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Greetings from Maine
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Topic: Greetings from Maine (Read 4017 times)
librajenn2
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Greetings from Maine
«
on:
February 19, 2008, 11:20:31 AM »
Hi Everyone - my name is Jenn, I am 25 and live in Maine. I am not on dialysis, and not really even close to it yet, but have been recently diagnosed with Stage 2 CKD. My Mom (who is also on this site, SandyB) recently was on dialysis, had a kidney transplant, and raves about this site so I've been lurking for awhile. I have a kidney biopsy scheduled for next Wednesday (they are fairly certain this is hereditary, but they were unable to gain any information from my Mom's biopsy). That's my story for now - but I wanted to say I am sorry for the loss of one of your (our!) members. My Mom was really sad to hear of it, and it reminds me of how amazing friendships can form through a screen
That's all from me.... (for now!) Have a good day, everyone!
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"Live with intention, walk to the edge, listen hard. Practice wellness, play with abandon, laugh. Choose with no regret, continue to learn, appreciate your friends. Do what you love... live as if this is all there is."
~mary anne radmacher
willieandwinnie
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Re: Greetings from Maine
«
Reply #1 on:
February 19, 2008, 11:26:01 AM »
librajenn2. Glad you finally came out of lurking. Looking forward to hearing more from you and good luck next Wednesday. Let us know how it goes. Take Care.
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"I know there's nothing to it, but I want to know what it is there's nothing to"
petey
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Re: Greetings from Maine
«
Reply #2 on:
February 19, 2008, 11:44:58 AM »
Jenn! Glad you came out of the shadows and into the sunshine of IHD.
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Sluff
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Re: Greetings from Maine
«
Reply #3 on:
February 19, 2008, 12:49:43 PM »
Welcome to our community librajen,
I hope you stay stage II for a long time. At any rate I appreciate you taking an interest in ihatedialysis.com. There is lots of information at your finger tips. I hate the biopsy on the native kidneys, I experienced pain during mine but don't want to scare you because others have had it done with no pain. Please let us know how things turn out.
Sluff/ Admin
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Bajanne
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Goofynina and Epoman - Gone But Not Forgotten
Re: Greetings from Maine
«
Reply #4 on:
February 19, 2008, 12:56:12 PM »
Welcome to our community, Jenn! We are glad you chose to join us. I know that this site can only be added artillery in our fight against the renal challenge. I hope you will continue to post and let us know how you are doing. This is a wonderful caring and sharing family, so take advantage of all the site has to offer.
Bajanne, Moderator
«
Last Edit: February 19, 2008, 01:03:59 PM by bajanne2000
»
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"
I LOVE my IHD family!
Joe Paul
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Re: Greetings from Maine
«
Reply #5 on:
February 19, 2008, 01:18:10 PM »
Welcome librajenn2, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
oswald
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Re: Greetings from Maine
«
Reply #6 on:
February 19, 2008, 01:20:54 PM »
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ESRD 11/95
1st Transplant 7/1996 (failed; Nephrectomy 12/1996)
2nd Transplant 3/1999 (lasted 6 years)
3rd Transplant 5/2007 (lasted 4 years)
Romona
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Re: Greetings from Maine
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Reply #7 on:
February 19, 2008, 02:11:02 PM »
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MyssAnne
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Re: Greetings from Maine
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Reply #8 on:
February 19, 2008, 02:15:10 PM »
Welcome, Jenn!!! I so hope you have no pain during the biopsy! Ick. I was lucky, I never had one.
I also hope you stay in stage 2 for a long time! I was fairly successful, for a few years, in holding
off on dialysis. I'm now on the cycler (pd), which I really like, much more so than hemo!
Anne
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Slywalker
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Re: Greetings from Maine
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Reply #9 on:
February 19, 2008, 04:23:28 PM »
Jenn -
Welcome to the board. I'll be by your side for the biopsy and I too hope that you stay in Stage II for the next 30 to 50 years.
