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MEG
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« on: November 23, 2007, 02:22:13 PM »
Hi. I am caregiver to Bob who started dialysis in September of 06.  We have been on NxStage since May of 07 and are loving it.  We use the Pureflow but occasionally use bags if our schedule gets thrown off.  We have made it through the little bumps that NxStage has had along the way and it seems that things have smoothed out and are working pretty well again.  Bob has a graft which makes sticking challenging.  His first vascular surgeon was ready to retire and don't think he even considered a fistula for Bob.  If he needs a new access along the way, we will ask for a fistula for sure.  Buttonholes seem to be much easier on you than repeated sticking of a graft.

We are both retired, I from teaching, Bob from engineering management. We had planned to do a lot of traveling in our retirement, tried 'center hopping', but that doesn't work too well.  We haven't felt comfortable enough to take the NxStage with us, but are getting close to trying a short trip to the beach.  (we love the coast in the fall).

Hope this posting works, this format is new to me.  Sorry if I goof...  MEG
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Bob's caregiver
Sluff
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« Reply #1 on: November 23, 2007, 02:29:17 PM »
Great Job MEG and Welcome to ihatedialysis.com,

Just wondering what subject of teaching you and your husband taught? I hope IHD becomes a big help during your husbands dialysis journey.

I'm glad you decided on nxstage, it seems to be the best so far in home dialysis and for traveling. Have you and your husband done any traveling yet while he has been on dialysis?

Thanks for taking the time to visit us and I hope we see you often. Feel free to post as often as you want.


Sluff/ Admin
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willieandwinnie
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« Reply #2 on: November 23, 2007, 02:42:09 PM »
 :welcomesign; MEG

I too am a cargegiver to my husband Len. We also did home hemo but not NxStage (it isn't available in our area). Len had a transplant on 9/7 and we have had a few bumps to get over. I'm glad you found this site and please read thru the posts and ask questions. Folks here are great.

willieandwinnie
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Joe Paul
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« Reply #3 on: November 23, 2007, 04:22:33 PM »
Welcome Meg, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
boxman55
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« Reply #4 on: November 23, 2007, 05:54:35 PM »
Welcome Meg...Boxman
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
Romona
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« Reply #5 on: November 23, 2007, 06:10:00 PM »
 :welcomesign;
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Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #6 on: November 23, 2007, 07:42:16 PM »
Welcome to our community, to you and to Bob.  That was quite fine, what you did.  We are glad you decided to join us.  I too am a teacher, but still have a couple years before retiring.  I was released at the end of August because I am on dialysis, but I am branching out on my own, with tutoring, French classes and tours (students/adults from the French=speaking islands).  What subject area did you teach?  I am English and French.
Please take advantage of all this site has to offer.  You will soon realize that this is much more than a site - it has become a real family and we welcome you as part of us.   :grouphug;


Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
orphans_mom
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« Reply #7 on: November 24, 2007, 03:55:30 PM »
 :welcomesign; Meg and Bob
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Orphans_Mom
Huntington, WV
Caregiver, Husband started dialysis 8/12/07
angellady07
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« Reply #8 on: November 24, 2007, 04:35:30 PM »
Welcome.  :waving;
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lola
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I can fly!!!
« Reply #9 on: November 24, 2007, 04:53:41 PM »
 :welcomesign;
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www.caringbridge.org/visit/ottomachado
keefer51
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« Reply #10 on: November 25, 2007, 05:16:22 AM »
 :welcomesign;
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i am a 51 year old male on dialysis for 3 years now. This is my second time. My brother donated a kidney to me about 13 years ago. I found this site on another site. I had to laugh when i saw what it was called. I hope to meet people from all over to talk about dialysis.
goofynina
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He is the love of my life......
« Reply #11 on: November 25, 2007, 04:15:21 PM »
Hi Meg, Welcome to ihatedialysis.com.  There is alot of info here on NxStage  :2thumbsup;  Looking forward to hearing from you soon.  :2thumbsup;



Goofynina/Admin.
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
Ang
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« Reply #12 on: November 25, 2007, 04:29:02 PM »
 :welcomesign;
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live  life  to  the  full  and you won't  die  wondering
kellyt
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« Reply #13 on: November 25, 2007, 04:34:05 PM »
 :waving;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Aldente
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« Reply #14 on: November 25, 2007, 07:31:05 PM »
Welcome.  Enjoy your travels with NxStage.
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Laurie
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May 13, 2008
« Reply #15 on: November 26, 2007, 04:42:39 AM »
 :welcomesign;
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March 7, 2001 - Complications after C-section caused kidney failure
March 2001 - December 2001 - Hemo Dialysis
December 2001 - Kidney function improved dialysis no longer necessary
October 2006 - Kidney function started to decline
May 9, 2007 - Listed at Baylor Dallas and Fort Worth
October 12, 2007 - Started PD
May 13, 2008 - Kidney Transplant from a deceased donor
Ken Shelmerdine
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Life's a bitch and then you go on dialysis!
« Reply #16 on: November 26, 2007, 05:56:47 AM »
 :welcomesign;
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Ken
donnia
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me and my donor Joyce
« Reply #17 on: November 26, 2007, 12:28:21 PM »
 :welcomesign;  Welcome Meg!  Good luck traveling with the NX Stage ( Wish I could offer you some advice, but I don't know anything about it).
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
paddbear0000
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Dogs & IHDer's are always glad to see you!

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« Reply #18 on: November 26, 2007, 12:45:44 PM »
 :welcomesign;
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
Hawkeye
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« Reply #19 on: November 27, 2007, 07:13:04 AM »
Hello and  :welcomesign;
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It's not easy being green.
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