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Author Topic: Feeling a little doomed  (Read 12399 times)
brenda
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« Reply #25 on: November 20, 2007, 09:14:57 PM »

Sensipar dosage changed to 150mg today. PTH went way up again  :banghead; They claim that doing lots of dialysis has nothing to do with your PTH levels. So how come mine went down so far after 4 weeks of nocturnal training (for 3 1/2) and a few days trying it at home. It's got me suspicious a little. Before I go loose it on the doctor  :boxing; (who I can't get in to for 2 months) I am going to try a little experiment.
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Life is what happens while your making other plans.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #26 on: November 20, 2007, 09:19:17 PM »

What kind of experiment?
I hope you figure this out Brenda.  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
charee
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« Reply #27 on: November 21, 2007, 03:33:19 PM »

Sensipar dosage changed to 150mg today. PTH went way up again  :banghead; They claim that doing lots of dialysis has nothing to do with your PTH levels. So how come mine went down so far after 4 weeks of nocturnal training (for 3 1/2) and a few days trying it at home. It's got me suspicious a little. Before I go loose it on the doctor  :boxing; (who I can't get in to for 2 months) I am going to try a little experiment.
brenda thats  BS i have increased from 6.5 hours to 7 to help lower my pth and its working you are right i have been told longer dialysis does help  :ausflag;
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Home Hemo  18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
brenda
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« Reply #28 on: November 21, 2007, 03:43:37 PM »

Well that's my theory Charee, that will be my little experiment while I'm waiting to get into the Dr. With the help of my home-hemo trainer I will try dialyzing 4-5 nights a week for a few weeks and see what happens to my PTH. Not nocturnal cause I just can't deal with that but I figure I may as well do something, and what a better time than when it's -30c outside and snowing. I'll try it in January.  :snowman;
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charee
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« Reply #29 on: November 21, 2007, 03:47:29 PM »

its worth trying keep us posted on how it goes :2thumbsup;
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Home Hemo  18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
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