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Fox_nc
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« on: September 10, 2006, 08:50:32 AM »
My turn ....

Hello, my name is Sonja and I am a 28 year old with a 11 year old trasplant.  In July I found out that the tx was failing and I would soon be on dialysis again.  I started hunting around for some support and found this site.  Which is great by the way.  I had PD previously and will be starting it again soon.  I have surgery scheduled for Thursday to have the equipment installed, but then it will be several weeks before I can start to use it.  My function is slipping and I feel like poop on a stick, so  I called my doc yesterday and he had be pop into the emergency room for some labs.  I was admitted about 1 this morning and will have hemo by the morning.  I'm doing ok with it all, just gathering as much info as I can.  Alot has changed in the last decade and I need to have all the info I can.  This sudden switch to hemo has my husband a little scared, but I think he'll be ok.  It's only temp until the PD is ready to rolll. I was having some pain over my tx and the ultrasound they did this morning made it worse so I'm on a slight amount of pain medication right now.  So ... this may not be the best time to post, but I wanted to get my hello out there. I look forward to talking to you all. 


 :thx;
Sonja


UPDATE:
The PD surgery I spoke about back in September was postponed while they tried to figure out why I was having pain.  But now, 3 months later is on again.  I'm scheduled now for the 22nd and nothing is going to stop it this time, or I might just loose it!
« Last Edit: November 17, 2006, 06:58:43 PM by Fox_nc » Logged
Being normal is not necessarily a virtue. It rather denotes a lack of courage. -- from the movie Practical Magic
Joe Paul
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« Reply #1 on: September 10, 2006, 09:02:20 AM »
Welcome Fox, sorry to hear about the failing transplant, but glad you joined us here.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
vandie
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« Reply #2 on: September 10, 2006, 09:26:15 AM »
 :welcomesign;
 You have come to the right place.  This is a fantastic group of people.  Welcome.
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Life is the journey, not the destination.
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I received a kidney transplant on August 4, 2007.
Zach
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« Reply #3 on: September 10, 2006, 10:05:33 AM »
Welcome to the site!  Let us know how things go.      ;)
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Fox_nc
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« Reply #4 on: September 10, 2006, 10:10:24 AM »
I see that so far   :2thumbsup; Everyone seems great!  I've had lots of questions answered without even having to post one.  Which is the greatest part. ... Knowing we're not alone.  I may still post some new questions this week though.  Seems like I will be in the hospital at least a week, and I'll have plenty of time to cruise around.  

Thanks for the welcome!
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Being normal is not necessarily a virtue. It rather denotes a lack of courage. -- from the movie Practical Magic
Sluff
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« Reply #5 on: September 10, 2006, 05:13:27 PM »
Welcome Fox
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goofynina
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He is the love of my life......
« Reply #6 on: September 10, 2006, 06:35:28 PM »
Hey Sonja,  Welcome to the website,  i am sure you will enjoy yourself here, so much info, so many members, so much fun.  If you are having trouble finding what you are looking for, please do not hesitate to ask and please, feel free to post comments and concerns of your own as well... look forward to hearing from you...
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Rerun
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« Reply #7 on: September 10, 2006, 06:44:55 PM »
Hi Fox.  So sorry about your transplant.  When I lost mine I just wanted to die with it.  But, I'm here and it isn't.  I hope you had a great 11 years.  You will like this site.  You can come and vent.  You are experiencing a "loss" and you have a right to be mad right now.

 :welcomesign;
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15yearstolong
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« Reply #8 on: September 10, 2006, 06:51:28 PM »
 :welcomesign;

This is my first day too any everybody is so nice :)
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Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #9 on: September 10, 2006, 06:53:21 PM »
 :welcomesign; to our community.  Though we are all connected in some way to renal failure,yet there is such a rich diversity, and here you are adding to our wonderful mix.  Sorry about your transplant problems, but I am glad you had that many years.  We really need to hear how things go with you.  Pleeeeeeease keep us posted.  I'm glad you took the time out (at a time like this) to connect with us.  Here is a big group hug from all of us -  :grouphug;

PS I have a niece named Sonja and I hope you pronounce your name like her (sonya).
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I LOVE  my IHD family! :grouphug;
Fox_nc
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« Reply #10 on: September 10, 2006, 09:23:40 PM »
He he ... yes I do ... (the name)  My mother thought the "j' was the prettiest, but always said it Sonja

So far the hospital visit is going ok. Doc still doesn't know why I'm having pain over my tx, so today I had a CT to rule out an appy and saw an OB/GYN to rule out anything in that area.  The pain is really throwing them for a loop.  But with everything else ruled out I will get a perm-cath to start hemo tomorrow. I'll do a session Monday, Tuesday and Wednesday.  Then I'll go ahead with the surgery Thursday to get my PD cath.

