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Dialysis: General Discussion
Should I call, need advice
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Topic: Should I call, need advice (Read 2784 times)
boxman55
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Should I call, need advice
«
on:
February 04, 2008, 09:42:22 AM »
It has been four months exactly since I received a letter from the State of WI Dept. of Health and Family Services stating they are reviewing my disability claim for ESRD. I have not received anything or heard from them since. I've have been told it could take up to six months to finish the process so should I wait or bug them to see what's up...Boxman
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
Joe Paul
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Re: Should I call, need advice
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Reply #1 on:
February 04, 2008, 09:49:30 AM »
I would call, let them know you need an answer.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
paris
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Re: Should I call, need advice
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Reply #2 on:
February 04, 2008, 09:55:59 AM »
Call them. It couldn't hurt. Light a fire under them.
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NVRWKN
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Re: Should I call, need advice
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Reply #3 on:
February 04, 2008, 09:59:23 AM »
Give them a call. It took me almost two years. Also contact your congressman. I did and it seemed to speed things up. Good Luck!
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Never Weaken
CW
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Re: Should I call, need advice
«
Reply #4 on:
February 04, 2008, 10:21:37 AM »
Boxman I work for a large social service agency and we administer the medicaid component (called medi-cal) of healthcare as well as a plethora of other services for the people in our county. We may serve a different purpose than your dept of HFS but we are a large public system also.
My advice is this... always stay in their face and ask for an explanation about everything and do it in writing and by calling. Find out who is responsible for your case and get an address and a number and after you call .. WRITE also!
You do have a right to know the status of your benefits it is a matter that has a great impact on your well being. They are not doing you a favor by giving you info about your benefits - they would not be employed if people like you did not come in for benefits.
«
Last Edit: February 04, 2008, 10:23:58 AM by CW
»
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*Common Sense is an uncommon thing
20 years navigating ESRD
Had a transplant but it rejected
To all of my kidney brothers and sisters who have left too soon -
Where you used to be, there is a hole in the world, which I find myself constantly walking around in the daytime, and falling in at night. I miss you like hell. ~Edna St Vincent Millay
livecam
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Re: Should I call, need advice
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Reply #5 on:
February 04, 2008, 10:26:54 AM »
Just do it for the peace of mind it will give you. When it comes to your health and income you can't let yourself be left in limbo. The same applies to your transplant center when listed. Keeping in touch lets them know you are serious and doesn't hurt your outlook on things either.
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okarol
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Re: Should I call, need advice
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Reply #6 on:
February 04, 2008, 01:48:57 PM »
I agree that you should follow up your call with a letter. Many agencies are required to act on written correspondence in a specific time period. Be sure to include your SS number and dates of previous contact. Give all your contact info. If it were me I would mail it with a signature required on delivery as this will give you proof of making contact. Good luck!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story --->
https://www.facebook.com/WantedKidneyDonor
Please watch her video:
http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock!
http://www.livingdonorsonline.org
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News video:
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boxman55
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Re: Should I call, need advice
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Reply #7 on:
February 05, 2008, 06:04:31 AM »
Thanks CW and everyone else for your imput. I have called and only could leaves a message so far. That was yesterday. I will try again today...Box
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
boxman55
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Re: Should I call, need advice
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Reply #8 on:
February 05, 2008, 06:45:29 AM »
Well I got a hold of someone at the State office and they told me a decision on my account was made on 10/24/07 and sent back to Social Sec. She said I would have to get the results from them. She could not tell me if I was approved. I asked her why I never received any mailing and she had no clue. So next phone call was to Social Security, I was on hold for less then 2 minutes and then Alicia picked up. She said I have been approved and can expect my February '08 check on March 19th. I then asked her why no notification and she showed none was ever sent and didn't know why but, is going to get it out today. All right then, I feel better, checks in the mail...Box
FYI it took 5-1/2 months for the first check to be mailed.
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
Joe Paul
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Re: Should I call, need advice
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Reply #9 on:
February 05, 2008, 08:07:33 AM »
WOW, thats great Box
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Sunny
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Sunny
Re: Should I call, need advice
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Reply #10 on:
February 05, 2008, 02:57:01 PM »
Sounds like good news for you and I'm glad you called to get the status. Bureaucracy can be so slow sometimes.
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Sunny, 49 year old female
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okarol
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Re: Should I call, need advice
«
Reply #11 on:
February 05, 2008, 04:22:44 PM »
Jenna's first check was slow to arrive, however I believe it was retroactive to her disability date so she got more than one month's amount.
Logged
Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story --->
https://www.facebook.com/WantedKidneyDonor
Please watch her video:
http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock!
http://www.livingdonorsonline.org
-
News video:
http://www.youtube.com/watch?v=J-7KvgQDWpU
Sluff
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Re: Should I call, need advice
«
Reply #12 on:
February 05, 2008, 05:31:17 PM »
tell them you'll send big bad Sluff if you don't get answers..ha ha ha ..I'd call.
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paris
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Re: Should I call, need advice
«
Reply #13 on:
February 05, 2008, 06:29:52 PM »
Boxman, I am so glad you got the right answer. Mine went through without a hitch and before the first payment came, I got a check for backpay. They back dated my disability to when I was eligable, which was more than a year before I applied. I am glad the check is in the mail
It is good when the system works
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
CW
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Re: Should I call, need advice
«
Reply #14 on:
February 05, 2008, 07:10:59 PM »
Great Box!
I am not surprised by any of the news you got. I am surprised that you got someone from Soc Sec on the phone in under 3 minutes
they drive me friggin batty
. Well it seems you are lucky and it took me six months to get any benefits from the SSDI program back in 98 when I was first diagnosed. I did not know to bug their ass's back then. It is a huge system with undertrained workers and a lot of clients I am surprised they get anything done.
Good job! they count on most people not asking about their benefits - don't be one of those
.
CW
Logged
*Common Sense is an uncommon thing
20 years navigating ESRD
Had a transplant but it rejected
To all of my kidney brothers and sisters who have left too soon -
Where you used to be, there is a hole in the world, which I find myself constantly walking around in the daytime, and falling in at night. I miss you like hell. ~Edna St Vincent Millay
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