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Author Topic: Hubby Back In Hospital -Ambush Begins Again  (Read 6543 times)
PrimeTimer
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« Reply #50 on: May 26, 2021, 07:29:26 PM »
They transferred my husband to a nursing home today -without my knowledge. I suppose he knows but I don't know and can't talk to him because they say "he's sleeping".   
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
Michael Murphy
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« Reply #51 on: May 26, 2021, 08:36:30 PM »
PT let’s hope his recovery is quick and he is home with you soon you and him are in my prayers.
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PrimeTimer
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« Reply #52 on: June 07, 2021, 07:18:12 AM »
My heart is breaking for my husband. They transferred him back to the ICU this morning. His BP dropped to 55/40. His belly was also distended so they drained him of fluid/undigested food and trying to figure out why that happened. Lots of scans. They are hitting him with meds thru a central IV AND a PiCC line and put him on a BiPap machine until he is stable. Please send prayers and a whole lot of positivity our way. I actually slept a straight two hours last nite. Then the phone rang with this news. But he's a fighter. He opens his eyes and looks around and he's aware of everything. Wish they could do that heart surgery but they want to wait until he's a little stronger.
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
iolaire
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« Reply #53 on: June 07, 2021, 10:35:28 AM »
Sorry PT, are they letting you visit him?
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Transplant July 2017 from out of state deceased donor, waited three weeks the creatine to fall into expected range, dialysis December 2013 - July 2017.

Well on dialysis I traveled a lot and posted about international trips in the Dialysis: Traveling Tips and Stories section.
cassandra
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When all else fails run in circles, shout loudly
« Reply #54 on: June 07, 2021, 12:25:17 PM »
All the love, healing, strength and positive vibes coming both your ways. Like Iolaire asked, can you visit him, or speak to him?


 :cuddle;


Lots of love, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
PrimeTimer
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« Reply #55 on: June 07, 2021, 03:11:40 PM »
iolaire and Cassandra: He can't talk right now because they are using a BiPap machine on him. Meanwhile, we are still without a car and I don't have anyone that can drive me. I have a portable oxygen concentrator but with a very limited amount of O2. I can't risk getting stranded and running out. I can't take a taxi or Uber because hubby has the bank card with him (he didn't know he'd end up in the hospital). Thank goodness I wrote the card number down so at least I can order groceries and meds to be delivered. Taxi's require the actual card. I can't take the free volunteer rides because those are for doctor appts only. The phone has been my only "lifeline" to him and it sure sucks.
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
MooseMom
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« Reply #56 on: June 07, 2021, 07:53:05 PM »
Oh, Pea Tea, I am so sorry to hear this.  It must all be so frustrating and frightening for you both.  Does he have a social worker that might have some transportation suggestions for you?
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Simon Dog
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« Reply #57 on: June 08, 2021, 06:02:30 AM »
Quote from: PrimeTimer on June 07, 2021, 03:11:40 PM
I can't take a taxi or Uber because hubby has the bank card with him (he didn't know he'd end up in the hospital). Thank goodness I wrote the card number down so at least I can order groceries and meds to be delivered. Taxi's require the actual card.
Why can't you take Uber or Lyft?  Neither requires the actual card - you register it in the app once and only have to update it when the expiration date changes.'

There is always the danger of cabbies playing the "credit card machine is broke, I need cash" to avoid the CC charge.    It's so common that Boston requires cabs to be withdrawn from service if their CC system is down.
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PrimeTimer
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« Reply #58 on: June 08, 2021, 08:42:20 AM »
I am going to have to figure out how to get an app on our home computer. Otherwise hitchhike. I'm being sarcastic now but am not myself at the moment.

-They just put him back on a ventilator. They say he is really struggling. His BP is 90/40 and that is with 4 BP meds thru an IV. Not a good day I'm afraid. 
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
PrimeTimer
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« Reply #59 on: June 08, 2021, 09:09:37 AM »
Do you have to have an iphone or some sort of handheld device to use or download the app to use Uber? I found Google Play on our home computer but do not have a cell phone.


