Willow87
Newbie
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Posts: 3
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« on: April 27, 2008, 04:44:10 PM » |
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Hi Everyone
I definately belong here! I've been ESRD for 19 years. I have 18% function. My neph had me go to dialysis education and I decided that nocturnal dialysis is the best fit for me. I have a very difficult time sleeping cause it feels like I have to stretch my limbs all the time. I try to get up and walk, but, I'm so lightheaded I find myself right back on the bed. I'm not looking forward to dialysis but I'm not acting as if it is a nail in my coffin either. I have a good attitude most days, pity partys other days and gratitude most all the time. Anyway, thats me in a nutshell, concerning my kidney disease.
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monrein
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« Reply #1 on: April 27, 2008, 05:14:39 PM » |
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 Willow. Glad you found us. Look forward to learning more of your story.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
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flip
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« Reply #2 on: April 27, 2008, 05:19:50 PM » |
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Welcome, Willow. I've heard from some people that they take a sleeping pill before they hook up at night. |
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That which does not kill me only makes me stronger - Neitzsche
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paris
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« Reply #3 on: April 27, 2008, 05:35:34 PM » |
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willow, glad you found us. Loved your intro and your attitude. This is a great place for information and for support. There are some here that do noctural and would be glad to share their experiences. Looking forward to hearing more from you! EDITED: Fixed welcome sign icon error - Sluff/Admin
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« Last Edit: April 27, 2008, 08:34:21 PM by Sluff »
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 It's not what you gather, but what you scatter that tells what kind of life you have lived. |
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kellyt
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« Reply #4 on: April 27, 2008, 05:36:53 PM » |
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1993 diagnosed with glomerulonephritis. Oct 41, 2007 - Got fistula placed. Feb 13, 2008 - Activated on "the list". Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta. Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  |
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Ohio Buckeye
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« Reply #5 on: April 27, 2008, 06:12:59 PM » |
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Willow to the IHD Family!
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If I must do this to live, I must strive to live
while I am doing this.
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Ang
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« Reply #6 on: April 27, 2008, 07:29:26 PM » |
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willow EDITED: Fixed welcome sign icon error - Sluff/Admin
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« Last Edit: April 27, 2008, 08:35:09 PM by Sluff »
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live life to the full and you won't die wondering
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Sluff
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« Reply #7 on: April 27, 2008, 08:37:54 PM » |
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Welcome Willow to ihatedialysis.com,
It's great to have you here and I hope we can make your transition to dialysis much easier. Knowledge is power and a positive attitude is great to have. Good luck please feel free to read and post often. Don't be afraid to ask questions, the members here have helped each other tremendously with their knowledge.
Sluff/Admin
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bolta72
Sr. Member
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Gender: 
Posts: 832
my best friend
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« Reply #8 on: April 28, 2008, 05:05:23 AM » |
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gotta do what I gotta do.. 2 yrs in ctr hemo
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willieandwinnie
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« Reply #9 on: April 28, 2008, 05:07:45 AM » |
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Willow. You have found a wonderful group of people and you'll fit right in around here. 
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"I know there's nothing to it, but I want to know what it is there's nothing to"
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Bryce
Newbie
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Gender:
Posts: 33
Me running on 8th April 2008 (life goes on)
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« Reply #10 on: April 28, 2008, 05:39:46 AM » |
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to the site, sure the site will be very informative for you |
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lruffner
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« Reply #11 on: April 28, 2008, 02:51:51 PM » |
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Welcome Willow.  |
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Diagnosed w/ primary fsgs- June 2007
Getting ready to begin transplant work-up at IU and Jewish-9/08
"Live for Today"
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kimcanada
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« Reply #12 on: April 28, 2008, 03:56:53 PM » |
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Hi Willow welcome  |
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Bajanne
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« Reply #13 on: April 28, 2008, 04:07:00 PM » |
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Welcome to our community! I am so glad you decided to join us. I love the realistic attitude you have. That is exactly how it is with us, dealing with dialysis. This site is super! I was helped a great deal. There is lots of interaction on this site. We have even become a real family. So keep reading (there is lots to read) and keep posting. We need to know how you are doing. Not nosy, just family!!  Bajanne, Moderator |
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith" I LOVE my IHD family! |
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annabanana
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« Reply #14 on: April 29, 2008, 08:15:57 AM » |
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Willow!
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caregiver to Randy:
HepC and stage 4 ckd
1 kidney removed (cancer)Aug07
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Willow87
Newbie
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Posts: 3
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« Reply #15 on: April 29, 2008, 06:41:04 PM » |
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Thanks for the awesome welcome everyone!
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RichardMEL
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« Reply #16 on: May 01, 2008, 06:35:08 AM » |
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welcome aboard Willow87 You're not a cute witch are you by any chance? If so know any potions to fix kidneys? he he |
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3/1993: Diagnosed with Kidney Failure (FSGS) 25/7/2006: Started hemo 3x/week 5 hour sessions  27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
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KR Cincy
Sr. Member
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Gender:
Posts: 930
Home hemodialysis since May 07
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« Reply #17 on: May 01, 2008, 07:43:31 AM » |
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Hi Willow...welcome to IHD...very very glad you found us!!
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Not giving up...thanks to Susan.
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kidneyx3
Newbie
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Posts: 16
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« Reply #18 on: May 01, 2008, 12:05:45 PM » |
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Hi Willow! I know exactly how you feel. I did nocturnal and your sleep is badly interrupted. I took Ambien and it seemed to help. I did prefer nocturnal though because it didn't take the fluid off as fast and plus it was at nightime so you didn't feel like you were missing out on as much! Best Wishes
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kidley
Newbie
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Posts: 19
Here we are at the vampire prom.
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« Reply #19 on: May 01, 2008, 12:36:42 PM » |
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Hi, Willow. Welcome! This site can give you a laugh, reassurance, information, and tolerance when you need to rant. I'm looking forward to hearing more from you.
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oleboy
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« Reply #20 on: May 04, 2008, 12:05:39 PM » |
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Glad your here.
EDITED:Fixed smiley tag error-kitkatz,moderator
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« Last Edit: June 13, 2008, 07:28:05 PM by kitkatz »
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'hold fast your dreams for if dreams die life is a broken winged bird that connot fly.'
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kitkatz
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« Reply #21 on: June 13, 2008, 07:29:02 PM » |
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Welcome Willow! This site is amazing. There is a lot of things to do and people to chat with from all over. Enjoy your stay!
kitkatz,moderator
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lifenotonthelist.com Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5 Remember your present situation is not your final destination. Take it one day, one hour, one minute, one second at a time. "If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1 |
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