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Author Topic: Can someone help me with this...  (Read 24879 times)
kidney4traci
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« Reply #25 on: February 28, 2008, 04:43:51 PM »

I am on two lists and each hospital is different.  The one closest to me I never hear from, and I always have to call back several times to get anywhere.  The other is an hour and half away, they seem a bit better actually, but you still need to stay on them to really get any thing accomplished. 
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Married - three children.
Alports female, diagnosed ESRD 10/04
11/04  Hemo in clinic
6/07 hemo at HOME! 
2/3/09 - Transplant from an angel of a friend!!!
kellyt
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« Reply #26 on: February 29, 2008, 01:18:41 PM »

Okay, I spoke with my coordinator this morning.  She, as well as the doctors on the "committee", were very shocked and disappointed.  She said that ALL of his other tests and labs were extremely normal.  "He is very healthy otherwise".  But, they have to follow their protocol or guidelines or rules or WHATEVER.  I know the rules are in place to benefit myself and my donor alike.   :-\

My other brother will contact her this afternoon to hopefully schedule his bloodwork.  That is if they let him due to his smoking.  I think he's a couple packs a week smoker and not a couple packs a day.  I don't know. I hope that counts for something.   ::)   He had a complete physical in 2007, including chest x-ray , labs, etc. that was completely normal (except a slightly high cholesterol).  Hopefully, they'll go ahead and test him and then we can wait for transplant if needed.

Thanks everyone for your kind words and wisdom!  I honestly don't know where I'd be if I didn't have this website!   :grouphug;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
kellyt
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« Reply #27 on: February 29, 2008, 07:25:45 PM »

I thought I'd pass this information on to whomever might be in or near my shoes...

My 2nd brother called the coordinator today.  They performed the "phone interview" and he was told to call his GP and have him put him on "the patch" for smoking.  Then, he only has to be non-smoking for one month and not three like originally told/thought!!!!  Plus, they might accept most or all his previous physical exam tests performed in 2007.  That would be awesome!    :clap;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
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