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Author Topic: Access update  (Read 2788 times)
Adam_W
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Me with Baron von Fresenius

« on: November 14, 2007, 08:29:55 PM »

Well, my access situation is a little better. I still have the catheter, but I'm back to using the graft for the arterial, and using the catheter just for venous return. I'm scheduled to have vein mapping done on Dec. 5 on my other arm to see if maybe a native fistula can be put in there. I was also talking to one of my friends at my church who's been a hemodialysis nurse for 30 years (she worked at my old centre), and she was talking about a centre in Ohio where most, if not all of the patients have fistulas in their legs. They have very few physical restrictions, they all use buttonholes, and they all self-cannulate. I'm curious about the idea, and I will see what my vascular surgeon has to say about it. I'm still frustrated about my graft problems, but it actually felt GOOD (not literally) when I was able to once again put a giant needle in my arm. On Friday, I'm going to try it with both arterial and venous in the graft.

Adam
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
Rerun
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Going through life tied to a chair!

« Reply #1 on: November 14, 2007, 09:47:39 PM »

Thanks for the update Adam.  Hang in there.
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Sluff
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« Reply #2 on: November 15, 2007, 04:23:47 AM »

Hopefully after the vein mapping they can find the best place that will last. Good Luck Adam.
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paddbear0000
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« Reply #3 on: November 15, 2007, 12:35:38 PM »

Good luck!   :cuddle;
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Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
Adam_W
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Me with Baron von Fresenius

« Reply #4 on: November 15, 2007, 02:25:03 PM »

I successfully used the graft for the arterial again today, only had one alarm when I moved my arm a certain way, and I ran at my usual 450 blood flow the entire tx. Tomorrow I'll try the graft with both lines. Maybe all it needed was a rest. Grafts weren't originally intended to be used six days a week, week after week. I sure am hoping I can get a working fistula in my other arm or my leg.

Adam
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
Bajanne
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« Reply #5 on: November 15, 2007, 08:56:17 PM »

Good news. Keep on keeping on.  I hope you get things going in a way that is comfortable and easy for you.  :cuddle;
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donnia
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me and my donor Joyce

« Reply #6 on: November 19, 2007, 06:38:29 AM »

Good luck Adam!
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
Joe Paul
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« Reply #7 on: November 19, 2007, 08:23:57 AM »

Good luck   :thumbup;
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Transplant Jan. 8, 2010
Adam_W
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Me with Baron von Fresenius

« Reply #8 on: November 19, 2007, 08:32:26 AM »

I'm using the graft for both arterial and venous now, but I'm still getting excessive bleeding. My pressures on the machine are surprisingly good, though. I have an appointment on Dec. 5 to have vein mapping on the other arm done. I won't be at all surprised if the graft messes up again, but I'll use it as long as I can and worry about it messing up when/if it happens. I'm also not going to jump right into having the catheter taken out, because as much as I hate it, I need that backup. I'm just taking it one day at a time.

Adam
Logged

-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
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