Love you
MOM (aka Sandyb or Slywalker)
P.S. Sorry you inherited the bad part of my DNA.
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livecam
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World's Best Beach..Lanikai..Oahu, Hawaii
Re: Greetings from Maine
«
Reply #10 on:
February 19, 2008, 06:20:48 PM »
Welcome to the site Jenn. You'll find lots of good information and people here. Its good to have you!
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rookiegirl
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Re: Greetings from Maine
«
Reply #11 on:
February 19, 2008, 07:09:41 PM »
to the family. I pray your biopsy goes well. Keep us posted on how you are doing.
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
kitkatz
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Re: Greetings from Maine
«
Reply #12 on:
February 19, 2008, 10:25:49 PM »
Welcome to the IHD.com family. I hope you biopsy turns out all right. Your Mom should be a great help to you as you begin your kidney disease journey.
Kitkatz,moderator
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lifenotonthelist.com
Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5
Remember your present situation is not your final destination.
Take it one day, one hour, one minute, one second at a time.
"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Wattle
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Re: Greetings from Maine
«
Reply #13 on:
February 20, 2008, 12:07:54 AM »
Welcome
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
Laurie
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May 13, 2008
Re: Greetings from Maine
«
Reply #14 on:
February 20, 2008, 05:48:44 AM »
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March 7, 2001 - Complications after C-section caused kidney failure
March 2001 - December 2001 - Hemo Dialysis
December 2001 - Kidney function improved dialysis no longer necessary
October 2006 - Kidney function started to decline
May 9, 2007 - Listed at Baylor Dallas and Fort Worth
October 12, 2007 - Started PD
May 13, 2008 - Kidney Transplant from a deceased donor
Psim
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Re: Greetings from Maine
«
Reply #15 on:
February 20, 2008, 08:52:00 AM »
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KR Cincy
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Home hemodialysis since May 07
Re: Greetings from Maine
«
Reply #16 on:
February 20, 2008, 10:25:31 AM »
Jenn!
We're glad you came out of lurking to introduce yourself...here's hoping for a long run of stage 2 :-)
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Not giving up...thanks to Susan.
ODAT
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Nala - Mom's Cat
Re: Greetings from Maine
«
Reply #17 on:
February 20, 2008, 11:58:12 AM »
What a nice musical introduction! You'll find lots of information and support here. Saying prayers your biopsy goes well.
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As is your sort of mind, so is your sort of search: you will find what you desire.
rose1999
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Re: Greetings from Maine
«
Reply #18 on:
February 20, 2008, 12:20:19 PM »
from the UK
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kimcanada
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Re: Greetings from Maine
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Reply #19 on:
February 20, 2008, 04:52:52 PM »
I am on the east coast also.
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Ang
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Re: Greetings from Maine
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Reply #20 on:
February 20, 2008, 08:23:03 PM »
aboard
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live life to the full and you won't die wondering
kellyt
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Re: Greetings from Maine
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Reply #21 on:
February 21, 2008, 02:22:51 AM »
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!
Ohio Buckeye
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Re: Greetings from Maine
«
Reply #22 on:
February 21, 2008, 11:36:59 AM »
Welcome to the IHD Family.
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If I must do this to live, I must strive to live
while I am doing this.
Sunny
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Sunny
Re: Greetings from Maine
«
Reply #23 on:
February 21, 2008, 11:42:17 AM »
Welcome and good luck with the biopsy. Hope all goes well for you.
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Sunny, 49 year old female
pre-dialysis with GoodPastures
keefer51
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Re: Greetings from Maine
«
Reply #24 on:
February 29, 2008, 02:07:11 AM »
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i am a 51 year old male on dialysis for 3 years now. This is my second time. My brother donated a kidney to me about 13 years ago. I found this site on another site. I had to laugh when i saw what it was called. I hope to meet people from all over to talk about dialysis.
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