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Hi!, my name is John and I have ARF...Whats in store for me?
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Topic: Hi!, my name is John and I have ARF...Whats in store for me? (Read 4291 times)
Yankee Bandit
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Hi!, my name is John and I have ARF...Whats in store for me?
«
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March 16, 2008, 08:10:11 PM »
Hi all. Been reading this board and have learned alot and have a new empathy for those who have Kidney illness and all other illnesses.
Having had no problems til the age of 47 due to untreated high blood pressure, i thought I was Superman, and a lil high BP wasnt going to stop me. Well It seems it has taken its toll and beaten the hell out of my Kidneys! I put my self in the Hospital last week after 2 weeks of unexplained nausea and vomiting. Couldnt eat or dring a thing! Thought it was due to acid reflux brought on from cessation of smoking.
Turns out my BP was 289 over something and I had acute renal failure. Spent 5 dys in the Hospital got my BP down to 130/76 and was told my Creatine level was 7.1.
Had to check out before biopsy to take care of bussiness.
Feeling better now, no body odor like before( strong garlicky ammonia like smell.)
Urine output is ok and headaches are gone, breath is much better,eating ok.
Urine is still very foamy, acid in stomach not too bad.
What should I do?
Is there really such a thing as temorary dialasis?
Or am I destined for continous treatment?
Would appreciate any imput.
Thanks!
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Sluff
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Re: Hi!, my name is John and I have ARF...Whats in store for me?
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Reply #1 on:
March 16, 2008, 08:14:49 PM »
Hello John and Welcome to Ihatedialysis.com,
I'm not sure I can answer all your questions but if you read through the posts here you most likely will find the answers or opinions. Thanks for joining IHD and I hope you find much knowledge and many friends.
Sluff/Admin
«
Last Edit: March 16, 2008, 08:17:43 PM by Sluff
»
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paris
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Re: Hi!, my name is John and I have ARF...Whats in store for me?
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Reply #2 on:
March 16, 2008, 08:15:13 PM »
Glad you found us. Hopefully someone will have some answers for you. There is alot of knowledge here and everyone is willing to help. Have you scheduled the biopsy yet? It may help with some answers. Find a good nephrologist that you like and trust. Keep asking questions and then ask again. Do lots of research--we all say here that knowledge is power. We are here for you
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
kitkatz
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Re: Hi!, my name is John and I have ARF...Whats in store for me?
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Reply #3 on:
March 16, 2008, 08:20:59 PM »
Welcome to the boards! A lot of your questions can be answered by reading the site's questions and answers. Noone can tell you except your doctors whether you will be on dialysis for good or not. Be well and be careful.
kitkatz-moderator
«
Last Edit: March 16, 2008, 08:25:45 PM by kitkatz
»
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lifenotonthelist.com
Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5
Remember your present situation is not your final destination.
Take it one day, one hour, one minute, one second at a time.
"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Yankee Bandit
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Re: Hi!, my name is John and I have ARF...Whats in store for me?
«
Reply #4 on:
March 16, 2008, 08:35:00 PM »
Thanks! I feel very wellcome allready!
And I am reading alot of post and getting first hand knowledge of the "illness" and its ways.
But I believe my doctor told me my creatine was 6.9 when I eneterd and 7.1 after 3 days, I haven seen any levels that high here thus far.
I am not "anemic" at least do not show the classic symptoms and my urine output is just alil less than usual.
Im drinking alot of berry juice and water no salt to speak of.
I feel pretty good besides an upset stomach which seem to be find when i take Tums.
Does foamy urine indicate definitively that i have kidney failure?
And the fact I lift weights account for high creatine levels?
I knowi need to get the biopsy sooner than later.
Will that be definitive?
Oh, and if my Kidneys are working to some degree would that lessen the amount of treatment?
And kudos to the creator of this site! Great design!
And thanks again for the wonderfull wellcome!!!
«
Last Edit: March 16, 2008, 08:41:40 PM by Yankee Bandit
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Sluff
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Re: Hi!, my name is John and I have ARF...Whats in store for me?
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Reply #5 on:
March 16, 2008, 09:24:06 PM »
Foamy urine is a sign of protein in your urine. I usually get a lot of foam when I urinate, and I have considerable protein in mine.
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okarol
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Re: Hi!, my name is John and I have ARF...Whats in store for me?
