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Author Topic: Hi, from South Carolina  (Read 2137 times)
Shihtzulover
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« on: January 14, 2009, 09:07:58 PM »

Myhusband was diagnosed with interstitial nephritus in 1985.  I kept him on a pretty strict diet for years.  He had a heart attack in 2003, the doctors said it was related to the kidney disease.  On his birthday in February of 2008, he started dialysis.

I have handled things pretty well until this past November when his access became infected and he ended up in the hospital with blood poisoning in critical condition.  He is now on 24 hour a day IV drip because the infection was so bad that it invaded the spinal column and his heart.  Now I am having a really hard time coping.

I, myself, suffer from severe clinical depression.  I wish there was a live chat group or some kind of support group for spouses.  This whole thing has really gotten me down.

Is this the right place for me to ask for help?
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Barbie
(Spouse of a patient)
Wenchie58
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Always carrying the big silly grin!

« Reply #1 on: January 14, 2009, 09:19:58 PM »

Barbie..

   Welcome to IHD.  We have an entire section here for care givers.  And you will never meet a more helpful bunch than the members here.  This is a place where you can talk, rant, cry and ask questions.  You have a lot on your plate.

God Bless.
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

WWW
« Reply #2 on: January 14, 2009, 11:03:32 PM »

Welcome to our community, Barbie.  I am really sorry to hear all that you have to cope with.  Some people really are given great challenges in this life.  But I continue to be impressed with the strength of the human spirit.  This is a great place for you to be.  As Wenchie58 said, we have a section for caregivers where you are free to vent and receive real support from others who are going through the same experiences as you.  In fact, you are now part of our IHD family  :grouphug;  So keep reading and keep posting.  Let us know how your husband is doing (and how you are doing too!).
Looking forward to hearing from you  :flower;



Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Joe Paul
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« Reply #3 on: January 14, 2009, 11:12:20 PM »

Welcome Barbie, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
willieandwinnie
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« Reply #4 on: January 15, 2009, 03:35:43 AM »

:welcomesign; Barbie. You found a great place for information and support. There are a lot of caregivers here (I am one to my husband who has been ill since 2001). Read back through some of the older threads as there is all kinds of information there and please come and rant away when you need too.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
2_DallasCowboys
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« Reply #5 on: January 15, 2009, 05:00:05 AM »

Hi, Barbie,

First let me say welcome.  Then, let me
mention your screen name  Shihtzulover!
I also love Shih Tzu, we have owned them
since 1989.  I also was involved in Shih Tzu
rescue - at one time we had three S/T -
We now have Rocky, aka Mr Rocco, who
we love.
My husband also had to have triple bypass
and rite afterward his both kidneys failed.  He
was hospitalized many, many times in 06.  I can
feel your pain.
Please know this is the most wonderful family of
friends here in ref to kidney disease, and also
is a wealth of knowledge, which when you are a
caregiver is power.
Welcome, and God Bless

Anne and Les
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boxman55
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« Reply #6 on: January 15, 2009, 06:44:37 AM »

Hi Barbie, So glad you found us. Yes you are in the right place for kidney related information and support. I look forward to your posts and know that we are here to help


Boxman,Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
monrein
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Might as well smile

« Reply #7 on: January 15, 2009, 02:12:06 PM »

 :welcomesign; to this site.  So sorry to hear of your husband's health issues and being a caregiver is not a real picnic either.  We have both patients and caregivers here and together our members have vast experience with all aspects of ESRD.  Post often.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
G-Ma
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« Reply #8 on: January 15, 2009, 02:20:22 PM »

 :welcomesign;  Good choice..this is probably the best site of people on the web for caregivers as well as patients.  I wish I had known about this when my husband was ill.
Ann
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
jessup
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Gemma - the tucker monster

« Reply #9 on: January 15, 2009, 02:29:48 PM »

G'day and  :welcomesign;
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MandaMe1986
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« Reply #10 on: January 15, 2009, 02:42:28 PM »

Hello  :welcomesign;
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
Tinah1968
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ME

« Reply #11 on: January 16, 2009, 07:53:05 AM »

 :welcomesign; :usaflag;
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Tina
Fistula Oct 2007
Started Dialysis May 22, 2009
Normie
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Ellie

« Reply #12 on: January 21, 2009, 06:01:04 PM »

 :welcomesign; Barbie.
You are in the right place for support and information.  We even have that chat room you are looking for.  Come on in and chat with us.
Normie

PS  My daughter has two Shih Tzus and my son has one.
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Normie

Kidney damage 4/22/07

Predialysis
paris
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« Reply #13 on: January 21, 2009, 06:56:46 PM »

 :welcomesign;  We are glad you found us.  There are many caregivers here and they understand your pain.  Please post often and look in the chat room to see if anyone is there.  It gets busy late at night.  There is lots of good people here that will be here to support you.  Come and share. A burdon is always lighter when you have many to carry it.    :grouphug;




paris, Moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
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