a kidney to me.

I have a bunch of healthy relatives that have not offered to donate. I have others that have mentioned they want to donate, but for whatever reason will not go through the needed testing. I have my father that went through all the testing (he matched 3 out of 6 antigens), THEN decided not to donate. I think fear keeps most people from donating or causes them to put it off for another day. Another thing... I feel like I can't ask anyone flat out for their kidney. Who am I to demand the internal organs of another person? I feel like they should feel so strongly about donating that they come to me.
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I have Alport's Syndrome. My kidneys failed when I was 14 and I was on PD for five years before receiving a kidney transplant from my mother. That kidney failed in 2004 and I've been back on PD ever since. I am undergoing treatment for my high antibodies at Cedars-Sinai medical center. I had a kidney transplant on June 10, 2008. My boyfriend was the donor.
migaguiar
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Step back. Im full of toxins.

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« Reply #27 on: April 25, 2008, 02:59:19 PM »

I agree spacezombie. I could not ask anyone. It has to come from the individual.
I aslo have many relatives and think its a shame no one has offered. I could benefit for up to 20 years of health and they would lose ...what? almost nothing.

Probably would gain more than they lose because they would watch their dates and be more health concious. I know i would have died if i wasnt in such good shape when i got sick.

scaring is so minimal with the technique UCSF does. 3 scars equaling about an inch eeach.
and blood pressure pills POSSIBLY for up to 6 months at the most. Many dont need it after a few days.

Anyways, the debate continues......

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"All we are is dust in the wind," dude.
Bill and Ted's Excellent Adventure

http://ihaveesrd.blogspot.com/
Alports @ age 19 hemo in center 4 months
20 paternal kidney transplant 14 years
Present 1 1/2 yr PD
4 month in center
now 6 months @ home NxStage Daily
Soon Nocturnal!
okarol
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« Reply #28 on: April 25, 2008, 04:39:55 PM »

I personally don't think you should ask someone for their kidney. But I do think it wise to let everyone know that you are "hoping to find a living donor who is willing to be tested."
The more people who know will increase the chances that someone will offer.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Sunny
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Sunny

« Reply #29 on: April 26, 2008, 03:20:39 PM »

I agree,
I would NEVER ask anyone for a kidney. This is something a donor has to do of their own volition.
I just don't see how any good can arise from forcing people to donate, or guilting people into donating.
Now, if they had a system set up for payments, I could see how this might be beneficial to all parties.
We would just need to make sure people aren't being taken advantage of.

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Sunny, 49 year old female
 pre-dialysis with GoodPastures
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