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The Wife
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« Reply #50 on: May 04, 2008, 08:07:52 AM » |
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Ohhh Lola....I know how hard this is. Big hugs to you.  |
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okarol
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« Reply #51 on: May 04, 2008, 10:19:38 AM » |
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 Sorry lola
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monrein
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« Reply #52 on: May 04, 2008, 02:02:45 PM » |
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So sorry you're both going through this. Lord knows it's complex enough even when things go perfectly smoothly. |
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
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lola
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« Reply #53 on: May 08, 2008, 05:52:17 PM » |
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We just got home we went to the Transplant center and the news went from bad to worse. The Kidney Dr ordered repeat labs he wanted to see what they looked like from Saturday, well his creatine has gone from 5.4 to 6.9. He in the last few days has started to get itchy his mouth is super dry and now he can't poop, also his breath has gotten really weird smelling. The Dr said his kidney is done. Then the Fistula Dr came in to say the fistula is a no go so there putting him in the hospital Monday am and they are putting in a catherder and an upper arm fistula and he will have his first treatment Monday night and his 2nd Tuesday and if all goes well he can come home and begin his life on dialysis  . We are a little overwhelmed Otto told the Dr we need to take him out back and shoot him. |
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vandie
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« Reply #54 on: May 08, 2008, 05:58:42 PM » |
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Holy crap, Amy. I am so sorry. You have so much on your plate right now. Please know we are all behind you 100%.
Much love. . . .V
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Life is the journey, not the destination.
_________________________________________
I received a kidney transplant on August 4, 2007.
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flip
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« Reply #55 on: May 08, 2008, 06:30:04 PM » |
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Tell Otto to hang in there. Dialysis is a piece of cake and he will feel much better.
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That which does not kill me only makes me stronger - Neitzsche
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paris
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« Reply #56 on: May 08, 2008, 08:21:36 PM » |
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Lola, I just read your caringbridge site and was so sorry to hear how things are going. I know Otto is very disappointed. I'll keep praying for all of you during the next week. You have so much going on, and as the wife and mother, you are holding everyone together. I keep hoping a donor will step forward for Otto. Sending lots of love to your family |
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 It's not what you gather, but what you scatter that tells what kind of life you have lived. |
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lola
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« Reply #57 on: May 12, 2008, 06:20:03 PM » |
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Well I just got home, Otto had the cathider and upper arm fistula done today. They told me he will be ALOT more sore then most I guess when he woke up he went crazy and pulled out his breathing tube and tried to leave the hospital, it took many people to hold him done as he tried to fight them  . He is not doing dialysis tonight he has a little fever and now he's not coming home tommorrow they said maybe Wendsday or Thursday. |
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« Last Edit: May 12, 2008, 06:28:26 PM by boxman55 »
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lola
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« Reply #58 on: May 12, 2008, 06:21:23 PM » |
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PS sorry I forgot to do spell check and I didn't even spell Otto correctly  |
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Sluff
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« Reply #59 on: May 12, 2008, 06:26:54 PM » |
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Sorry to hear about his reaction but he is scared and he has a right to feel that way. Hopefully he will heal quickly and everything will work well and he will feel better soon. I will keep your family in my prayers. |
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flip
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« Reply #62 on: May 12, 2008, 07:18:30 PM » |
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Keep the pain pills in him. I still vividly remember the terrible pain I had after my fistula surgery. It lasted about a week.
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That which does not kill me only makes me stronger - Neitzsche
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monrein
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« Reply #63 on: May 13, 2008, 04:23:29 AM » |
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Just want to say I'm thinking of you Lola and Otto.
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Logged
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
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lola
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« Reply #64 on: May 14, 2008, 04:46:52 AM » |
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paris
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« Reply #65 on: May 14, 2008, 07:26:54 AM » |
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We love you and Otto, Lola! You have gone through a lot in the past weeks. Hoping all goes well now. |
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It's not what you gather, but what you scatter that tells what kind of life you have lived. |
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okarol
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« Reply #66 on: May 14, 2008, 08:13:59 AM » |
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I am happy he's improved and hope things get better each day lola. Buzz is good! Yay!  Take care - we love you guys! |
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thegrammalady
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« Reply #67 on: May 14, 2008, 08:30:28 AM » |
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so glad to hear otto is feeling a bit better. they redid my fistula in january so i know exactly how he feels. it will keep getting better. just keep the pain pills coming (something i had to learn, i hate taking them) he will probably find dialysis isn't as bad as he remembers, especially when he starts feeling better. good luck on the transplant hunt.
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Logged
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s
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If you can smile when things go wrong, you have someone in mind to blame.
Lead me not into temptation, I can find it myself.
Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.
Some mistakes are too much fun to only make once.
Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
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Ohio Buckeye
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« Reply #68 on: May 14, 2008, 09:23:52 AM » |
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hope and pray things settle down for you all now. |
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If I must do this to live, I must strive to live
while I am doing this.
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Psim
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« Reply #69 on: May 14, 2008, 11:08:18 AM » |
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I'm so glad things are feeling a bit better for Otto. What a hard time he's been having. Praying that things will continue to look up. |
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lola
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« Reply #70 on: May 14, 2008, 02:01:21 PM » |
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Otto's Home   he had his 1st true dialysis today and everything went pretty well. He's getting so skinny makes me think I should go on a diet(I said think not do hehehe). xoxoxo Amy |
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monrein
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« Reply #71 on: May 14, 2008, 02:48:28 PM » |
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So glad to hear that Lola. Continued success.  |
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Logged
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
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I Hate Dialysis Message Board
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