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Author Topic: Hello, my name is Arnie and I'm new to this forum.  (Read 4702 times)
Aldente
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« on: October 19, 2007, 12:27:45 PM »

Hello, my name is Arnie and I live in North Carolina.  My kidney function slowly degraded over a fifteen year period of time and in May of 2006 I started dialysis.  My modality of choice was peritoneal dialysis and it was effective for about seven months.

In December of the same year I experienced stomach pains and thought it was peritonitis, but four hours after being admitted to the emergency room a segment of my colon was removed.  The problem had nothing to do with my kidney failure or my dialysis; perhaps it was just bad luck.  As a result of the problem my PD catheter was removed, a perm-cath inserted and I was introduced to the world of in-center hemodialysis. 

Our local center accommodates approximately 48 people during each session and the environment is hectic and impersonal (I would use other adjectives but this is a public forum).  During the next five months I ended up with a blood infection. 

My body was now healed enough to have another PD catheter inserted.  This catheter worked for about a week and developed a leak so it was back to hemodialysis.  In less than a week I had another blood infection from the same bay where I received the first.  Back in the hospital and after discharge I refused to go back to the same dialysis center.  Another, smaller and more personal center, provided superior care even though it is owned by the same group.  After a sufficient rest period we tried PD again and now the catheter would fill but not drain.  Back to surgery to remove the growth from the end of the catheter.  Another leak developed and I gave up on PD. 

I spoke with my nephrologist and several other patients and decided to give home hemodialysis and NxStage a try.  Another visit to the hospital to have the PD catheter removed and an AV fistula established.  My wife and I attended extremely thorough training for a little over two weeks and were sent home with everything we needed to do home hemodialysis.  We have been on our own for one whole week and I love it.  I am back to being independent, I’m not afraid of getting another blood infection and I feel much better overall.

On the horizon is the maturing of the AV fistula and learning how to insert needles along with the removal of the perm-cath.  My incentive for achieving these goals is the thought of a decadently long hot shower.

Some folks think that I have had a difficult time during the last nine months but I consider myself fortunate.  My body seems to tolerate dialysis well. I’ve watched others struggle with almost every dialysis treatment they received along with other related complications.  No complaints here...
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MyssAnne
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« Reply #1 on: October 19, 2007, 12:42:21 PM »

Welcome, Arnie! Wow. You've gone through so much.  Sure glad you're here though, new voices and faces are always welcome!! :welcomesign;
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Sluff
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« Reply #2 on: October 19, 2007, 12:48:10 PM »

Welcome to IHD Arnie,

You have had a rough time but seems you have faired. I'm glad you spoke up and refused to go back to the first clinic and I hope since that things have gotten better. Feel free to browse all you want and post all you want. It's great to see you here.

Sluff/ Admin
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okarol
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« Reply #3 on: October 19, 2007, 12:58:08 PM »

 :waving; Hi Arnie,
Well that's quite a story! Sorry you've been through so much. I hope things level out and I am happy Nxstage is working for you!
Glad you could join our group.
Welcome!  :)

okarol/moderator
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Hawkeye
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« Reply #4 on: October 19, 2007, 01:11:25 PM »

Hello and  :welcomesign;
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It's not easy being green.
Romona
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« Reply #5 on: October 19, 2007, 01:16:56 PM »

 :welcomesign;
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angellady07
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« Reply #6 on: October 19, 2007, 02:09:54 PM »

Hello Arnie and welcome. :waving;
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Black
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« Reply #7 on: October 19, 2007, 02:17:12 PM »

:welcomesign; and  :waving; hello from South Carolina.  Sure am sorry you got off to such a rough start but glad you have recovered and joined the ranks of the NxStage users.  :2thumbsup;
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Lorelle

Husband Mike Diagnosed with PKD Fall of 2004
Fistula Surgery  1/06
Fistula Revision  11/06
Creatinine 6.9  1/07
Started diaysis 2/5/07 on NxStage
Laurie
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May 13, 2008

« Reply #8 on: October 19, 2007, 02:26:12 PM »

