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kidneyx3
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« on: May 01, 2008, 11:54:44 AM »

My name is Amanda and I would like to share my kidney story with you. I am 28 years old, married, have beautiful 8 year old twin boys, and am a NICU nurse. It all started at work when I noticed my ankles swelling. This went on for quite sometime, maybe 4 months. We were goofing around at work one night and someone took my blood pressure, it was 200/120. Wow, guess I'd better go to the doctor. He ordered some labs, so I had them done in our lab at work. A couple of weeks went by and I did not hear anything so I assumed no news is good news right, wrong! I am able to look up my own lab values since I had them done where I work, whoa, something was seriously wrong but our lab failed to notify my doctor or me. My BUN was in the 40's, Creatinine 8, and blood counts plummitted. After I discovered this I called my doctor and was immediately admitted to the hospital. They tried to reverse the damage but it was too late. I was told that I had 2% function and that I needed a kidney transplant, but in the meantime we'll place a catheter and start you on dialysis. :( WHAT! They told me they have no idea what caused them to fail, but when in doubt, call it autoimmune!
So, I went on DIE-lysis and felt like death for 7 months. Out of nowhere a friend from my church calls and tells me she's a match and would like to donate to me. I asked her what made her get tested. (This is awesome) She said I knew you were sick but didn't know why, one of your boys came up to me and said mom just can't play with us anymore. She then saw it in the church bulletin that I needed a kidney. She looked at her husband and said "Do you care if I go get tested because I know I'm a match and Know I will donate to her." Sure enough she was a match and we did the transplant and I feel GREAT! Total God thing, so those of you still waiting please don't give up hope!
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willieandwinnie
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« Reply #1 on: May 01, 2008, 12:04:12 PM »

 :welcomesign; kidneyx3. So glad you found us. Wonderful story with such a happy ending. When did you have your transplant? What a hero that lady is. Lots to read here and I'm sure you have plenty to say also. Again, Welcome and post often.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #2 on: May 01, 2008, 12:21:40 PM »

Welcome to our community! We are so glad that you decided to join us.  This site is for all facets of the renal challenge - on dialysis, pre-dialysis, transplant, loved one, family member, nurses, techs, doctors, anyone interested.  You will have lots to share.  Please go to Transplant Stories section and tell us your story there in a little more detail.  Tell us how you are doing now, what medications you are taking, etc. This is not just a website; it is a genuine family.  You will see what I mean if you hang around a bit.  so let us know how you are doing (using the General Discussion section, of course!)  :grouphug;

Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
monrein
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« Reply #3 on: May 01, 2008, 01:18:36 PM »

What a wonderfully heartwarming story, Mom of twin boys.  So glad you've regained your energy and I bet your family is too.  Welcome to IHD and I look forward to learning more about you and your experiences with ESRD.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
paris
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« Reply #4 on: May 01, 2008, 04:44:27 PM »

 :welcomesign;  What a heartwarming story.   Your donor is a true life hero.  Thanks for shaing and please post more. This is a great source for information and support.
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annabanana
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« Reply #5 on: May 01, 2008, 04:47:49 PM »

 :welcomesign; kidneyx3!
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caregiver to Randy:
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migaguiar
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Step back. Im full of toxins.

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« Reply #6 on: May 01, 2008, 04:51:25 PM »

Alright :yahoo; we got a nurse to burn!
No, im just kidding. It just shows it can happen to anyone.

Are you still working with babies? NICU is newborn, right?

 :welcomesign;
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"All we are is dust in the wind," dude.
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Alports @ age 19 hemo in center 4 months
20 paternal kidney transplant 14 years
Present 1 1/2 yr PD
4 month in center
now 6 months @ home NxStage Daily
Soon Nocturnal!
Ang
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« Reply #7 on: May 02, 2008, 02:44:18 AM »

hey  kidney  x3,

welcome ,just  goes  to  show  transplants  can  happen  anytime. :yahoo;
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live  life  to  the  full  and you won't  die  wondering
Sluff
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« Reply #8 on: May 02, 2008, 04:23:48 AM »

Welcome to ihatedialysis.com Kidneyx3,

You never know what God has in store for you and I'm glad that it worked out the way it did for you. It's good to hear stories such as these because it does give hope to those waiting for a transplant. Lots of information here to read. Feel free to post often it's great to hear from you.


Sluff/Admin
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Bryce
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Me running on 8th April 2008 (life goes on)

« Reply #9 on: May 02, 2008, 05:07:09 AM »

:welcomesign; What a great person your friend from church must be, not just to offer, but to have all the  tests done before she offered her kidney to you, I see it as a very big thing for someone to give away one of there kidneys, she must have a heart of gold.
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Ohio Buckeye
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« Reply #10 on: May 02, 2008, 08:30:10 AM »

 :welcomesign; Amanda to the IHD Family.
So happy that you got your transplant and are feeling good again.
What a wonderful friend you have there.
My best friend has said many times she wish she could give me a kidney but she is a diabetic.
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If I must do this to live, I must strive to live
while I am doing this.
kidneyx3
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« Reply #11 on: May 02, 2008, 08:59:16 PM »

Alright :yahoo; we got a nurse to burn!
No, im just kidding. It just shows it can happen to anyone.

Are you still working with babies? NICU is newborn, right?

 :welcomesign;
Yep, I couldn't give up on my babies. I'm so thankful that this nightmare didn't keep me from what I was born to do!
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kitkatz
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« Reply #12 on: June 13, 2008, 07:21:56 PM »

What a wonderful transplant story you have.  God does work in mysterious ways in our lives.  Welcome to IHD.com


kitkatz,moderator
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Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

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