VITS END

[MyssAnne]

YAY!!!!!     I am so glad he's home, Kathy!!! That has to be such a relief!!! Now, we just need to KEEP him home...no more emergencies!!!!

[goofynina]

  That is awesome news Kathy, so glad he is home    I hope and pray that he can start feeling brand new soon    Please keep us posted on his progress, Good Luck and GODSPEED   

[Joe Paul]

Glad Len is home, maybe you can soon get some rest 

[Black]

HE'S HOME AGAIN, 

I brought Len home this afternoon. The put him on a pretty restricted diet for the next couple of weeks. I can deal with that, I think. ...
Kathy
willieandwinnie

You need to start calling him "yo yo" cause his string is caught in the ER door.     Glad he is home again.   Maybe both of you can get some rest now and spend some time hugging those Yorkies. 

I can't imagine how hard it is to be on a dialysis diet and then add a more restrictive one.    Can he have anything "fattening" so he can try to gain some weight back?

[2_DallasCowboys]

Hi,

So very happy to read he is home.  Am praying that
all will be smooth sailing for both of you now!

Anne

[Amanda From OZ]

I'm so happy to hear len is home! Hope all goes well from here.

Amanda
xxxoo

[willieandwinnie]

Hi Everyone

I have wanted to update but I get on IHD and read new posts and time gets away from me.

I took Len back to transplant hospital last Tuesday for blood work. The next day the coordinator called and said they were putting Len on 5mg predisone a day. I went and got prescription filled and he took one. The next day she called and said the doctor didn't want him taking it. WTF is that about? I get alittle pissed that you don't see a doctor, only the nurses, doctors only get involved if things start going south. I have to take him again this Tuesday for more labs. His creatinine was 0.06 and his BUN was 13, his protein, magnesium and potassium were also low and they tried to tell me it could be fixed with diet.  They can't even remember that he is on a special diet. The nurse was concerned because of all his stomach and intestinal problems that he is dehydrated. He won't drink much because of the 2 hour trip. I packed a cooler last week so we didn't have to stop (not that I can since he is on such a restricted diet), but it work out well for him. He is only taking 1mg of Prograf 2 times a day and the doctor said he's levels are fine. He has been trying to get out and walk around the neighborhood but the weather is starting to turn colder and that won't be possible shortly. When Len was on dialysis he would sleep until 9:30 or 10 everyday. This past week, he has been up before 8. He is still getting really tired and he says his muscles hurt. He weighed 129 this morning, so he is slowly gaining some weight back. We also see GI doctor on Tuesday and I'm hoping he tell me to add some different foods back in. We'll see.

Let me tell you about this horrible diet that he is on. It's low residue, low fiber. I have to grind the chicken or turkey up. He can have fish as long as I don't spice it up much. He has to have white bread, which he can't stand. He can only have string beans, carrots or asparagus tips, only white rice and if a package says it has more then 2 grams of fiber, he can't have it. No fruits with seeds or skin. This is driving me nuts. Next time you go to the grocery store, take a close look at the labels, it is terrible. I keep telling myself and Len that he only had his transplant 10 weeks ago and he had other problems on top of that. I'm hoping by Christmas maybe things will get better.

I just love coming here and reading everyone's stories and the advise given. You guys just don't even know how much I have depended on you this last couple of months. You are my family.

Kathy
willieandwinnie

[goofynina]

You are my family.

And you are ours    Although i know it is hard, hang in there my friend, i hope Len gets better soon (and you get some rest too)    Remember, we are always here for you 

[okarol]

Kathy,
Thanks for the update - I am happy to hear Len is pretty stable compared to how it was going a few weeks ago!
I think about you two all the time - he's so lucky to have you - and so are we!
 

[MyssAnne]

Man, you have had such a rough time of it. I sure hope the GI can give you ideas for more food for Les's diet! I'm glad you're coming in here and letting us know how he is, and how YOU are.

[Wattle]

  Geez... The diet issues are meant to end with a transplant. It must be very frustrating for both of you.

It sounds like Len is doing well so you must be doing something right!   

[2_DallasCowboys]

Hi,

Cannot imagine how frustrated you both must be with this whole new
diet issure, and I do hope it will be very temporary.   Will say some
prayers for all of you, including your precious doggies, that all of this
will be resolved very very soon and your Len will be feeling 100%
better, and gaining some wt back.

Anne and Les

[skyedogrocks]

Hi Kathy - Ugh, about the diet situation.  Len is so lucky to have you!!!  Hopefully when things go back to being somewhat normal, you can go and spend a day at the spa and pamper yourself.  You need and deserve it!

Take care!