 :welcomesign;
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March 7, 2001 - Complications after C-section caused kidney failure
March 2001 - December 2001 - Hemo Dialysis
December 2001 - Kidney function improved dialysis no longer necessary
October 2006 - Kidney function started to decline
May 9, 2007 - Listed at Baylor Dallas and Fort Worth
October 12, 2007 - Started PD
May 13, 2008 - Kidney Transplant from a deceased donor
paris
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« Reply #9 on: October 19, 2007, 02:53:27 PM »

Hi Arnie, There are several of us from North Carolina.  Must be something they put in those Bojangles biscuits! :rofl;  Glad you found this site. We all want to hear more about you and Nxstage.  :welcomesign;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
goofynina
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He is the love of my life......

« Reply #10 on: October 19, 2007, 02:58:58 PM »

Hello Arnie, and welcome to ihatedialysis.com.  Geeze, i am sorry all you had to go through and especially that PD didnt work out for you but it sure sounds like you found the next best thing, NxStage, glad to hear that is working out for you  :2thumbsup;  I am looking forward to hearing more from you (and we'd love to hear from your wife too)  :clap;


Goofynina/Admin.
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
Mimi
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« Reply #11 on: October 19, 2007, 03:46:09 PM »

Welcome!!!  It's super that you have no complaints. :clap;

Love, Mimi
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Death is not extinguishing the light;
it is putting out the lamp because the dawn has come.
boxman55
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« Reply #12 on: October 19, 2007, 05:13:00 PM »

 :welcomesign; to IHD...Boxman
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
Joe Paul
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« Reply #13 on: October 19, 2007, 05:23:30 PM »

Welcome Arnie, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
lola
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I can fly!!!

« Reply #14 on: October 19, 2007, 06:12:24 PM »

 :welcomesign;
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Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #15 on: October 19, 2007, 06:43:13 PM »

Welcome to our community!  We are glad you decided to join us.  And what a great intro -just the kind our founder Epoman liked.  He would also have liked the fact that you are now on NxStage.  Take advantage of all this site has to offer, especially the freedom to vent and rage when you need to, if you need to.  There is also lots of info here, and this site is now officially a family, so we are glad to have you with us.


Bajanne, Moderator
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I LOVE  my IHD family! :grouphug;
brenda
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« Reply #16 on: October 19, 2007, 07:33:34 PM »

:welcomesign; Arnie. Home dialysis is the only way to go if you can.
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Life is what happens while your making other plans.
Adam_W
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Me with Baron von Fresenius

« Reply #17 on: October 19, 2007, 08:35:19 PM »

 :welcomesign; to IHD, from a fellow NxStager.

Adam
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
donnia
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me and my donor Joyce

« Reply #18 on: October 19, 2007, 09:13:51 PM »

Hello Arnie, and welcome  :welcomesign;
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
angela515
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i am awesome.

« Reply #19 on: October 19, 2007, 10:30:13 PM »

 :welcomesign;
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
kitkatz
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« Reply #20 on: October 20, 2007, 11:24:33 AM »

The experience of dialysis is sure different for everyone.  Good luck and I hope you stay doing well with the NX stage.  Welcome to the site.



kitkatz,moderator
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
kellyt
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« Reply #21 on: October 20, 2007, 05:05:00 PM »

 :welcomesign;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
KR Cincy
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Home hemodialysis since May 07

« Reply #22 on: October 20, 2007, 05:12:34 PM »

Welcome! As a fellow NxStage homer, I'm glad you found this option...it does give you most of your life back.
Glad you found IHD...it's a great place.
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Not giving up...thanks to Susan.
Redbomb
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« Reply #23 on: October 20, 2007, 05:55:29 PM »

 :welcomesign;
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keefer51
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« Reply #24 on: October 21, 2007, 04:33:32 AM »

 :welcomesign;
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i am a 51 year old male on dialysis for 3 years now. This is my second time. My brother donated a kidney to me about 13 years ago. I found this site on another site. I had to laugh when i saw what it was called. I hope to meet people from all over to talk about dialysis.
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