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Mrs. BF
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« on: June 14, 2006, 09:26:37 AM »

My name is Joanna, my husband has been on CAPD for a little over 2 years now. We are both 32 years old, and very happily married.
Let me give you a little history on my husband. He first became ill at the age of 14 with a rare condition called Henoch-Schönlein purpura, this being such a rare disorder, the doctors did everything they could to save him. Including three days of IV steriods that ended up killing his kidneys (I am making this long story rather short for now)
years later at the age of 30, he was told his kidneys were failing and that he needed dialysis immediatly. So, in march of 2004 he had the PD cath put in, and began his training for CAPD. I can say two years later that this dialysis is just a normal part of our lives. I thank god for it everyday, because with out dialysis, we would not be together right now. My husband is currently searching for a living donor in his family, as he has many more years to go on the waiting list.
This whole thing has been one rollar coaster after another, with high and low b/p's, good and bad days. I am truley looking forward to getting to know some you of and seeing what this is like for others. I can truley say this has all been very humbling, it has taught both of us to live each day as it might be our last together.

I was very happy to find this site, Keep up the good work! I plan on being here quite often!
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Epoman
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« Reply #1 on: June 14, 2006, 02:18:46 PM »

Hello, and welcome to the site, you are not alone there are many wives of patients on this site. I hope you visit us often and post a lot because it is a two way street, you help us and we will help you. Be sure to visit our home page by clicking the banner on the top. There are many things to see and do.

Be sure to check out these links, these will help get you started.

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This site is here for YOU, all I ask in return is that you follow the rules in the
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Don't forget, come back often and help us make this community stronger. The bigger
we become the louder our voice will be.

- Epoman
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- Epoman
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13+ Years In-Center Hemo-Dialysis. (NO Transplant)
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #2 on: June 14, 2006, 02:51:04 PM »

Welcome to the group!   Looking forward to hearing from you some more.  We have quite of group of concerned spouses here.  Your partners are very fortunate to have you guys going through this with them in such a caring way.
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Rerun
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Going through life tied to a chair!

« Reply #3 on: June 14, 2006, 07:19:23 PM »

Mrs. BF (Butterfly)???

Welcome to the site.  With 2 years behind you I hope there is smooth sailing.  I did great on CAPD, but all the fun was interrupted by a TRANSPLANT!  AND that went even better for 17 years.  It would be hard to "ask" family members.  If they don't approach me, I'm not asking.  Call it pride!
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Epoman
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« Reply #4 on: June 15, 2006, 04:28:05 PM »

Mrs. BF (Butterfly)???

Welcome to the site.  With 2 years behind you I hope there is smooth sailing.  I did great on CAPD, but all the fun was interrupted by a TRANSPLANT!  AND that went even better for 17 years.  It would be hard to "ask" family members.  If they don't approach me, I'm not asking.  Call it pride!

If they don't ask they are probally hoping you don't ask.  :(

- Epoman
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- Epoman
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13+ Years In-Center Hemo-Dialysis. (NO Transplant)
Current NxStage & PureFlow User.

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« Reply #5 on: June 16, 2006, 06:51:15 PM »

Thats what I like about you Epoman, blunt but truthful.
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Hephs-little-lady
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« Reply #6 on: June 17, 2006, 01:01:40 AM »

Hello Mrs BF,

Welcome to the site. I'm also the wife of a dialysis patient. My husband has been on CAPD for 3months.  How did you make it a normal part of life?  :D

It's good to have you here.

H-L-L
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:D Knowledge Is Knowing That A Tomato Is A Fruit, Wisdom Is Not Putting It In A Fruit Salad.
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