joe kidney and liver

[joetk]

HI
     MY NAME IS JOE AND I WAS NEVER SICK UNTIL 1984 AND HAVEN'T BEEN WELL SINCE. I HAD A PITUITARY TUMOR REMOVED AND STANFORD USED DONOR BONE TO HELP CLOSE MY SINUS. YEP! HEP C ONLY I ALSO HAD A ALPHA 1 ANTITRIPSEN DIFFENCICY (?) SO BY 1991 I HAD A YEAR OR LESS LEFT. HAD A LIVER TRANSPLANT IN NOV 1991 AND IT WAS VERY SUCCESSFUL. NOW IT HAS BEEN 16 YEARS AND FOR THE LAST COUPLE OF YEARS I HAVE BEEN FIGHTING WORSENING KIDNEY NUMBERS A MONTH AGO I THOUGHT I HAD A TOUCH OF THE FLU WENT TO THE LOCAL REGIONAL HOSP (I LIVE IN A REMOTE AREA). BECAUSE WE DON'T HAVE A KIDNEY DOCTOR IN OUR AREA THEY JUST PUT ME IN INTENSIVE CARE FOR TWO DAYS AND SENT ME HOME. MY WIFE (BLESS HERE) GOT ON THE PHONE TO A LARGE HOSPITEL IN THE CLOSESET LARGE CITY AND INSISTED ON GETTING THRU TO A NEPHROLIGIST AND WHEN SHE TOLD HIM MY CREATNINE WAS 5.6 HE TOLD HER TO START THAT WAY AND HE WOULD HAVE A BED READY. I KIND OF CAME BACK AWARE OF THINGS A WEEK LATER WITH A PIC LINE AND A INCISION FROM MY ARM PIT TO MY ELBOW AND A FISTULA THAT SCARED THE CRAP OUT OF ME BECAUSE I HAD NO IDEA WHAT IT WAS. ANY WAY I AM KIND OF PISSED ABOUT IT ALL. I AM SICK AND TIRED OF BEING SICK AND TIRED.
THERE! THAT FEELS BETTER
THANKS
JOETK

[okarol]

  Hi Joe,

Wow you've had quite a time - sorry to hear it - but happy you found this site. There's lots of support here - a nice community - hope to hear more from you. 


okarol/moderator

[angela515]

Joe.

Life has definitely handed you a box of chocolates that sucked... but you can always refill it with some better one's... life is what you make it... your outlook can make it better or worse when going through these terrible rough times... things will get better when everything is settled down and regulating a little bit more..

I look forward to getting to know you and learning from your experiences.

~ Angela

[Joe Paul]

Welcome Joe, good to have you aboard.

[st789]

In some ways we all share your view on being sick for so many years.  On the bright side, you have the support and caring wife.

[Wattle]

   Welcome

[Redbomb]

 
Glad you found this site!  I'm new to Dialysis myself (3 weeks now) and have found the people here to be a fountain of information when it comes to any questions that I have.

Look forward to hearing more from you in the future!

[Bajanne]

Welcome to our community!  You will find that this is one of the best moves you have made in facing your renal challenge.  There is a wealth of information here (from people who have really experienced it all), there is support, a place to vent when you need to (you already did a bit of that!), a place for fun. and a new family!  Yes this site has become a family in terms of caring and sharing.  There is even a section for loved ones and caregivers so your wife can join in as well.  Please don't just read, you need to post so we can know what is going on with you.  Not nosy, just family. So please take advantage of all this community has to offer.


Bajanne, Moderator

[Sluff]

Welcome to ihatedialysis.com,

You have been through a lot with the Hep C and liver problems and now kidneys. Rant all you want. I swear when somebody built some of us they must have used, used parts. I'm glad you found us, and I hope you learn a lot from others experiences and maybe you have a few experiences to share yourself. feel free to browse, read and post comments often.

Sluff/ Admin

[Laurie]

  Glad you found this site.

[paris]

  This is a safe place to rant and scream! It is also a good place to come for a laugh, a shoulder to cry on or to talk to someone you truly understands your pain. Glad you found us!

[kitkatz]

Welcome to the site! I hope you find answers here.




kitkatz,moderator

[willieandwinnie]

Hi Joe,
  This is the place to rant and get all the answers you need.

Kathy
willieandwinnie

[lola]

 

[MyssAnne]

Welcome, Joe!!!   As everyone says, rant all you want!!! We are family here, we care about you and your wife!

[TynyOne]

Joe,     

Aside from the Hep C, I too, can TOTALLY relate to your feelings of anger.  I have not even been diagnosed for a year yet as I got diagnosed in November 2006 and when I went to my appointment to the kidney doctor, I thought he was going to tell me, "go have more tests run, come back and see me" INSTEAD, he came in and told me as if he was talking about the weather.   "You have CHRONIC KIDNEY FAILURE, which means it cannot be reversed and that I would be on dialysis the rest of my life and for me to get to the hospital RIGHT THEN!  So, luckily I had a friend that happened to go to that appointment w/me and thank God she was because had I been by myself, I probably would have just went on home and never told anyone any wiser.   However, my nephro did also tell me, had I not come in to see him when I did, I only had a couple of months to live as my creatine level was 10 and only had 10% kidney function.  He said, I would eventually went to sleep and never woke up.  One more thing I will say that pisses me off too, is the fact that my family doctor had in my chart, that kidney failure was detected in March 2005!!!!! and I do not find out until Nov. 06?!!!!!!     What the hell?   On top of that, I also had my gallbladder removed (thinking that was what making me sick) and again my nephro told me I could have died through that surgery!   Yeah, I am a little pissed to say the least and yes, I am considering going to an attorney to see what I can do, if anything because they way those 2 doctors did me.  That was totally NOT RIGHT!   So, yes, I can relate to your anger but in a slight different way.   Yes, you have come to a great group of people that will be here for you, when you want to rant and rave, vent or just talk and share more of your experience.    I hope you will make lots of friends here because we can ALL relate to your emotions you are going through.   Again,  aboard and do please keep in touch!

Tammy from Alabama     

[Black]

  Joe.  You are in a good place now.

You are not alone in being maltreated by the medical community and you will learn here how to lessen the chances of that happening to you again.

Welcome aboard.

[keefer51]

 

[Lulu]

Hi Joe - I completely relate to being tired of being sick and tired. Hang in there, everyone here makes a great big giant comfy shoulder for you to lean on. I am new here but my outlook is starting to transform. I am still scared, still sick, still tired...but with all my new IHD friends I feel like I can somehow find a way to handle things.  to the club.

[Hawkeye]

Not sure how I missed this one.  Better late than never.

Hello and    You have come to a wonderful site full of information and new found friends.