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Author Topic: Hello from Ormond Beach (Daytona) Florida  (Read 4510 times)
joezee
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Just another day in The Chair.....

« on: January 03, 2008, 05:52:01 PM »

Hi everyone! It's good to be among so many others who have been there and are doing that while beiing candid and still maintaining my kind of sense of humor. I'm 63 and have been on in-clinic hemo (Davita- Ormond Beach, FL where I live) since 1/06. I'm a NJ native but have been in FL for 24 consecutive warm Christmases and New Years and I hope many more. I consider myself very lucky, having been diagnosed ESRD at 30% of kidney fuinction in 1998, without symptoms, based on routine blood tests. I never had any symptoms until wicked anemia set in about a month before I started dialysis and shots of EPO did no good. The start of dialysis was part of a bad 8 months that began with prostate removal folllowed by an absessed abdominal infection requiring emergency surgery, then gall bladder removal, aortic valve replacement, and finally emergency surgery to repair a brachial artery aneurism probably caused by a bad needle stick in my non-fistula arm. After 6 weeks of a heavy duty intravenous anti-biotic under the care of my Special Angel and life partner Diane I finally started recovering and have felt like a rebuilt '57 Chevy ever since. The prostate cancer was discovered during a cadaver transplant workup at the Mayo Clinic, Jacksonville. Thankfully the cancer was removed with the prostate surgery and I was placed on their waiting list in late October 2005. I'm told I'm #3 in the queue which could mean tonight or several more months. I feel lucky that I feel OK but tired after dialysis, but great the other four days of the week, so it's not like the wait is killing me. I also feel lucky that I have ESRD and not some other terminal disease that doesn't come with the options of dialysis and transplant to continue living. I know transplant can be a tradeoff between dialysis and heavy drugs, but everyone who has been there says give it a shot. Adjusting to dialysis didn't come easy- it took me about 6 months of trial and error working with the dialysis nurses to finally get it right. I don't expect to recover from transplant overnight either. Joining an online dialysis support group 4 years ago was instrumental in self education and attitude change. That Group experience took me from feeling cursed to feeling blessed based on the options to continue living, and living the same kind of fulfilling lifestyle so many other dialysis patients have lived for years. I learned early on from that Group that we cannot change our circumstances, but we can change our attitude about them. Yes I have bad days too, just like perfectly healthy people. I've been very impressed from what I've read here and I'm glad I found you. I'll try to pass on as much as I can about in-center dialysis when questions arise, and if you don't mind I might pick the brains of those of you who have had the transplant experience. Good to be here.
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Joe Z
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« Reply #1 on: January 03, 2008, 06:13:15 PM »

 :welcomesign;
Hi Joezee,
You and Diane must remember me. I am your long lost:
a) cousin
b) niece
C) godchild
d) plumber
Please pick one of the above and send me a plane ticket. I am freezing in Pennsylvania.  :bandance; :bandance;
Just Kidding! Welcome aboard! :snowman;
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paris
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« Reply #2 on: January 03, 2008, 07:25:18 PM »

 :welcomesign;  So glad you joined our fun family!  I love Ormand Beach; have driven through many times on our way to Daytona or points south.   Great area to be in.  You will find great people here who are always willing to help.  Looking forward to hearing more from you.
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
kitkatz
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« Reply #3 on: January 03, 2008, 08:49:12 PM »

Good grief! You have been put through it! Welcome!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
boxman55
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« Reply #4 on: January 03, 2008, 10:46:40 PM »

welcome Joezee, glad to have you aboard...Boxman
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
Joe Paul
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« Reply #5 on: January 03, 2008, 11:03:48 PM »

Welcome Joezee, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
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« Reply #6 on: January 04, 2008, 05:53:45 AM »

Welcome Joezee to ihatedialysis.com

Very nice introduction, I hope you get your transplant and hope it all goes well.
Thank you for taking the time to introduce yourself, sometimes people find it hard to do that. I hope IHD continues to be a source of knowledge, friendship and more. Post as often as you like and we will be waiting to hear more from you soon.

Sluff/ Admin
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willieandwinnie
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« Reply #7 on: January 04, 2008, 06:44:55 AM »

:welcomesign; joezee,
Great introduction. You'll learn a lot here and we will learn from you. We lived in St. Augustine at the Conch House Marina before my husband became ill and we moved back to Maryland. It is 17 degrees here this morning and not looking forward to February. Take care and WELCOME.

