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Author Topic: New from Pacific Northwest  (Read 3578 times)
KensGirl
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« on: August 30, 2013, 04:09:40 PM »
Hi All,

I am KensGirl and I am Ken's wife and primary caregiver. We have been married 30 years and live in the Pacific Northwest.

I found this site several months ago and have been lurking.  It is such a wonderful place and I am glad that I've decided to join so that I can relate to others who 'get it'.

Ken started in-center hemodialysis over 21 years ago and that has been his treatment of choice ever since. After so many years, he has several complications, including complete blindness as of 2 years ago. With all that to contend with I have to say he is the MOST amazing person I've ever had the pleasure to know. He never lets it get him down, even on days when he runs too dry, etc.

Anyway, thank you for letting me join your wonderful forum.

KensGirl
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Wife and Caregiver to Ken.
Ken started In-Center Hemodialysis in Nov. 1991
rocker
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« Reply #1 on: August 30, 2013, 05:07:10 PM »
 :welcomesign; KensGirl

Lots of caregivers here.
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Shaks24
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« Reply #2 on: August 30, 2013, 05:23:49 PM »
Welcome  :welcomesign; . People like you are amazing! So glad you decided to join.
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Congestive heart failure 2011
Currently about 19% Kidney Function
September 11, 2013 PD Catheter and Fistula Surgery
September 27, 2013 Started PD
Poppylicious
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WWW
« Reply #3 on: August 31, 2013, 03:12:46 AM »
 :welcomesign; KensGirl (and Ken)!  Thank you for delurking!
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
Rerun
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Going through life tied to a chair!
« Reply #4 on: September 01, 2013, 09:43:02 AM »
Hi Kensgirl,  I'm in Spokane, WA.  I'm so glad you joined.  Yes Ken is amazing.  I'm having trouble with my vision and don't want to go on with dialysis.  You must be worth the fight he fights.  Yes, we all "get it".  It is amazing how many people out there don't.

Hope you keep coming around.

Rerun, Moderator   :welcomesign;
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Angiepkd
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« Reply #5 on: September 01, 2013, 10:29:24 AM »
 :welcomesign; Kensgirl!  Caregivers are the best!  We patients couldn't make it without you!  Lots of understanding, helpful people here.  Looking forward to hearing more from you!  Best wishes!
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PKD diagnosis at 17
Cancer May 2011, surgery and no further treatment but placed on 2 year wait for transplant
October 2011 first fistula in left wrist
April 2012 second fistula in upper arm, disconnect of wrist
January 2013, stage 5 ESRD
March 2013 training with NxStage home hemo
April 2013 at home with NxStage
April 2013 fistula revision to reduce flow
May 2013 advised to have double nephrectomy, liver cyst ablation and hernia repair. Awaiting insurance approval to begin transplant testing. Surgery in June.
June 2013 bilateral nephrectomy.
August 2013 finishing testing for transplant, 4 potential donors being tissue typed.
January 2014 husband approved to donate kidney for me
March 4th 2014 received transplant from awesome hubby. Named the new bean FK (fat kidney) lol!  So far we are doing great!
KarenInWA
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« Reply #6 on: September 01, 2013, 10:48:36 AM »
Hi KensGirl! I live in Bothell, WA. I'm transplanted, but did in-center HD for 7 months back in 2011. Welcome to IHD!!!

KarenInWA
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1996 - Diagnosed with Proteinuria
2000 - Started seeing nephrologist on regular basis
Mar 2010 - Started Aranesp shots - well into CKD4
Dec 1, 2010 - Transplant Eval Appt - Listed on Feb 10, 2012
Apr 18, 2011 - Had fistula placed at GFR 8
April 20, 2011 - Had chest cath placed, GFR 6
April 22, 2011 - Started in-center HD. Continued to work FT and still went out and did things: live theater, concerts, spend time with friends, dine out, etc
May 2011 - My Wonderful Donor offered to get tested!
Oct 2011  - My Wonderful Donor was approved for surgery!
November 23, 2011 - Live-Donor Transplant (Lynette the Kidney gets a new home!)
April 3, 2012 - Routine Post-Tx Biopsy (creatinine went up just a little, from 1.4 to 1.7)
April 7, 2012 - ER admit to hospital, emergency surgery to remove large hematoma caused by biopsy
April 8, 2012 - In hospital dialysis with 2 units of blood
Now: On the mend, getting better! New Goal: No more in-patient hospital stays! More travel and life adventures!
Swamp Gator
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Swamp Gator
« Reply #7 on: September 01, 2013, 07:20:29 PM »
Welcome, so happy you decided to jump in and become one of us.

SG
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A problem is just a challenge . . . Waiting to be conquered.
Impossibilities are just possibilities . . . Waiting to be made possible.
You can't stop the curve balls of life . . . But you can choose how you will handle them.
If God brings you to it . . . He will also bring you through it!

By Cora Lois Grody
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