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Author Topic: I ended up in the ER this evening  (Read 4897 times)
Adam_W
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Me with Baron von Fresenius
« on: February 07, 2008, 08:01:48 PM »
At the end of my treatment today I started having bad chest pains and I was having trouble breathing. My dad took me off the machine and immediately took me to the ER. By the time we got there I had lost almost all my strength, and couldn't even hold my head up. My dad went in and got a wheelchair and helped me into it. Because there was severe chest pains involved, they took me back immediately and the doctor saw me right away. I had an EKG and chest x-ray, and I had full labs drawn. By the time all that was done, I was starting to feel a little better, although I still had very little strength. All the test results came back negative. There is nothing wrong with my heart (thank God), and they released me with EXPLICIT instructions to come back immediately if this happens again. My nurse and I are now speculating that I may actually be taking too much fluid off, even though I usually feel ok at my dry weight of 60 kilos. She suggested that the chest pain may have actually been simply cramping. When I cramp on dialysis, it's usually in my legs or my hands, but I know that cramping can happen anywhere. The shortness of breath may have been caused by the cramping, and the loss of strength may have just been me crashing from being too dry. My BP has been low for the last week or so, but it usually doesn't change much during treatment. Today however, I started at around 150/90, and I ended at about 110/70. I felt fine however, until the last couple minutes when the chest pain and trouble breathing started. We are going to tinker more with my dry weight, and I may be able to go off the last of my BP meds. Right now I feel ok, although I'm insanely tired. Even though it turned out to not be anything too serious, I'm still glad I went. It's better to be safe than sorry. Hopefully this will not happen again.

Adam
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
okarol
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« Reply #1 on: February 07, 2008, 08:15:07 PM »
I am so sorry Adam, that sounds very scary!
Seems you're not the only one with chest pains http://ihatedialysis.com/forum/index.php?topic=6915.0 - and Kitkatz has had recent problems too. Could it all be fluid related?
I think you're wise to adjust your dry weight and see how that goes. Hope you feel better now.
 :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
jbeany
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« Reply #2 on: February 07, 2008, 08:30:41 PM »
Glad you are doing better!
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Joe Paul
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« Reply #3 on: February 07, 2008, 11:14:47 PM »
Glad it wasn't your heart Adam, Hang in there   :thumbup;
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"The history of discovery is completed by those who don't follow rules"
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Transplant Jan. 8, 2010
CW
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« Reply #4 on: February 08, 2008, 01:45:40 AM »
Adam maybe should back off of your dry weight a little and see if it helps. I have never gotten chest cramps before but I would guess it is possible. When approaching my dry weight (before cramps and bp drop) I start to yawn a lot (this has protected me from cramps and crashing for years) and I pay attention to those very small cramps that come before the big ones. I have to say you have a super partner your dad sounds great! He really stepped up and took care of everything. Parents are awesome :2thumbsup; . But maybe I am a little biased I am a parent ;D 8) ;)
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*Common Sense is an uncommon thing


20 years navigating ESRD
Had a transplant but it rejected

To all of my kidney brothers and sisters who have left too soon -
Where you used to be, there is a hole in the world, which I find myself constantly walking around in the daytime, and falling in at night.  I miss you like hell.  ~Edna St Vincent Millay
Ken Shelmerdine
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Life's a bitch and then you go on dialysis!
« Reply #5 on: February 08, 2008, 03:11:02 AM »
Must have been very alarming for you, hope it doesn't happen again.
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Ken
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« Reply #6 on: February 08, 2008, 04:18:33 AM »
Sorry you had to experience this, I hope adjusting your dry weight keeps you from going through this again.  :grouphug;
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Bajanne
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« Reply #7 on: February 08, 2008, 06:39:19 AM »
Wow, our members are going a great deal recently.  But we are strong!  My caring thoughts and prayers are with you.  Keep on keeping on!! :grouphug;
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I LOVE  my IHD family! :grouphug;
skyedogrocks
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« Reply #8 on: February 08, 2008, 08:20:56 AM »
Rob has had cramping in his chest a couple of times.  Not to the point where he can't breathe, but where it's bothersome.  His neph told him it's fluid related.  He has also had cramping in his stomach, butt and back (along with hands, legs and feet).  So sorry it happned, but glad nothing is wrong with your heart.
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Wife to Rob who is currently doing Nx Stage Home Hemo Dialysis.

11/17/09 After 4 years on dialysis, Rob received a kidney from our George.  Kidney is working great!  YEAH!!!!
KT0930
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« Reply #9 on: February 08, 2008, 08:28:47 AM »
Hopefully this is just fluid related and tinkering with your dry weight will help. Glad it wasn't serious!
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"Dialysis ain't for sissies" ~My wonderful husband
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I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
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« Reply #10 on: February 08, 2008, 09:18:49 AM »
Better to be safe than sorry, and even if it happens again go back and get it checked out. Cramps in that area could easily be mistaken for chest pains and if you go weak again , how about drinking a little water to re-hydrate you , its quite good as a quick fix! If i have ever got de-hydrated and gone shakey usually about half a glass of water puts it right quickly! Worth a try !
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
paris
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« Reply #11 on: February 08, 2008, 11:41:39 AM »
Adam, I know that must have been scary.   Take is easy, rest and I hope they figure out the dry weight. :grouphug;
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MyssAnne
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« Reply #12 on: February 08, 2008, 11:54:09 AM »
How scary, Adam! I'm glad you had someone to take you to ER!

Have you gotten your strength back yet?  I'm sure glad that's 'all' it was, some cramping, but still, how scary!!

Glad it came out okay for you!! Give us an update tomorrow, on how the exchange went tonight!
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Slywalker
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« Reply #13 on: February 08, 2008, 03:55:41 PM »
How scary for you.  Glad you are okay now.   :clap;

Take care now

sandyb
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Wattle
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« Reply #14 on: February 08, 2008, 04:20:53 PM »
Take care Adam  :cuddle;
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
Ohio Buckeye
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« Reply #15 on: February 08, 2008, 04:45:56 PM »
Sounds scary Adam.
Glad your heart is ok.
Hope you gt your strength back soon.
Take care and God bless.
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If I must do this to live, I must strive to live
while I am doing this.
Adam_W
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Me with Baron von Fresenius
« Reply #16 on: February 08, 2008, 05:41:21 PM »
I'm doing a lot better now. My nurse had me increase my dry weight, and during my treatment today, my blood pressure was up to around 130/80 (it had been running around 110/70). I felt fine after tx with no cramping or pain, and my breathing was normal. I sure hope it doesn't happen again.

Adam
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
MyssAnne
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« Reply #17 on: February 08, 2008, 05:43:27 PM »
Adam,

Thanks for letting us know how it went! I'm glad it went so well tonight, and I so hope
it does NOT happen again!!
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The Wife
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« Reply #18 on: February 08, 2008, 07:29:39 PM »
This sounds horrible Adam.  I'm so glad you had your dad to take you to the ER and so glad you're feeling better. 
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kitkatz
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« Reply #19 on: February 08, 2008, 09:44:24 PM »
Chest pain at dialysis is not fun. I had it recently too, had it checked out.  Nothing came of it.  It is bewildering when your body fails you and there is no cause.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
kellyt
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« Reply #20 on: February 09, 2008, 08:12:57 AM »
I hope you're still feeling better.  That sounded scary.

It's great when people share this kind of information/experiences.  Guaranteed it will help someone in the future!    :thx;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
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« Reply #21 on: February 09, 2008, 10:55:04 AM »
So glad you're feeling better now. All digits crossed that it never happens again.
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