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Author Topic: Hello from Kidneygirl  (Read 5431 times)
Kidneygirl
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« on: November 05, 2007, 05:09:51 PM »

Hello, I am a 47 year old woman who has been living with End Stage Renal Disease since 2003. I started hemodialysis in 2004. I have had three failed fistulas and about ten or so catheters. They all got infected. My last one was placed in January 2006 and it has been working well.  My sister was going to donate a kidney to me. She had all of the tests and she was a perfect match. I had to lose a lot of weight before the doctors would do the transplant. I lost the weight and then my sister got cold feet. She decided not to donate. I have been on the List for two years now but I have never gotten a call. I have a very rare kidney disease called C1Q Nephropathy.

On the bright side I have two wonderful sons ages 11 and 10, two beautiful Boxers and three cats! I love to read and garden. I used to love to snorkel but I haven't been able to get my catheters wet so that is on hold for now. A friend who is not a kidney patient told me about this site. I wish I had discovered it years ago. I look forward to getting to know all of you.
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charee
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« Reply #1 on: November 05, 2007, 05:12:41 PM »

 :welcomesign; kidneygirl glad you found us

cheers :ausflag;
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Home Hemo  18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
livecam
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World's Best Beach..Lanikai..Oahu, Hawaii

« Reply #2 on: November 05, 2007, 05:12:56 PM »

 Welcome to the site Kidneygirl.  There are lots of good people and much good information available here.  Sorry your sister backed out but it did spur you to do something good for yourself in losing that weight.  Again welcome to IHD.
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boxman55
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« Reply #3 on: November 05, 2007, 05:25:46 PM »

Welcome to IHD, see you around...Boxman
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
Laurie
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May 13, 2008

« Reply #4 on: November 05, 2007, 06:03:23 PM »

 :welcomesign;
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March 7, 2001 - Complications after C-section caused kidney failure
March 2001 - December 2001 - Hemo Dialysis
December 2001 - Kidney function improved dialysis no longer necessary
October 2006 - Kidney function started to decline
May 9, 2007 - Listed at Baylor Dallas and Fort Worth
October 12, 2007 - Started PD
May 13, 2008 - Kidney Transplant from a deceased donor
Aldente
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« Reply #5 on: November 05, 2007, 06:37:34 PM »

Welcome Kidneygirl.
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Sluff
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« Reply #6 on: November 05, 2007, 08:06:38 PM »

Welcome to ihatedialysis.com Kidneygirl,

I hope you find everything you are looking for here, there are lots to read. Please feel free to browse all you want and post often. I'm sure your two boys keep you busy but I'm glad you have them to draw strength from. Hope to see you in the forums.

Sluff/ Admin
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Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

WWW
« Reply #7 on: November 05, 2007, 09:08:02 PM »

Welcome to our community!  I too wish you had found us before, but anyway, it is so great to have you with us now.  There is so much on this site to inform, entertain, and crack you up as well.  This website has become a real family, so I am really welcoming you to our IHD family.  Take advantage of all the site has to offer.  But don't just read and read, you also need to post and post.  We need to know how things are going with you and your great family (that includes the animals), so we look forward to hearing much more from you.  Here is a group hug from all of us. :grouphug;


Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
angela515
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i am awesome.

« Reply #8 on: November 05, 2007, 10:25:04 PM »

 :welcomesign;
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
Joe Paul
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« Reply #9 on: November 06, 2007, 12:32:10 AM »

Welcome Kidneygirl, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
tamara
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WOO HOO NEW KIDNEY PEEING !!!(Transplant 23/10/07)

« Reply #10 on: November 06, 2007, 12:42:48 AM »

Hey Kidney girl

 :welcomesign; and Love your name !

Great to see you here, hope you have as much fun here as I do

See you around

Tamara xxx ooo  :grouphug;  :waving;
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ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine 

                                                                                                                  
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
keefer51
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« Reply #11 on: November 06, 2007, 01:46:13 AM »

 :welcomesign; kidney girl.
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i am a 51 year old male on dialysis for 3 years now. This is my second time. My brother donated a kidney to me about 13 years ago. I found this site on another site. I had to laugh when i saw what it was called. I hope to meet people from all over to talk about dialysis.
Romona
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« Reply #12 on: November 06, 2007, 04:35:05 AM »

 :welcomesign;
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KR Cincy
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Home hemodialysis since May 07

« Reply #13 on: November 06, 2007, 04:50:50 AM »

 :welcomesign;
You've found a great group here!
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Not giving up...thanks to Susan.
bolta72
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my best friend

« Reply #14 on: November 06, 2007, 05:00:24 AM »

 :welcomesign;
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gotta do what I gotta do.. 2 yrs in ctr hemo
willieandwinnie
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« Reply #15 on: November 06, 2007, 05:18:45 AM »

 :welcomesign; Kidneygirl

This is the place to be.

willieandwinnie
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"I know there's nothing to it, but I want to know what it is there's nothing to"
lola
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I can fly!!!

« Reply #16 on: November 06, 2007, 05:32:28 AM »

 :welcomesign;
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Hawkeye
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« Reply #17 on: November 06, 2007, 06:23:14 AM »

Hello and  :welcomesign;
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It's not easy being green.
goofynina
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He is the love of my life......

« Reply #18 on: November 06, 2007, 12:53:07 PM »

Hi Kidneygirl,  Welcome to ihatedialysis.com.  :2thumbsup;  Sorry about your sister getting cold feet and not donating to you, hopefully you will get that call soon.   I would love to hear how you lost your weight (i am in that predicament myself) but while being on PD, it is a little tougher for me  :thumbdown;   If you have any pics of your Boxers we would love to see them, we have a thread for pets and pics of our pets in the Off Topic thread.  My niece tried to have a Boxer but they are too high maintenance, wait til i tell her you have 3, lol,  Look forward to hearing more from you soon.  :cuddle;



Goofynina/Admin.
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
paddbear0000
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Dogs & IHDer's are always glad to see you!

WWW
« Reply #19 on: November 06, 2007, 03:10:25 PM »

 :welcomesign;
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
oswald
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« Reply #20 on: November 07, 2007, 05:06:42 PM »

 :welcomesign;
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ESRD 11/95
1st Transplant 7/1996 (failed; Nephrectomy 12/1996)
2nd Transplant 3/1999 (lasted 6 years)
3rd Transplant 5/2007 (lasted 4 years)
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