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"I know there's nothing to it, but I want to know what it is there's nothing to"
bolta72
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my best friend

« Reply #8 on: January 04, 2008, 06:46:37 AM »

 :welcomesign;
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gotta do what I gotta do.. 2 yrs in ctr hemo
Lori1851
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This is me Lori , Dustin's mom

« Reply #9 on: January 04, 2008, 07:25:07 AM »

 :waving; Joezee,
Glad you found this site. It has alot of good knowledgeable people on here.

Lori/Indiana
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oswald
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« Reply #10 on: January 04, 2008, 08:02:53 AM »

 :welcomesign;
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ESRD 11/95
1st Transplant 7/1996 (failed; Nephrectomy 12/1996)
2nd Transplant 3/1999 (lasted 6 years)
3rd Transplant 5/2007 (lasted 4 years)
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #11 on: January 04, 2008, 09:26:44 AM »

 :2thumbsup; Hey joezee,
Good introduction! Sorry you've been through so much but it sounds like you're dealing with all of it with a great attitude! Good luck with the future and the potential transplant - I hope all goes well.


okarol/moderator
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
xtrememoosetrax
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« Reply #12 on: January 04, 2008, 10:47:30 AM »

 Hi Joe. Glad you're here. I have found IHD to be a gold mine of information and support, and hope you'll be adding your :twocents; to make this an even more valuable resource.  :welcomesign;
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Living donor to friend via 3-way paired exchange on July 30, 2008.

www.paireddonation.org
www.caringbridge.org/visit/marthahansen
orphans_mom
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« Reply #13 on: January 04, 2008, 04:31:01 PM »

Welcome Joezee and Diane.

You sure have been through it. I hope all goes well for you in the future.

 :welcomesign;
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Orphans_Mom
Huntington, WV
Caregiver, Husband started dialysis 8/12/07
del
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del and willowtreewren meet

« Reply #14 on: January 04, 2008, 04:48:17 PM »

 :welcomesign; You have a GREAT attitude!!
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Don't take your organs to heaven.  Heaven knows we need them here.
livecam
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World's Best Beach..Lanikai..Oahu, Hawaii

« Reply #15 on: January 04, 2008, 05:11:37 PM »

Hey Joe welcome.  We vacationed once in Ormond Beach when I was a kid.  Tonight we are just down the road from you in Weston.  Welcome to the site!
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kellyt
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« Reply #16 on: January 04, 2008, 09:18:30 PM »

 :waving;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
kevinswife
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« Reply #17 on: January 05, 2008, 10:10:32 AM »

 :welcomesign;

You have a great attitude!   :2thumbsup;

kevinswife
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Wife and care partner to Katonsdad. 
May you rest in peace my dear husband.
Ang
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« Reply #18 on: January 05, 2008, 03:12:35 PM »

 :welcomesign;
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live  life  to  the  full  and you won't  die  wondering
donnia
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me and my donor Joyce

« Reply #19 on: January 06, 2008, 12:06:59 PM »

 :welcomesign;
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
goofynina
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He is the love of my life......

« Reply #20 on: January 06, 2008, 10:45:16 PM »

Hey Joezee, Welcome to ihatedialysis.com.  Looking forward to hearing more from you. :)


Goofynina/Admin.
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #21 on: January 08, 2008, 06:54:27 PM »

Welcome to our community!  I am a bit late in welcoming you because of computer problems.  Very glad you decided to join us.  I can see you have lots to offer us, as we have lots to offer you.  Please take advantage of all this site has to offer.  we have become a genuine caring and sharing family.  when you need to vent, this is just the place.  when things are going hunkydory, this is just the place!

Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
keefer51
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« Reply #22 on: January 11, 2008, 01:51:49 AM »

 :welcomesign;
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i am a 51 year old male on dialysis for 3 years now. This is my second time. My brother donated a kidney to me about 13 years ago. I found this site on another site. I had to laugh when i saw what it was called. I hope to meet people from all over to talk about dialysis.
Hawkeye
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« Reply #23 on: January 11, 2008, 12:29:54 PM »

Hello and  :welcomesign;
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It's not easy being green.
angellady07
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« Reply #24 on: January 14, 2008, 12:26:42 PM »

Welcome.  :waving;
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