His blood pressure is now 58/40. They will perform CPR if he codes.
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
PrimeTimer
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« Reply #60 on: June 08, 2021, 05:02:42 PM »
My husband has passed.
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
Michael Murphy
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« Reply #61 on: June 08, 2021, 05:10:23 PM »
Contact the aclu or if your state has attorneys for the less well off, see if you can get a order demanding. His immediate release.  Additionally your doctor should certify that you are capable of providing care.  If that doesn’t work threaten a lawsuit because if hubby wants to go home and is willing to go ama then he is being held against his will.
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kristina
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« Reply #62 on: June 09, 2021, 12:20:25 AM »
Quote from: PrimeTimer on June 08, 2021, 05:02:42 PM
My husband has passed.

Dear PrimeTimer, I am so sorry to read these sad and shocking news and I send you my deepest condolences. You and your husband have both tried so very hard and it is so sad to see how brutally cruel this kidney-disease really is. I am thinking of you and send you my deepest condolences and sympathetic thoughts from Kristina. :grouphug;
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
iolaire
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« Reply #63 on: June 09, 2021, 06:09:19 AM »
PrimeTimer I'm sorry for your loss and the pain leading up to it.
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Transplant July 2017 from out of state deceased donor, waited three weeks the creatine to fall into expected range, dialysis December 2013 - July 2017.

Well on dialysis I traveled a lot and posted about international trips in the Dialysis: Traveling Tips and Stories section.
MooseMom
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« Reply #64 on: June 09, 2021, 07:34:42 AM »
Oh, Pea Tea!  I have been dreading this news for some time now, and I am so very sorry for all that you and your dear husband have been through.  Please accept my deepest condolences, dear lady.   :grouphug;
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
cassandra
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When all else fails run in circles, shout loudly
« Reply #65 on: June 10, 2021, 06:01:43 AM »
Dear PT I’m very sorry to read this. I’ll be thinking of you a lot, and a sending strength vibes too.


Lots of love, Cas


 :grouphug;
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
SooMK
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« Reply #66 on: June 10, 2021, 02:08:15 PM »
I am so sorry.
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SooMK
Diagnosed with Uromodulin Kidney Disease (ADTKD/UMOD) 2009
Transplant from my wonderful friend, April 2014
Volunteering with Rare Kidney Disease Foundation 2022. rarekidney.org
Focused on treatment and cure for ADTKD/UMOD and MUC1 mutations.
PrimeTimer
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« Reply #67 on: June 10, 2021, 02:43:53 PM »
I feel like I've just lost my purpose. But thank you for the condolences.
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
Michael Murphy
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« Reply #68 on: June 10, 2021, 09:56:18 PM »
There are no words to express my profound sorrow I have become vested in your hubby progress.I know how I feel is a mere shadow of your feelings.  Your stories of his life were so full of love.  I know you have had a heartbreaking loss.  You and your husband struggles and the obvious love and care that you filled your writings with helped me deal with my minor life difficulties. I will say a prayer for you and your wonderful courageous. Husband.
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Xplantdad
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Health is not valued till sickness comes. T.Fuller
« Reply #69 on: June 12, 2021, 10:12:40 AM »
Hi Prime Timer-so sorry to hear about your husband. I have not been on here in a long time. Also sorry to hear the struggles that YOU have been through as well. I will left up prayers for both of you :'(
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My name is Bruce and I am the caregiver for my daughter Holly who is 31 years old and received her kidney transplant on December 22, 2016 :)
Holly's Facebook Kidney  page: https://www.facebook.com/Hollys.transplantpage/

Holly had a heart transplant at the age of 5 1/2 months in 1990. Heart is still doing GREAT!  :thumbup;
Holly was on hemodialysis for 2.5 years-We did NXStage home hemo from January 2016 to December 22, 2016
Holly's best Christmas ever occurred on December 22, 2016 when a compassionate family in their time of grief gave Holly the ultimate gift...a kidney!
UkrainianTracksuit
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« Reply #70 on: June 12, 2021, 06:11:51 PM »
Pea Tea, please accept my sincerest condolences on the loss of your husband. Extremely saddened by this news. You were so devoted to the love of your life and this shone through.
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