I am having a small issue getting use to 1500 ml a day.  How does anyone do it?  I feel like I should be a camel.  Last week it was drink as much as you can, at least 3500 ml a day and now I'm counting ice! ARGH!   I have a good staff tonight though.  It's right at Midnight and I'm NPO offically now until the procedure tomorrow (which may be as late as 5 pm), so they brought me a sandwich, an apple, jello, and 2 juices ... sweet, huh?  I'll let you all know how the procedure goes tomorrow.
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Being normal is not necessarily a virtue. It rather denotes a lack of courage. -- from the movie Practical Magic
angieskidney
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« Reply #11 on: September 12, 2006, 05:08:15 AM »
Hi Sonja! I know you! :) How is it going?  :clap;
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FREE Donor List for all Kidney Patients!

diagnosed ESRD 1982
PD 2/90 - 4/90, 5/02 - 6/05
Transplant 4/11/90
Hemo 7/05-present (Inclinic Fres. 2008k 3x/wk MWF)
mallory
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« Reply #12 on: September 12, 2006, 09:52:36 AM »
Fox nc, Sorry to hear about your transplant failing.  Glad you found this site, and glad to have you post.  I hope you're feeling better, keep us updated on your progress.
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Sometimes the light’s all shinin’ on me;
Other times I can barely see.
Lately it occurs to me what a long, strange trip it’s been.
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Fox_nc
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« Reply #13 on: September 13, 2006, 05:57:31 PM »
I started the hemo on Monday with a perm-cath and will have the PD cath put in a couple of weeks.  Everything is flowing ok for now, but they are still debating taking out the tx b/c of the pain.  But if we do that, I would have to delay the PD for a while.  And since my entire course has changed somewhat I am digging around other areas of the site, and will be posting some questions.  I hope everyone will feed me their experiences and opinons.  They have all come in very handy this week and I don't see having ALL the info I will ever need in the next couple of days  ::)
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Being normal is not necessarily a virtue. It rather denotes a lack of courage. -- from the movie Practical Magic
anja
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« Reply #14 on: September 13, 2006, 09:42:52 PM »
Hello, Sonja, hope all is progressing well and that the pain is subsiding over your tx.  Keep us posted!  Anja
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Fox_nc
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« Reply #15 on: September 14, 2006, 04:31:37 AM »
Thanks! Will do!

 :thx;
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Being normal is not necessarily a virtue. It rather denotes a lack of courage. -- from the movie Practical Magic
tamara
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WOO HOO NEW KIDNEY PEEING !!!(Transplant 23/10/07)
« Reply #16 on: September 14, 2006, 04:49:03 AM »
Hi Fox,


Saying Hi!, so Hi! :welcomesign; and


Hope the permacath op treats you well and hope the pain goes bye byes !
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ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine 

                                                                                                                  
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
Fox_nc
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« Reply #17 on: September 14, 2006, 04:54:09 AM »
thanks!  So far so good today, but I haven't eaten or taken a walk yet. , ,
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tamara
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WOO HOO NEW KIDNEY PEEING !!!(Transplant 23/10/07)
« Reply #18 on: September 14, 2006, 04:57:43 AM »
Thats good to hear but remember, pain killers are our friends LOL !
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ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine 

                                                                                                                  
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
Fox_nc
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« Reply #19 on: September 14, 2006, 05:28:45 AM »
oh I know ... and at this hospital they are very free with the pain killers.  I'm not use to it.  At my last one, you almost had to beg for them, and then they would keep you longer until you were off them.   So I'm not in pain, but I'm not going to take advantage either  :angel;
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Being normal is not necessarily a virtue. It rather denotes a lack of courage. -- from the movie Practical Magic
angieskidney
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« Reply #20 on: September 16, 2006, 12:00:18 PM »
Quote from: Fox_nc on September 14, 2006, 05:28:45 AM
oh I know ... and at this hospital they are very free with the pain killers.  I'm not use to it.  At my last one, you almost had to beg for them, and then they would keep you longer until you were off them.   So I'm not in pain, but I'm not going to take advantage either  :angel;
When I was in the hospital last with Peritonitis and needed painkillers when they put in my HD catheter in my chest and took out the PD cath I found it depended on the nurse on shift if you got your pain killers often or not.
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FREE Donor List for all Kidney Patients!

diagnosed ESRD 1982
PD 2/90 - 4/90, 5/02 - 6/05
Transplant 4/11/90
Hemo 7/05-present (Inclinic Fres. 2008k 3x/wk MWF)
goofynina
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« Reply #21 on: September 16, 2006, 12:23:29 PM »
Just a reminder... This is the introduction section,  please post all other posts in their correct threads,   thank you. :)
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