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Reply #6 on:
March 16, 2008, 11:19:57 PM »
Hi John,
Welcome - I hope you find some great support here and can also get some questions answered. This is the introduction area so please post whatever questions you have in the subject where they will get read. You can also use the search feature to see if there's a related thread. It's a lot to learn about when you're diagnosed basically overnight! I hope you hook up with a good nephrologist that will help guide you through the process. Best wishes to you!
okarol/admin
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Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
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oleboy
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Re: Hi!, my name is John and I have ARF...Whats in store for me?
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Reply #7 on:
March 17, 2008, 03:38:43 AM »
John .
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Romona
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Re: Hi!, my name is John and I have ARF...Whats in store for me?
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March 17, 2008, 04:18:57 AM »
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annabanana
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Re: Hi!, my name is John and I have ARF...Whats in store for me?
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Reply #9 on:
March 17, 2008, 04:24:28 AM »
John! You will find tremendous support and info here.
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willieandwinnie
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Re: Hi!, my name is John and I have ARF...Whats in store for me?
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Reply #10 on:
March 17, 2008, 04:49:52 AM »
Yankee Bandit (John). This is a great group and you'll find lots of answers here. Again,
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bolta72
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Re: Hi!, my name is John and I have ARF...Whats in store for me?
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Reply #11 on:
March 17, 2008, 04:53:42 AM »
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gotta do what I gotta do.. 2 yrs in ctr hemo
kidney4traci
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Re: Hi!, my name is John and I have ARF...Whats in store for me?
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March 17, 2008, 05:59:43 AM »
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Married - three children.
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11/04 Hemo in clinic
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2/3/09 - Transplant from an angel of a friend!!!
rookiegirl
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Re: Hi!, my name is John and I have ARF...Whats in store for me?
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Reply #13 on:
March 17, 2008, 09:01:58 AM »
John and
to IHD.
I'm really surprise you are not on dialysis with a creatinine of 7.1? My neph started me on Peritoneal Dialysis (PD) when I reached 5.0 I have been on PD since Oct 2007.
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
MyssAnne
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Re: Hi!, my name is John and I have ARF...Whats in store for me?
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Reply #14 on:
March 17, 2008, 09:18:16 AM »
Hi John!! I can't answer any of the question, but hopefully we'll get more of the pros in here who can!!
Anne
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paddbear0000
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Re: Hi!, my name is John and I have ARF...Whats in store for me?
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March 17, 2008, 11:56:51 AM »
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Re: Hi!, my name is John and I have ARF...Whats in store for me?
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Reply #16 on:
March 17, 2008, 02:38:06 PM »
Welcome to our community! So glad you decided to join us. This site can be a tremendous help to anyone facing this renal challenge. So keep reading and keep posting, so we will know how things are with you. I have heard of temporary dialysis for those with AKD. My caring thoughts and prayer are with you.
Bajanne, Moderator
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Adam_W
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Re: Hi!, my name is John and I have ARF...Whats in store for me?
«
Reply #17 on:
March 17, 2008, 06:42:18 PM »
Wow! BP 298 over something? When I first discovered I had high BP and kidney failure, my BP got as high as 220/140, and that put me in the hospital for two weeks so close to death I could smell the grim reaper's breath. Good luck with your situation.
Adam
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.
"Don't live for dialysis, use dialysis to LIVE"
mysty
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Re: Hi!, my name is John and I have ARF...Whats in store for me?
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Reply #18 on:
March 17, 2008, 06:57:00 PM »
John.. glad you found the site.. You will find a tremendous amount of support and love here..
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Re: Hi!, my name is John and I have ARF...Whats in store for me?
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Reply #19 on:
March 17, 2008, 08:37:51 PM »
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Yankee Bandit
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Re: Hi!, my name is John and I have ARF...Whats in store for me?
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Reply #20 on:
March 18, 2008, 01:05:15 AM »
WOW! thanks again for the wonderfull and warm greeting! I guess if I do wind up on Dialysis I will have plenty of good people to get me through the process. And that is a great comfort.Thank you all again for the warm welcome!
Im feeling much better mentally and physically but I still feel that Dialysis is in my future.
But even that does not seem so gloomy a future now.
Be visiting here wether "I hate Dialyisis or not".. LOL!
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lola
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Re: Hi!, my name is John and I have ARF...Whats in store for me?
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March 18, 2008, 09:08:42 AM »
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keefer51
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Re: Hi!, my name is John and I have ARF...Whats in store for me?
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Reply #22 on:
March 18, 2008, 01:33:45 PM »
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i am a 51 year old male on dialysis for 3 years now. This is my second time. My brother donated a kidney to me about 13 years ago. I found this site on another site. I had to laugh when i saw what it was called. I hope to meet people from all over to talk about dialysis.
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